- HHS DATA-DRIVENTranslating Data Into Action
+
HHS DATA-DRIVENTranslating Data Into Action
+ PEOPLE FIRSTScience-Driven
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The HHS Office of the Chief Data Officer’s role is to set the standards and approaches to make data drive action in all of the Department’s programs.
+Harnessing human-centered design, data-driven technologies, and open innovation to transform patient outcomes, improving the lives of all Americans.
Learn More
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Data of the People, By the People, For the People
+Innovation can happen where you least expect it.
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OCDO Mission is to responsibly and ethically enable data-driven health and human services to maximize the nation’s return on investment in its data and benefit the American public.
+Change in healthcare happens with collaboration, data-driven insights, and human centered design. We are bringing all three together to create better health outcomes for all.
We achieve this by leveraging OCDO’s enterprise position:
- Engage 400 data sources and enterprise data sharing From e8963a6eedc7c986b478275767b110633928ad67 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Thu, 11 Mar 2021 16:37:14 -0500 Subject: [PATCH 25/77] Update startup-days.md --- _pages/operations/startup-days.md | 90 ++++++++++++++++++++++++++++--- 1 file changed, 84 insertions(+), 6 deletions(-) diff --git a/_pages/operations/startup-days.md b/_pages/operations/startup-days.md index d2633e5..fe7cb58 100644 --- a/_pages/operations/startup-days.md +++ b/_pages/operations/startup-days.md @@ -3,23 +3,101 @@ title: Startup Days layout: page sidenav: true anchors: + - name: About - name: Cities - name: Participants --- # Startup Days -Experts at HHS analyze data with charts or maps to visualize the story behind the data. The links below showcase websites across HHS Operating Divisions that provide the public with pre-made visualizations of data. +Startup Days are a fantastic way for your startup to interact directly with HHS executives--we come to you! + +## About + +Our aim is to demystify HHS, by making our vision, priorities, processes and ways to engage very simple, and immediately actionable. The Office of the CTO has historically been a conduit between HHS and the startup community. We are always trying to find new ways to interact, engage, and learn with this community. We are excited to meet local startups that work in health tech or gov tech and align with the HHS mission. + +### Marketplace perception + +- There are not enough lines of communication between key HHS personnel and healthcare stakeholders. +- Both large and small healthcare companies are not sufficiently aware of all the relevant funding, regulatory and collaborative opportunities from HHS. + +### Innovation + +Innovation is critical for organizations to improve and evolve. Technology is changing at a rapid pace and HHS must be ready to evolve and improve at the same pace. At HHS we think about innovation everyday. We seek to create new solutions to address some of the most complex public health crises like the opioid epidemic or to streamline and modernize government through new processes to perform as a high-performing organization. + +### Learn More + +- [Click here](https://youtu.be/4BQTn-p8IwU) to learn more. ## Cities -- [HHS Coronavirus Home](https://www.hhs.gov/coronavirus/index.html) organizes Coronavirus information available from HHS, including: - - [HHS Product Public Data Hub](https://protect-public.hhs.gov/) provides high-quality, accessible, and timely information for entrepreneurs, researchers, and policy makers to help drive insights and better health outcomes for all. Visualization of COVID-19 data reported to HHS from academia, non-profit organizations, industry, hospitals, and facilities from all 50 states and territories is available to illustrate [Hospital Capacity](https://protect-public.hhs.gov/pages/hospital-capacity) and [National Testing data](https://protect-public.hhs.gov/pages/national-testing). - - [Covid Data Tracker](https://covid.cdc.gov/covid-data-tracker/) presents maps, charts, and data provided by the CDC. - - [COVID-19 Nursing Home Data](https://data.cms.gov/stories/s/bkwz-xpvg) includes data reported by nursing homes to the CDC’s National Healthcare Safety Network (NHSN) system COVID-19 Long Term Care Facility Module. +Accelerators and incubators in these cities have invited HHS to explore how the department is looking at health challenges. +| City | Date | News Coverage | +|------------------|--------------------|----------------------------------------------------------| +| Washington, D.C. | February 5, 2018 | [FedScoop](https://www.fedscoop.com/hhs-debuts-new-startup-day-event-shark-tank-pitches/) | +| Boston | March 29, 30, 2018 | [MedTech Boston](https://medtechboston.medstro.com/blog/2018/04/02/hhs-startup-day-aims-to-demystify-the-department-of-health-and-human-services/)
[Boston Business Journal](https://www.bizjournals.com/boston/news/2018/03/29/u-s-hhs-kicks-off-national-startup-day-tour-at.html)
[MedCityNews](https://medcitynews.com/2018/04/hhs-startup-day-hits-road-court-entrepreneurs/) | +| Chicago | May 23, 24, 2018 | [Healthcare IT News](https://www.healthcareitnews.com/news/hhs-hold-startup-day-chicago) | +| Nashville | June 5, 6, 2018 | | +| Seattle | June 27, 2018 | [State of Reform](https://stateofreform.com/news/washington/2018/07/cambia-grove-hosts-startup-day-seattle-in-partnership-with-us-health-and-human-services/) | +| Atlanta | September 12, 2018 | [Hypepotamus](https://hypepotamus.com/featured-events/atdc-federal-healthcare-innovation-summit/) | +| Minneapolis | October 15, 2018 | | +| Cleveland | November 8, 2018 | | +| Indianapolis | March 19, 2019 | | +| Denver | May 6, 2019 | | +| Los Angeles | May 8, 2019 | | +| Detroit | July 15, 2019 | [MedHealth](https://medhealthinnovation.org/startup-day/) | +| Houston | TBD | | ## Participants -- [CDC’s FluView](https://www.cdc.gov/flu/weekly/index.htm) shares the Weekly Influence Surveillance Report that includes key updates, maps, and charts. +### Seattle + +- Cambia Grove + +### Atlanta + +- ATDC + +### Chicago + +- Healthbox +- 7 Wire Ventures +- Matter +- Pritzker Group Venture Capital +- Sandbox Industries + +### Nashville + +- Nashville Healthcare Council + +### Boston + +#### Primary: + +- Pulse at Mass Challenge +- Massachusetts Ehealth Institute +- City of Boston +- Massachusetts Competitive Partnership +- Harvard Pilgrim Healthcare +- Massachusetts Office of Elder Affairs +- MITRE +- Northeastern +- Brigham and Women’s Hospital + +#### Secondary: + +- Beth Israel Deaconess +- Accenture +- Harvard University +- MIT +- Boston University +- Brandeis University +- Massachusetts Competitive Partnership +- athenahealth +- Boston Healthcare for the Homeless Program +- Franciscan Children’s Hospital +- Massachusetts General Hospital +- Boston Medical Center +- Cigna From d53b4c0fddebecc3a30efeacf7ebbe7dbe926c63 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Thu, 11 Mar 2021 17:15:49 -0500 Subject: [PATCH 26/77] Update covid-19-data-driven-innovation.md --- .../covid-19-data-driven-innovation.md | 158 +++++++++++++++--- 1 file changed, 136 insertions(+), 22 deletions(-) diff --git a/_pages/resources/covid-19-data-driven-innovation.md b/_pages/resources/covid-19-data-driven-innovation.md index aa7ab90..e4e899f 100644 --- a/_pages/resources/covid-19-data-driven-innovation.md +++ b/_pages/resources/covid-19-data-driven-innovation.md @@ -3,32 +3,146 @@ title: COVID-19 Data-Driven Innovation layout: page sidenav: true anchors: - - name: Open Data Inventories and APIs - - name: Data Repositories and Search Tools + - name: COVID-19 TOPx Sprint + - name: COVID-19 Diagnostics Design-a-thon + - name: COVID-19 Open Data Roundtables --- -# Open Data +# COVID-19 Data-Driven Innovation -HHS publishes datasets as part of its Open Data program. The primary resource for public access is healthdata.gov, but additional sites are published for specialized topics. +Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance. -## Open Data Inventories and APIs +COVID-19 data-driven innovation uses novel methods and collaboration to accelerate scientific and public health insights to ultimately shorten the time it takes for COVID-19 information and solutions to save lives. This HHS initiative is co-led by the [Office of the Assistant Secretary for Health](https://www.hhs.gov/ash/index.html) and the Office of the Chief Data Officer. Collaboratively, we are creating crosscutting impact and real-world value from a data-driven ecosystem during one of the most challenging public health crises of our lifetimes. By opening COVID-19 datasets on [HealthData.gov](https://healthdata.gov/) and applying proven innovation methods like [Health+ (“health plus”)](https://www.hhs.gov/cto/initiatives/digital-services/health-plus/index.html), our COVID-19 innovation success will be measured by patient outcomes, social equity, economic recovery, and how HHS improves the lives of all Americans touched by the novel coronavirus. -[Healthdata.gov](https://healthdata.gov/) is dedicated to making data discoverable and making valuable government data available to the public in the hopes of better health outcomes for all. -[HHS Product Public Data Hub](https://protect-public.hhs.gov/) provides high-quality, accessible, and timely information for entrepreneurs, researchers, and policy makers to help drive insights and better health outcomes for all. -- [Open FDA](https://open.fda.gov/) is a web-based API for querying data from FDA reporting systems, for example the FDA Adverse Events Reporting System (FAERS). The API is divided into 5 data systems (18 total data assets): Animal and Veterinary, Food, Human Drug, Medical Device, and Other. Data sets are also downloadable and are derived from FDA reporting systems. The source code for the API is open access. -- [Data.CDC.gov](https://data.cdc.gov/) catalogs numerous types of data covering 21 categories, including: smoking and tobacco use, injury and violence, and disability and health. Data are publicly available. +COVID-19 is a multi-faceted challenge and we are employing numerous innovative practices to address the crisis. Over [200 COVID-19 datasets](https://healthdata.gov/search/og_group_ref/286/type/dataset?query=covid-19&sort_by=changed&sort_order=DESC) on HealthData.gov serve as the fuel for much of our HHS innovation, including the: +1. COVID-19 At-Anywhere Diagnostics “Design-a thon” - A virtual innovation sprint with 750 problem solvers who produced over 30 capstone projects and [16 winning Design-a-thon teams](https://www.hhs.gov/about/news/2020/12/16/winners-of-hhs-design-a-thon-to-develop-innovative-digital-health-tools-for-covid-19.html) to capture COVID-19 diagnostic data and report key elements to inform a data-driven pandemic response. -## Data Repositories and Search Tools +2. COVID-19 TOPx Technology Sprint – A fast-paced, two-month build cycle using the “TOPx Toolkit” created by the U.S. Census Bureau with 14 industry-led teams to further develop COVID-19 diagnostic reporting tools and accelerate the public use of these tools, making it easier for individuals and organizations to safely report positive/negative test results. + +3. COVID-19 Open Data Roundtables – Hands on, structured workshops that improve accessibility and data sharing for public health and the public good, bringing together community, state and federal government leaders, the private sector, non-profits, research, and academia. + +These innovation methods succeed because of participation from diverse stakeholders across multiple sectors: industry, academia, non-profit organizations, all levels of government, and individual entrepreneurs and problem solvers. Together, through COVID-19 data-driven innovation, we are saving and improving American lives. Please join our solver community by creating a profile on our open-innovation, crowdsourcing platform: [waters.crowdicity.com](https://waters.crowdicity.com/). + +### Blog Posts and Ways to Learn More + +- [COVID-19 TOPx Tech Sprint Begins with Design-a-thon Teams — Join us! –](https://healthdata.gov/blog/covid-19-topx-tech-sprint-begins-design-thon-teams-%E2%80%94-join-us) Blog to launch the “COVID-19 TOPx” technology sprint to continue momentum and further develop digital health tools to capture, harmonize, and securely transmit key data elements from at-anywhere COVID-19 diagnostic tests. +- [COVID-19 Open Data – Our Data is Your Data –](https://healthdata.gov/blog/covid-19-open-data-%E2%80%93-our-data-your-data) Blog to announce the publication of the Community Profile Report on the HHS website. +- [COVID-19 is Complex, as is COVID-19 Open Data –](https://healthdata.gov/hhs-publishes-covid-19-hospital-facility-level-data) Blog to announce that HHS began publishing COVID-19 hospital data at the facility level for each week, going back to August 1st 2020. +- [Waters.Crowdicity.com –](https://waters.crowdicity.com/) an open-innovation crowdsourcing platform for sharing data-driven innovations to combat COVID-19 + +## COVID-19 TOPx Sprint + +Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance. + +The COVID-19 pandemic has rapidly changed the way we live. Data and data standards are essential for an effective U.S. response, but only if data are used and standards are widely adopted by all sectors. With COVID-19 TOPx, HHS is collaborating with industry-led teams to transform HHS open data and data standards into digital tools with practical real-world applications. + +### What is The Opportunity Project (TOP)? + +- [The Opportunity Project](https://opportunity.census.gov/) is a collaboration process developed by the White House in 2016 to speed up innovation fueled by government open data. Since then, the U.S. Census Bureau has scaled the program to different government agencies, working with thousands of participants to create over 100 digital products. TOP is a proven innovation model, typically a 12- to 14-week technology sprint with industry, which government can leverage alongside open data to catalyze new technologies. +- Iterate with user-centered, agile build cycles. +- Launch a new digital tool (or build new functionality for an existing tool). + +Each year, the U.S. Census Bureau hosts the annual [TOP Demo Day](https://opportunity.census.gov/our-process/) to showcase digital tools developed through TOP sprints. At Demo Day, the press, data enthusiasts, technologists, government leaders, and others gather to celebrate the launch of products built that year. + +### What is a TOPx Sprint? + +In late 2020, the U.S. Census Bureau published its [TOPx Toolkit](https://opportunity.census.gov/topx-toolkit/introduction/) with how-to instructions for agencies to run their own TOP-like sprints, called “TOPx” sprints. They bring together technologists, government, and communities to rapidly prototype digital products—powered by [U.S. open data](https://www.data.gov/)—that solve real-world problems. The TOPx model gives federal agencies a framework for collaborating with industry and non-government organizations using government open data to: + +- Address mission-critical priorities with data and technology innovation +- Recruit cross-sector participants and strengthen collaborative networks +- Facilitate a virtual technology development sprint on a flexible and modifiable timeline +- Showcase outcomes and new digital tools at TOP or TOPx Demo Days + +### HHS InnovationX Pioneers the First-Ever COVID-19 TOPx Sprint + +Innovation necessitates trying new things, and the InnovationX team has introduced HHS to TOP and TOPx sprints. The first-ever HHS TOPx sprint, launched in January 2021, focused on COVID-19. Fourteen industry-led teams participated in this COVID-19 TOPx sprint with the goal to develop digital health tools to capture, harmonize, and securely transmit key data elements from at-anywhere COVID-19 diagnostic tests. Participating TOPx teams won the [COVID-19 At-Anywhere Diagnostics Design-a-thon](https://www.hhs.gov/coronavirus/covid-19-at-anywhere-diagnostics-design-a-thon/index.html) (innovation sprint) with HHS in late 2020. + +This first [COVID-19 TOPx sprint](https://waters.crowdicity.com/) used a condensed 8-week build cycle, compared to the usual 12- to 14-week TOP length. This abbreviated timeline reflects the urgency of today’s COVID-19 pandemic — people need COVID-19 solutions now. + +The COVID-19 TOPx sprint occurred in the open with all meetings and demos open to the public through waters.crowdicity.com, a crowdsourcing platform for interactive ideas exchange. This made the COVID-19 TOPx process visible, transparent, and accessible to all. + +During the TOPx sprint, HHS policy experts and data stewards provide feedback to the participating teams led by industry, academia, and non-government organizations. As with TOP sprints, all TOPx sprints must use government open data and agile methods to ship tangible, real-world digital tools by the end of the collaboration. Below is a typical process and timeline: + +- Develop TOPx problem statement(s) and identify relevant open datasets +- Recruit sprint participants +- Facilitate an 8- to 14-week technology development sprint + - Organize and facilitate milestone calls (User Research, Data Discovery, Alpha Demo, Beta Demo, Final Demo) + - Provide insight related to the agency’s policy and operational areas + - Answer questions about finding and using the agency’s public data + - Provide feedback on the products being developed +- Host an (optional) in-person event during which products are launched and showcased +- Participate in the annual TOP Demo Day, hosted by the U.S. Census Bureau. + +The InnovationX team is currently developing the HHS TOPx Toolkit, including HHS case studies and how-to methods using [HealthData.gov](https://healthdata.gov/). This will provide innovation support and an HHS-specific playbook for the 80,000+ HHS employees across 11 Operating Divisions and over 15 Staff Divisions that may wish to use TOP or TOPx methods to advance their priorities and mission. + +### Blog Posts and Ways to Learn More + +- [COVID-19 TOPx Tech Sprint Begins with Design-a-thon Teams — Join us! –](https://healthdata.gov/blog/covid-19-topx-tech-sprint-begins-design-thon-teams-%E2%80%94-join-us) Blog to launch the “COVID-19 TOPx” technology sprint to continue momentum and further develop digital health tools to capture, harmonize, and securely transmit key data elements from at-anywhere COVID-19 diagnostic tests. + +- [Waters.Crowdicity.com –](https://waters.crowdicity.com/) an open-innovation crowdsourcing platform for sharing data-driven innovations to combat COVID-19 + +## COVID-19 Diagnostics Design-a-thon + +Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance. + +We brought together innovative private-sector tech teams and data-driven public sector leaders to address one of our most difficult problems using federal open data standards — diagnosing COVID-19 infections. + +### What is a Design-a-thon? + +A public-facing, open-innovation sprint that connects industry with the U.S. government. Teams work quickly to design software that can be scaled to address a public health need. + +The [COVID-19 At-Anywhere Diagnostics Design-a-thon](https://www.hhs.gov/about/news/2020/12/16/winners-of-hhs-design-a-thon-to-develop-innovative-digital-health-tools-for-covid-19.html) issued a call-to-action for American industry and the public to unleash the power of open innovation to develop digital solutions for COVID-19 data capture, harmonization, and reporting from diagnostic tests. HHS crowdsourced ideas from teams that proposed solutions through the [Waters.Crowdicity.com –](https://waters.crowdicity.com/) platform. This [“open innovation”](https://www.hhs.gov/cto/initiatives/open-innovation/about/index.html) platform enabled Design-a-thon teams to form, exchange ideas, and submit “Capstone Projects” built with HHS open data, open source code, and open science. + +### What are outcomes of the COVID-19 At-Anywhere Diagnostics Design-a-thon? + +The Design-a-thon brought together software developers, designers, and engineers with in vitro diagnostic device developers and COVID-19 subject matter experts to build software and digital tools that are directly integrated with COVID-19 tests. Over 750 problem solvers and innovators participated. Collectively, participants formed Design-a-thon teams and submitted over 30 “Capstone Projects” with capabilities to alleviate data collection and reporting burdens for patients, providers, anyone administering/using tests, or labs through which data is routed. These digital capabilities included automated and semi-automated digital tools for reporting COVID-19 results from at-home, non-prescription, and over-the-counter tests on the market now. Judges invited 16 winners to participate in the TOPx tech sprint. + +### What is WATERS? + +During the Design-a-thon, HHS built and launched a “Wireless Automated Transmission for Electronic Reporting Systems” or WATERS to ingest data feeds from many COVID-19 apps and digital tools, including those built by TOPx teams. WATERS provides digital infrastructure for government to securely receive, harmonize, and transmit data from diagnostic device apps, Laboratory Information Management Systems and other entities sending COVID-19 diagnostic data. + +A key function of WATERS is “optionality” – the ability to support disparate, complex systems to accommodate current and changing needs. We are ensuring that hospitals, nursing homes, and other healthcare providers have the options to use apps that suit their specific needs and reporting requirements. Such optionality will alleviate data collection and reporting burdens for patients, providers, anyone administering/using tests, labs through which data is routed, since the users can continue using their preferred app(s) and tool(s) for WATERS to ingest. +Visit [Waters.Crowdicity.com –](https://waters.crowdicity.com/) to learn more about the COVID-19 At-Anywhere Design-a-thon along with upcoming events. + +### Blog Posts and Ways to Learn More +[Waters.Crowdicity.com –](https://waters.crowdicity.com/) an open-innovation crowdsourcing platform for sharing data-driven innovations to combat COVID-19 + +## COVID-19 Open Data Roundtables + +Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance. + +Open Data Roundtables are unique convenings that bring together data providers and their data users to help identify high-value datasets, find action-oriented solutions to data problems, catalyze research on emerging data issues, and establish new collaborations. They connect experts from government, nonprofits and NGOs, academia, and the private sector who may never have met before but who share common goals and interests. + +### What is the history of Open Data Roundtables? + +Open Data Roundtables held by the White House and numerous federal agencies have focused on topics including medical research and health care, transportation, energy and the environment, and the federal data strategy. A Roundtable can cover the use of an individual agency’s data, cross-cutting topics and issues that involve multiple agencies, or federal data policy across the government. Open Data Roundtables often involve participants from state and local governments to address how their data programs can best work together with federal programs. + +Since 2018, HHS has held seven Open Data Roundtables on a wide range of topics. The HHS Office of the CTO co-hosted these Roundtables with the nonprofit Center for Open Data Enterprise (CODE), which developed the methodology for working with federal agencies to hold these events. + +### When is the next Open Data Roundtable? + +HHS is now exploring a potential COVID-19 Open Data Roundtable as well as other efforts to engage stakeholders in addressing the pandemic. More information will be made available on this webpage. + +Previous HHS Roundtables include: + +[Roundtable on Data Sharing Policies, Data-Driven Solutions, and the Opioid Crisis](http://reports.opendataenterprise.org/HHS-Opioid-Roundtable-Report.pdf) +July 2018 + +[Lyme Innovation Roundtable](http://reports.opendataenterprise.org/Lyme Innovation Roundtable Report.pdf) +December 2018 + +[Roundtable on Sharing and Utilizing Health Data for AI Applications](https://healthdatasharing.org/wp-content/uploads/2020/07/RT1-AI-Summary-Report-FINAL-2020.07.28.pdf) +April 2019 + +[Roundtable on Balancing Privacy with Health Data Access](https://healthdatasharing.org/wp-content/uploads/2020/07/RT2-Privacy-Summary-Report-FINAL-2020.07.28.pdf) +July 2019 + +[Roundtable on Leveraging Data on the Social Determinants of Health](https://healthdatasharing.org/wp-content/uploads/2020/07/RT3-SDOH-Summary-Report-FINAL-2020.07.28.pdf) +October 2019 + +[Roundtable on Leveraging Data to Address Sickle Cell Disease](http://reports.opendataenterprise.org/SCD-Report-FINAL.pdf) +June 2020 + +[Roundtable on Using SDOH Data to Fight COVID-19 and Support Recovery Efforts](https://healthdatasharing.org/wp-content/uploads/2020/12/COVID-SDOH-Summary-Report-Final.pdf) +August 2020 -- The [Health Services and Sciences Research Resources database](https://hsrr.nlm.nih.gov/) is designed for health care researchers and health sciences librarians. It provides information about research datasets and instruments/indices employed in Health Services Research, Behavioral and Social Sciences and Public Health. The database does not contain actual resources but does include links to PubMed and URLs with additional information. -- The [NIH Data Sharing Repositories](https://www.nlm.nih.gov/NIHbmic/nih_data_sharing_repositories.html) is a list of repositories containing biomedical data from NIH-funded and other scientific research. It is maintained by the BioMedical Informatics Coordinating Committee The inventory contains 82 data repositories, most of which are public use. The data contained within the repositories is intended for use by researchers, and many of the repositories allow for open submission by NIH-funded and other researchers. -- The [CMS Data Navigator](https://dnav.cms.gov/) is an interactive search tool for CMS data assets including reports, publications, interactive tools, fact sheets, and other types of data. The user can search for data assets by program, setting/type of care, geography or document type. The data navigator comprises 430 data assets. The audience for the inventory is not explicitly described. -- The [National Center for Health Statistics website](https://www.cdc.gov/nchs/index.htm) provides access to surveys and data collection systems collected and maintained by NCHS, the principal federal statistics agency for health. These include population surveys, provider surveys, historical surveys, and vital statistics data. The intended audience is public health and health policy researchers and practitioners. -- A [Portal to Medicare](https://data.medicare.gov/) is maintained by the Centers for Medicare and Medicaid Services to compare data for hospitals, nursing homes, physicians, home health care, dialysis facility, hospice, rehabilitation facility, long-term care, and suppliers. The datasets are pulled from the Medicare.gov's Compare Websites and Directories. -- The [Healthcare Cost and Utilization Project (HCUP)](https://www.hcup-us.ahrq.gov/) consists of health care databases and related software tools and products developed through Federal-State-Industry partnerships and sponsored by the Agency for Healthcare Research and Quality. Example of data found in this database are encounter-level health care data, longitudinal hospital care data (dating to 1988), health policy issues, cost/quality of health services, medical practice patterns, and accessibility to health care programs. The intended audience is health services researchers and decision makers. -- The [National Data Archive on Child Abuse and Neglect (NDACAN)](https://www.ndacan.acf.hhs.gov/datasets/datasets-list.cfm) is an inventory of datasets obtained from researchers and data collection efforts in the field of child abuse an neglect. The inventory is housed at Cornell University and datasets may be requested by researchers. -- The [Research Data Assistance Center](https://www.resdac.org/) provides free assistance to researchers interested in the CMS data. As a CMS contractor, ResDAC provides assistance to academic, non-profit, for-profit and government researchers. -- The [DCCPS Public Datasets & Analyses](https://cancercontrol.cancer.gov/cr-dataset.html) inventory is a directory of data sources about cancer research and epidemiology, cancer survival, health services, and behavioral sciences. The Division of Cancer Control and Population Sciences created this data resource for the public and research community. -- [DASH](https://dash.nichd.nih.gov/) is a centralized resource for researchers to store de-identified data and to access data and associated biospecimens from NICHD supported studies for use in secondary research. The intended audience is researchers. -- [CDC WONDER](https://wonder.cdc.gov/) (Wide-ranging Online Data for Epidemiologic Research) is an online query system that provides access to a wide range of CDC resources and data systems. The intended audience is public health practitioners and decision makers. -- The [HRSA warehouse](https://data.hrsa.gov/tools/data-explorer) holds maps, dashboards, and query tools that outline HRSA's programs. The website provides access to data for HRSA grantees, clinicians, and health researchers and practitioners. From b8ef6ebf0d938f72bfdae80e191cfc3463dfdc49 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Fri, 12 Mar 2021 16:26:24 -0500 Subject: [PATCH 27/77] Update innovation-tours-of-duty.md --- _pages/operations/innovation-tours-of-duty.md | 17 ++++++++++------- 1 file changed, 10 insertions(+), 7 deletions(-) diff --git a/_pages/operations/innovation-tours-of-duty.md b/_pages/operations/innovation-tours-of-duty.md index 77d8977..26151ee 100644 --- a/_pages/operations/innovation-tours-of-duty.md +++ b/_pages/operations/innovation-tours-of-duty.md @@ -10,6 +10,8 @@ anchors: - name: Innovators in Residence --- + + # Innovation "Tours of Duty" Tapping into outside talent to solve complex problems in health and the delivery of human services. Join us to serve as an Entrepreneur-in-Residence (EIR)! @@ -142,13 +144,14 @@ If your organization is interested in becoming a sponsoring organization or has Will Yang, Interim Program Director – Will.Yang@hhs.gov ### EIRs in the news -[“How an Entrepreneur-In-residence changes the culture at CMS”](https://www.hitechanswers.net/entrepreneur-residence-changed-culture-cms/) by HITECH Answers -[“HHS Taking Applications for Entrepreneurs”](http://www.federaltimes.com/story/government/it/health/2015/08/26/idea-lab-entrepreneur/32409823/) by Federal Times -[“The American Way of Death Data”](https://fcw.com/articles/2015/08/14/mortality-data.aspx) by Federal Computer Week (featuring EIR Paula Braun & her project) -[“An Interview with Greg Downing: Join Forces with Outside Talent”](http://federalnewsradio.com/federal-drive/2015/08/greg-downing-joining-forces-with-outside-talent/) by Federal News Radio -[“Government Infecting Itself with Entrepreneurial Spirit”](http://techonomy.com/2015/07/government-infecting-itself-with-entrepreneurial-spirit/) by Techonomy -[“HHS Adds New Class of Entrepreneurs-in-Residence”](https://www.washingtonpost.com/business/on-it/hhs-adds-new-class-of-entrepreneurs-in-residence/2014/12/05/92a4cfd6-7a71-11e4-9a27-6fdbc612bff8_story.html) by the Washington Post -[“Next Wave of Entrepreneurs Arrives at HHS to Help Tackle Major Healthcare Challenges”](http://www.openhealthnews.com/content/next-wave-entrepreneurs-arrives-hhs-help-tackle-major-healthcare-challenges) by Open Health News + +- [“How an Entrepreneur-In-residence changes the culture at CMS”](https://www.hitechanswers.net/entrepreneur-residence-changed-culture-cms/) by HITECH Answers +- [“HHS Taking Applications for Entrepreneurs”](http://www.federaltimes.com/story/government/it/health/2015/08/26/idea-lab-entrepreneur/32409823/) by Federal Times +- [“The American Way of Death Data”](https://fcw.com/articles/2015/08/14/mortality-data.aspx) by Federal Computer Week (featuring EIR Paula Braun & her project) +- [“An Interview with Greg Downing: Join Forces with Outside Talent”](http://federalnewsradio.com/federal-drive/2015/08/greg-downing-joining-forces-with-outside-talent/) by Federal News Radio +- [“Government Infecting Itself with Entrepreneurial Spirit”](http://techonomy.com/2015/07/government-infecting-itself-with-entrepreneurial-spirit/) by Techonomy +- [“HHS Adds New Class of Entrepreneurs-in-Residence”](https://www.washingtonpost.com/business/on-it/hhs-adds-new-class-of-entrepreneurs-in-residence/2014/12/05/92a4cfd6-7a71-11e4-9a27-6fdbc612bff8_story.html) by the Washington Post +- [“Next Wave of Entrepreneurs Arrives at HHS to Help Tackle Major Healthcare Challenges”](http://www.openhealthnews.com/content/next-wave-entrepreneurs-arrives-hhs-help-tackle-major-healthcare-challenges) by Open Health News ### Frequently Asked Questions From f9d1fb76cb3932a1e5ddd43418917283d9c3857f Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Fri, 12 Mar 2021 16:27:43 -0500 Subject: [PATCH 28/77] Update covid-19-data-driven-innovation.md --- .../resources/covid-19-data-driven-innovation.md | 16 +++++++++------- 1 file changed, 9 insertions(+), 7 deletions(-) diff --git a/_pages/resources/covid-19-data-driven-innovation.md b/_pages/resources/covid-19-data-driven-innovation.md index e4e899f..fbbeb1e 100644 --- a/_pages/resources/covid-19-data-driven-innovation.md +++ b/_pages/resources/covid-19-data-driven-innovation.md @@ -7,6 +7,8 @@ anchors: - name: COVID-19 Diagnostics Design-a-thon - name: COVID-19 Open Data Roundtables --- + + # COVID-19 Data-Driven Innovation Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance. @@ -125,24 +127,24 @@ HHS is now exploring a potential COVID-19 Open Data Roundtable as well as other Previous HHS Roundtables include: -[Roundtable on Data Sharing Policies, Data-Driven Solutions, and the Opioid Crisis](http://reports.opendataenterprise.org/HHS-Opioid-Roundtable-Report.pdf) +- [Roundtable on Data Sharing Policies, Data-Driven Solutions, and the Opioid Crisis](http://reports.opendataenterprise.org/HHS-Opioid-Roundtable-Report.pdf) July 2018 -[Lyme Innovation Roundtable](http://reports.opendataenterprise.org/Lyme Innovation Roundtable Report.pdf) +- [Lyme Innovation Roundtable](http://reports.opendataenterprise.org/Lyme Innovation Roundtable Report.pdf) December 2018 -[Roundtable on Sharing and Utilizing Health Data for AI Applications](https://healthdatasharing.org/wp-content/uploads/2020/07/RT1-AI-Summary-Report-FINAL-2020.07.28.pdf) +- [Roundtable on Sharing and Utilizing Health Data for AI Applications](https://healthdatasharing.org/wp-content/uploads/2020/07/RT1-AI-Summary-Report-FINAL-2020.07.28.pdf) April 2019 -[Roundtable on Balancing Privacy with Health Data Access](https://healthdatasharing.org/wp-content/uploads/2020/07/RT2-Privacy-Summary-Report-FINAL-2020.07.28.pdf) +- [Roundtable on Balancing Privacy with Health Data Access](https://healthdatasharing.org/wp-content/uploads/2020/07/RT2-Privacy-Summary-Report-FINAL-2020.07.28.pdf) July 2019 -[Roundtable on Leveraging Data on the Social Determinants of Health](https://healthdatasharing.org/wp-content/uploads/2020/07/RT3-SDOH-Summary-Report-FINAL-2020.07.28.pdf) +- [Roundtable on Leveraging Data on the Social Determinants of Health](https://healthdatasharing.org/wp-content/uploads/2020/07/RT3-SDOH-Summary-Report-FINAL-2020.07.28.pdf) October 2019 -[Roundtable on Leveraging Data to Address Sickle Cell Disease](http://reports.opendataenterprise.org/SCD-Report-FINAL.pdf) +- [Roundtable on Leveraging Data to Address Sickle Cell Disease](http://reports.opendataenterprise.org/SCD-Report-FINAL.pdf) June 2020 -[Roundtable on Using SDOH Data to Fight COVID-19 and Support Recovery Efforts](https://healthdatasharing.org/wp-content/uploads/2020/12/COVID-SDOH-Summary-Report-Final.pdf) +- [Roundtable on Using SDOH Data to Fight COVID-19 and Support Recovery Efforts](https://healthdatasharing.org/wp-content/uploads/2020/12/COVID-SDOH-Summary-Report-Final.pdf) August 2020 From de36c6bc53a58d66544630c728f3b7018c579da2 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Fri, 12 Mar 2021 16:32:15 -0500 Subject: [PATCH 29/77] Update footer.html --- _includes/footer.html | 2 +- 1 file changed, 1 insertion(+), 1 deletion(-) diff --git a/_includes/footer.html b/_includes/footer.html index 77ab7ae..3198683 100644 --- a/_includes/footer.html +++ b/_includes/footer.html @@ -39,7 +39,7 @@
-
From d9895f3a70744e5182ddf7384f7ae4e3a3f6aff9 Mon Sep 17 00:00:00 2001
From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com>
Date: Fri, 12 Mar 2021 16:40:21 -0500
Subject: [PATCH 30/77] Update hero.html
---
_includes/hero.html | 5 ++++-
1 file changed, 4 insertions(+), 1 deletion(-)
diff --git a/_includes/hero.html b/_includes/hero.html
index ed181da..52f2147 100644
--- a/_includes/hero.html
+++ b/_includes/hero.html
@@ -1,5 +1,8 @@
{% comment %}
This will be displayed on the homepage. Ideally, you want to highlight key goals of the website
+
+This was the old learn more button so I don't forget
+Learn More
{% endcomment %}
PEOPLE FIRSTScience-Driven
Harnessing human-centered design, data-driven technologies, and open innovation to transform patient outcomes, improving the lives of all Americans.
- Learn More + Learn More- - COVID-19 Data Hub + @HHS_Innovates
-
HealthData.gov
From 99666b85f876ca2e1207deba7f6c7ea6b7287daa Mon Sep 17 00:00:00 2001
From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com>
Date: Fri, 12 Mar 2021 16:58:23 -0500
Subject: [PATCH 33/77] Update health+.md
---
_pages/resources/health+.md | 42 +++++++++++++++++--------------------
1 file changed, 19 insertions(+), 23 deletions(-)
diff --git a/_pages/resources/health+.md b/_pages/resources/health+.md
index b755d6a..e00d9ec 100644
--- a/_pages/resources/health+.md
+++ b/_pages/resources/health+.md
@@ -3,38 +3,34 @@ title: Health+
layout: page
sidenav: true
anchors:
- - name: COVID-19
- - name: Seasonal
- - name: Mission Focused
+ - name: Design, Discovery & Definition
+ - name: Rapid Prototyping
+ - name: Transition
+ - name: Blog Posts and Ways to Learn More
---
# Health+
-Experts at HHS analyze data with charts or maps to visualize the story behind the data. The links below showcase websites across HHS Operating Divisions that provide the public with pre-made visualizations of data.
+The healthcare space innovates slowly. It is failing to meet the ever-increasing need for improved care.
-## COVID-19
+How can HHS leverage its institutional knowledge and position to bring leaders and patients together and improve the healthcare space?
-- [HHS Coronavirus Home](https://www.hhs.gov/coronavirus/index.html) organizes Coronavirus information available from HHS, including:
- - [HHS Product Public Data Hub](https://protect-public.hhs.gov/) provides high-quality, accessible, and timely information for entrepreneurs, researchers, and policy makers to help drive insights and better health outcomes for all. Visualization of COVID-19 data reported to HHS from academia, non-profit organizations, industry, hospitals, and facilities from all 50 states and territories is available to illustrate [Hospital Capacity](https://protect-public.hhs.gov/pages/hospital-capacity) and [National Testing data](https://protect-public.hhs.gov/pages/national-testing).
- - [Covid Data Tracker](https://covid.cdc.gov/covid-data-tracker/) presents maps, charts, and data provided by the CDC.
- - [COVID-19 Nursing Home Data](https://data.cms.gov/stories/s/bkwz-xpvg) includes data reported by nursing homes to the CDC’s National Healthcare Safety Network (NHSN) system COVID-19 Long Term Care Facility Module.
+Meet Health+.
+Health+ (“health plus”) is an ongoing series of research and healthathon cycles sponsored by the Department of Health and Human Services InnovationX team. It is focused on specific, high-impact health issues, with the goal of fostering technology solutions and creative problem solving.
-## Seasonal
+## Design, Discovery & Definition
-- [CDC’s FluView](https://www.cdc.gov/flu/weekly/index.htm) shares the Weekly Influence Surveillance Report that includes key updates, maps, and charts.
+We will conduct landscape research focused on developing deep understanding of the challenge, the audience, and the vision set forth by executive stakeholders and intra-agency partnerships. By utilizing Human Centered Design (HCD) methods, conducting problem validation with stakeholders, identifying salient user stories, and forming of personas and journey maps, we can inform the round table vision and suggest solutions for those affected by critical health issues. Together, we will work hand-in-hand to execute a roundtable with identified stakeholders, match emerging themes to data sets, and prepare artifacts necessary so that a product team is able to execute different strategies during the rapid prototyping phase.
+## Rapid Prototyping
-## Mission Focused
+This phase includes engaging with patients, subject matter experts, and policy makers in a healthathon, in which participants prototype creative solutions for specific audiences, problems, and opportunities identified by the roundtable. Healthathon outputs may include policy initiatives, technical products, white papers, and more.
-- [Healthy People 2030](https://health.gov/healthypeople) sets data-driven national objectives to improve health and well-being over the next decade and publishes how national data is used to measure progress. From the Office of Disease Prevention and Health Promotion, Office of the Assistant Secretary for Health, Office of the Secretary, U.S. Department of Health and Human Services.
-- [Minority Health Profiles](https://minorityhealth.hhs.gov/omh/browse.aspx?lvl=2&lvlID=26) from the Office of Minority Health provide detailed demographic, language fluency (where relevant), education, economic, insurance coverage and health status information, as well as full census reports.
-- [CDC's National Cener for Health Statistics](https://www.cdc.gov/nchs/index.htm) data sharing includes a Visual Gallery, a collection of interactive tools that present NCHS data in a visually engaging format.
-- The Healthcare Cost and Utilization Project (HCUP) publishes [HCUP Infographics](https://www.hcup-us.ahrq.gov/reports/infographics.jsp), a visual representation of data found in [HCUP Statistical Briefs](https://www.hcup-us.ahrq.gov/reports/statbriefs/statbriefs.jsp) and [HCUP Findings-At-A-Glance](https://www.hcup-us.ahrq.gov/reports/ataglance/findingsataglance.jsp).
-- The Health Resources and Services Administration publishes the [HRSA warehouse](https://data.hrsa.gov/), holding maps, dashboards, and query tools that outline HRSA's programs. The website provides access to data for HRSA grantees, clinicians, and health researchers and practitioners.
-- A [DCCPS data resource](https://cancercontrol.cancer.gov/cr-dataset.html) from the Division of Cancer Control and Population Sciences was created for the public and research community. This inventory is a directory of data sources about cancer research and epidemiology, cancer survival, health services, and behavioral sciences.
-- [WISQARS](https://www.cdc.gov/injury/wisqars/index.html) is a collection of querying tools of data related to injury and violent death, for use by researchers, the public, and the media. It is run by the National Center for Injury Prevention and Control (CDC). It is divided into three data systems, fatal injury, non-fatal injury, and violent deaths, with 10 unique querying tools.
-- ACF programs and the populations they serve are reviewed by the Office of Planning, Research, and Evaluation. Search their findings in the [OPRE Library](https://www.cdc.gov/injury/wisqars/index.html).
-- The [Aging, Independence, and Disability Program Data Portal](https://agid.acl.gov/) provides visualized data through [Data-At-A-Glance](https://agid.acl.gov/DataGlance/) and [State Profiles](https://agid.acl.gov/StateProfiles/).
-- The [Agency for Healthcare Research and Quality](https://www.ahrq.gov/data/index.html) shares [infographics](https://www.ahrq.gov/data/index.html), [visualizations](https://www.ahrq.gov/data/visualizations/index.html), and [state snapshot tool](https://www.ahrq.gov/data/visualizations/index.html) to make sense of health care quality and disparities that may exist.
-- The [Substance Abuse and Mental Health Data Archive](https://www.datafiles.samhsa.gov/info/analyze-data-nid6) provides visualization and tools to enable user-defined analysis
+## Transition
+
+Armed with newly formed prototypes and solutions that positively affect the lives of people living with identified health issues, we work closely with our partners so the team is prepared to continue momentum forward.
+
+## Blog Posts and Ways to Learn More
+
+- [Introducing Health+: An Iterative Collaboration Tacking High-Impact Health Issues](https://medium.com/coformaco/health-plus-gov-healthcare-3cf3ef9b992a)
From 0ab69504d293518478ca1f2ffc51c61fe99ad1e5 Mon Sep 17 00:00:00 2001
From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com>
Date: Fri, 12 Mar 2021 17:24:53 -0500
Subject: [PATCH 34/77] Update kidneyx.md
---
_pages/resources/kidneyx.md | 94 ++++++++++++++++++++++++++++++-------
1 file changed, 77 insertions(+), 17 deletions(-)
diff --git a/_pages/resources/kidneyx.md b/_pages/resources/kidneyx.md
index 5efb718..6c88405 100644
--- a/_pages/resources/kidneyx.md
+++ b/_pages/resources/kidneyx.md
@@ -3,6 +3,7 @@ title: KidneyX
layout: page
sidenav: true
anchors:
+ - name: About KidneyX
- name: Previous Prize Competitions
- name: Artificial Kidney Prize
- name: COVID-19 Kidney Care Challenge
@@ -10,31 +11,90 @@ anchors:
# KidneyX
-Experts at HHS analyze data with charts or maps to visualize the story behind the data. The links below showcase websites across HHS Operating Divisions that provide the public with pre-made visualizations of data.
+The Kidney Innovation Accelerator (KidneyX) is a public-private partnership between the U.S. Department of Health and Human Services (HHS) and the American Society of Nephrology (ASN) to accelerate innovation in the prevention, diagnosis, and treatment of kidney diseases.
+
+## About KidneyX
+
+An estimated 850 million people worldwide are living with kidney disease. [KidneyX](https://www.kidneyx.org/) seeks to improve their lives by accelerating the development of drugs, devices, biologics, and other therapies across the spectrum of kidney care. KidneyX will 'de-risk' innovation by streamlining processes, reducing regulatory barriers, and modernizing the way everyone pays for treatment. By inviting innovation from outside the government, KidneyX will stimulate and accelerate innovation through a series of cash prize competitions.
+
+[Learn more and sign up for updates at KidneyX.org.](http://www.kidneyx.org/).
+
+### Why Kidney Care Innovation Matters
+
+[More than one in seven American adults](https://www.cdc.gov/kidneydisease/publications-resources/2019-national-facts.html) are living with kidney disease. For people with kidney failure, the only treatment option other than a transplant is dialysis, which takes a serious toll. [Dialysis patients typically spend 12 hours a week attached to a machine](https://www.gao.gov/products/gao-17-121) and their [five-year life expectancy](https://www.usrds.org/2018/view/Default.aspx) is worse than that of most cancer patients. The treatment is also extremely costly — Medicare alone spends [more than $100 billion](https://www.usrds.org/2018/view/v2_09.aspx) annually on kidney care, and [one in five Medicare dollars](https://www.advisory.com/daily-briefing/2019/03/08/kidney) are spent on dialysis.
+
+In 2019, President Trump signed an [Executive Order on Advancing American Kidney Health](https://www.whitehouse.gov/presidential-actions/executive-order-advancing-american-kidney-health/), a bold new initiative to improve the lives of Americans suffering from kidney disease, expand options for American patients, and reduce healthcare costs. The initiative provides specific solutions to deliver on three goals: fewer patients developing kidney failure, fewer Americans receiving dialysis in dialysis centers, and more kidneys available for transplant.
+
+As part of the Advancing [American Kidney Health Initiative](https://www.hhs.gov/about/news/2019/07/10/hhs-launches-president-trump-advancing-american-kidney-health-initiative.html?language=en), KidneyX launched the [Artificial Kidney Prize](https://akp.kidneyx.org/?utm_source=HHS&utm_medium=web-content&utm_campaign=launch), a competition to accelerate artificial kidney development toward human clinical trials. This multiphase competition is KidneyX’s first fully dedicated effort toward artificial kidney advancement, with initial phases offering up to $10 million in prizes. The first phase seeks solutions that enable and advance the functionality, effectiveness, and/or reliability of artificial kidneys. Phase 1 submissions are due March 24, 2021. [Read the official announcement here - PDF*.](https://www.hhs.gov/sites/default/files/kidneyx-rd2-prize-announcement-public-notice.pdf?language=en)
+
+KidneyX is also accepting submissions for the [COVID-19 Kidney Care Challenge](https://www.kidneyx.org/PrizeCompetitions/covid19kidneycarechallenge?utm_source=HHS&utm_medium=web-content&utm_campaign=launch). The $300,000 challenge seeks solutions that reduce the transmission of coronavirus among people living with kidney disease and/or reduce the risk of kidney damage among people who contract the virus. Round 1 submissions are due December 4, 2020. [Read the official announcement here - PDF*](https://www.hhs.gov/sites/default/files/kidneyx-covid-19-kidney-care-challenge-prize-announcement.pdf?language=en).
+
+### The KidneyX Approach
+
+Building off the success of similar public-private accelerators, KidneyX is engaging a community of researchers, innovators, and investors to bring breakthrough therapies to patients through:
+
+#### Development
+
+Driving patient access to disruptive technologies via competitive, merit-based prize funding for innovators.
+
+#### Coordination
+
+Providing a clearer and less expensive path for bringing products to patients and their families.
+
+#### Urgency
+
+Creating a sense of urgency by spotlighting the immediate needs of patients and their families.
## Previous Prize Competitions
-- [HHS Coronavirus Home](https://www.hhs.gov/coronavirus/index.html) organizes Coronavirus information available from HHS, including:
- - [HHS Product Public Data Hub](https://protect-public.hhs.gov/) provides high-quality, accessible, and timely information for entrepreneurs, researchers, and policy makers to help drive insights and better health outcomes for all. Visualization of COVID-19 data reported to HHS from academia, non-profit organizations, industry, hospitals, and facilities from all 50 states and territories is available to illustrate [Hospital Capacity](https://protect-public.hhs.gov/pages/hospital-capacity) and [National Testing data](https://protect-public.hhs.gov/pages/national-testing).
- - [Covid Data Tracker](https://covid.cdc.gov/covid-data-tracker/) presents maps, charts, and data provided by the CDC.
- - [COVID-19 Nursing Home Data](https://data.cms.gov/stories/s/bkwz-xpvg) includes data reported by nursing homes to the CDC’s National Healthcare Safety Network (NHSN) system COVID-19 Long Term Care Facility Module.
+### Redesign Dialysis Phase 2
+
+Redesign Dialysis Phase 2 challenged participants to build and test prototype solutions, or components of solutions, that could replicate normal kidney functions or improve dialysis access. Phase 2 received 70 submissions from experts across bioengineering, biotechnology, medical devices, nephrology, and more. The six winners each received $500,000.
+
+[Learn more about Phase 2 and meet the winners](https://www.kidneyx.org/prizecompetitions/RedesignDialysisPhaseII).
+### Redesign Dialysis Phase 1
+
+Redesign Dialysis Phase 1 invited participants to submit proposals on approaches that could enable the design of new artificial kidney devices, extending life and improving quality of life. This first phase received 165 submissions that ranged from innovations in vascular access and fluid filtration to innovations in hemodialysis and biosensors. The 15 Phase 1 winners each received $75,000.
+
+[Learn more about Phase 1 and meet the winners](https://www.kidneyx.org/PrizeCompetitions/PastCompetitions/redesigndialysisphase1).
+
+### Patient Innovator Challenge
+
+The Patient Innovator Challenge, funded by the National Kidney Foundation, challenged individuals, communities, businesses, institutions, and nonprofit organizations to submit ideas for improving therapeutic options and quality of life for people living with kidney disease. The competition sought ideas and solutions that people living with kidney disease have developed through their own everyday experiences and ingenuity. The 25 winners shared a total prize pool of $70,000.
+
+[Learn more about the Patient Innovator Challenge and meet the winners](https://www.kidneyx.org/prizecompetitions/PatientInnovatorChallenge).
## Artificial Kidney Prize
-- [CDC’s FluView](https://www.cdc.gov/flu/weekly/index.htm) shares the Weekly Influence Surveillance Report that includes key updates, maps, and charts.
+The [Artificial Kidney Prize](https://akp.kidneyx.org/?utm_source=HHS&utm_medium=web-content&utm_campaign=launch) is a competition to accelerate the development of artificial kidneys toward human clinical trials. Phases 1 and 2 will award up to $10 million in prizes.
+
+The Artificial Kidney Prize builds on [past KidneyX competitions](https://www.hhs.gov/cto/initiatives/kidneyx/previous-prize-competitions/index.html?language=en) but is distinct in its goal: to accelerate the development of continuous kidney replacement therapies that provide transformational treatment options beyond current dialysis methods. Artificial kidneys may be wearable, implantable, bioengineered, developed as a xenotransplant or chimera organ, or other approaches not yet conceived.
+
+### Enter Phase 1 by March 24
+
+Phase 1 seeks component or integrated prototype solutions that enable and advance the functionality, effectiveness, and/or reliability of artificial kidneys. Phase 1 submissions are due by 4:59 p.m. ET on March 24, 2021.
+
+### Looking ahead to Phase 2
+Phase 2 of the Artificial Kidney Prize will be open to eligible entrants from Phase 1, as well as new eligible entrants who did not enter the first phase. The second phase will focus on initial integration of prototype solutions into an artificial kidney, or advancement of already integrated prototype solutions. Phase 2 is expected to launch in fall 2021.
+
+At the discretion of HHS and ASN, additional competition phases may follow Phase 2 to further accelerate development of artificial kidneys. KidneyX hopes to secure a total of $200 million to support all phases.
+
+Learn more about the [Artificial Kidney Prize](https://akp.kidneyx.org/?utm_source=HHS&utm_medium=web-content&utm_campaign=launch).
## COVID-19 Kidney Care Challenge
-- [Healthy People 2030](https://health.gov/healthypeople) sets data-driven national objectives to improve health and well-being over the next decade and publishes how national data is used to measure progress. From the Office of Disease Prevention and Health Promotion, Office of the Assistant Secretary for Health, Office of the Secretary, U.S. Department of Health and Human Services.
-- [Minority Health Profiles](https://minorityhealth.hhs.gov/omh/browse.aspx?lvl=2&lvlID=26) from the Office of Minority Health provide detailed demographic, language fluency (where relevant), education, economic, insurance coverage and health status information, as well as full census reports.
-- [CDC's National Cener for Health Statistics](https://www.cdc.gov/nchs/index.htm) data sharing includes a Visual Gallery, a collection of interactive tools that present NCHS data in a visually engaging format.
-- The Healthcare Cost and Utilization Project (HCUP) publishes [HCUP Infographics](https://www.hcup-us.ahrq.gov/reports/infographics.jsp), a visual representation of data found in [HCUP Statistical Briefs](https://www.hcup-us.ahrq.gov/reports/statbriefs/statbriefs.jsp) and [HCUP Findings-At-A-Glance](https://www.hcup-us.ahrq.gov/reports/ataglance/findingsataglance.jsp).
-- The Health Resources and Services Administration publishes the [HRSA warehouse](https://data.hrsa.gov/), holding maps, dashboards, and query tools that outline HRSA's programs. The website provides access to data for HRSA grantees, clinicians, and health researchers and practitioners.
-- A [DCCPS data resource](https://cancercontrol.cancer.gov/cr-dataset.html) from the Division of Cancer Control and Population Sciences was created for the public and research community. This inventory is a directory of data sources about cancer research and epidemiology, cancer survival, health services, and behavioral sciences.
-- [WISQARS](https://www.cdc.gov/injury/wisqars/index.html) is a collection of querying tools of data related to injury and violent death, for use by researchers, the public, and the media. It is run by the National Center for Injury Prevention and Control (CDC). It is divided into three data systems, fatal injury, non-fatal injury, and violent deaths, with 10 unique querying tools.
-- ACF programs and the populations they serve are reviewed by the Office of Planning, Research, and Evaluation. Search their findings in the [OPRE Library](https://www.cdc.gov/injury/wisqars/index.html).
-- The [Aging, Independence, and Disability Program Data Portal](https://agid.acl.gov/) provides visualized data through [Data-At-A-Glance](https://agid.acl.gov/DataGlance/) and [State Profiles](https://agid.acl.gov/StateProfiles/).
-- The [Agency for Healthcare Research and Quality](https://www.ahrq.gov/data/index.html) shares [infographics](https://www.ahrq.gov/data/index.html), [visualizations](https://www.ahrq.gov/data/visualizations/index.html), and [state snapshot tool](https://www.ahrq.gov/data/visualizations/index.html) to make sense of health care quality and disparities that may exist.
-- The [Substance Abuse and Mental Health Data Archive](https://www.datafiles.samhsa.gov/info/analyze-data-nid6) provides visualization and tools to enable user-defined analysis
+The $300,000 [KidneyX COVID-19 Kidney Care Challenge](https://www.kidneyx.org/PrizeCompetitions/covid19kidneycarechallenge?utm_source=HHS&utm_medium=web-content&utm_campaign=launch) seeks solutions that reduce the transmission of the coronavirus among people living with kidney disease and/or reduce the risk of kidney damage among people who contract the virus. Winners will receive $20,000 each in recognition of their solutions.
+
+The COVID-19 pandemic has created unique challenges for the estimated 37 million Americans living with kidney disease — as well as their caregivers and healthcare practitioners. Patients, caregivers, frontline staff, and organizations have quickly responded by developing or adapting solutions for safely delivering kidney care during the pandemic. The COVID-19 Kidney Care Challenge aims to identify and share the best of these solutions so that other patients, caregivers, and staff can benefit from them.
+
+### Round 1 submissions due by December 4
+
+The challenge seeks to identify replicable frontline solutions and share them across healthcare communities. KidneyX is particularly interested in demonstrated solutions that consider the patient experience and could be implemented without requiring significant time, expertise, money, or other resources. Round 1 submissions are due by 4:59 p.m. ET on December 4, 2020.
+
+### Round 2 opens December 9
+
+The second round will be open to eligible entrants from Round 1, as well as eligible entrants who did not enter the first round. Round 2 will accept solutions from December 9, 2020 to January 20, 2021.
+
+Learn more about the [COVID-19 Kidney Care Challenge](https://www.kidneyx.org/PrizeCompetitions/covid19kidneycarechallenge?utm_source=HHS&utm_medium=web-content&utm_campaign=launch).
From 1f3b36236118d8ffe6042aa74b56587f5f90ea74 Mon Sep 17 00:00:00 2001
From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com>
Date: Mon, 15 Mar 2021 17:08:16 -0400
Subject: [PATCH 35/77] Update lyme-innovation.md
---
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diff --git a/_pages/resources/lyme-innovation.md b/_pages/resources/lyme-innovation.md
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--- a/_pages/resources/lyme-innovation.md
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@@ -3,38 +3,199 @@ title: Lyme Innovation
layout: page
sidenav: true
anchors:
- - name: COVID-19
- - name: Seasonal
- - name: Mission Focused
+ - name: Purpose
+ - name: Lyme Innovation: Real-World Impact
+ - name: LymeX
---
-# Data Visualizations
+# Lyme Innovation
-Experts at HHS analyze data with charts or maps to visualize the story behind the data. The links below showcase websites across HHS Operating Divisions that provide the public with pre-made visualizations of data.
+The HHS Lyme Innovation initiative is a patient-centered, data-driven approach to the serious threat of Lyme disease and other tick-borne illnesses. A recently released estimate based on insurance records suggests that each year approximately [476,000 Americans are diagnosed and treated for Lyme disease](https://www.cdc.gov/lyme/stats/humancases.html). The geographic habitat range of ticks that can transmit pathogens and cause Lyme disease has also [expanded within the United States](https://www.cdc.gov/ncezid/dvbd/pdf/Brochure_National_Framework_VBDs-P.pdf). So is the geographic spread of the disease, which accounts for more than 70% of all vector-borne illnesses in our country. Lyme and other tick-borne conditions cost the U.S. economy billions of dollars annually.
-## COVID-19
+## Purpose
-- [HHS Coronavirus Home](https://www.hhs.gov/coronavirus/index.html) organizes Coronavirus information available from HHS, including:
- - [HHS Product Public Data Hub](https://protect-public.hhs.gov/) provides high-quality, accessible, and timely information for entrepreneurs, researchers, and policy makers to help drive insights and better health outcomes for all. Visualization of COVID-19 data reported to HHS from academia, non-profit organizations, industry, hospitals, and facilities from all 50 states and territories is available to illustrate [Hospital Capacity](https://protect-public.hhs.gov/pages/hospital-capacity) and [National Testing data](https://protect-public.hhs.gov/pages/national-testing).
- - [Covid Data Tracker](https://covid.cdc.gov/covid-data-tracker/) presents maps, charts, and data provided by the CDC.
- - [COVID-19 Nursing Home Data](https://data.cms.gov/stories/s/bkwz-xpvg) includes data reported by nursing homes to the CDC’s National Healthcare Safety Network (NHSN) system COVID-19 Long Term Care Facility Module.
+HHS's Lyme Innovation initiative sees patients as more than the targets for new prevention, diagnostic, and treatment tools and techniques to address Lyme disease and other tick-borne illnesses. Patients are the driving forces of innovation, and their lived experience is our roadmap.
+Lyme Innovation uses strategic public-private partnerships to accelerate patient-centered advancements in how we address Lyme and other tick-borne diseases. By supporting interdisciplinary collaborations that reflect the initiative's core values, Lyme Innovation will:
-## Seasonal
+- Build commitment to data-driven, patient-centered innovations that improve outcomes.
+- Identify ways to better collect and share data while raising awareness of tick-borne illnesses.
+- Accelerate discovery of next-gen diagnostic tools and technologies.
+- Lower barriers across all phases of development, testing, and implementation.
-- [CDC’s FluView](https://www.cdc.gov/flu/weekly/index.htm) shares the Weekly Influence Surveillance Report that includes key updates, maps, and charts.
+### Core Values
+- RESPECT: Everyone is valued.
+- INNOVATION: Shifting paradigms. Finding a better way.
+- HONESTY/INTEGRITY: Find the truth. Tell the truth.
+- EXCELLENCE: Quality, real-world evidence underlies decision-making.
+- COMPASSION: Finding solutions to relieve suffering.
+- COLLABORATION: Citizens and patients are equal partners.
+- ACCOUNTABILITY: Taking responsibility.
-## Mission Focused
+### Our Approach
-- [Healthy People 2030](https://health.gov/healthypeople) sets data-driven national objectives to improve health and well-being over the next decade and publishes how national data is used to measure progress. From the Office of Disease Prevention and Health Promotion, Office of the Assistant Secretary for Health, Office of the Secretary, U.S. Department of Health and Human Services.
-- [Minority Health Profiles](https://minorityhealth.hhs.gov/omh/browse.aspx?lvl=2&lvlID=26) from the Office of Minority Health provide detailed demographic, language fluency (where relevant), education, economic, insurance coverage and health status information, as well as full census reports.
-- [CDC's National Cener for Health Statistics](https://www.cdc.gov/nchs/index.htm) data sharing includes a Visual Gallery, a collection of interactive tools that present NCHS data in a visually engaging format.
-- The Healthcare Cost and Utilization Project (HCUP) publishes [HCUP Infographics](https://www.hcup-us.ahrq.gov/reports/infographics.jsp), a visual representation of data found in [HCUP Statistical Briefs](https://www.hcup-us.ahrq.gov/reports/statbriefs/statbriefs.jsp) and [HCUP Findings-At-A-Glance](https://www.hcup-us.ahrq.gov/reports/ataglance/findingsataglance.jsp).
-- The Health Resources and Services Administration publishes the [HRSA warehouse](https://data.hrsa.gov/), holding maps, dashboards, and query tools that outline HRSA's programs. The website provides access to data for HRSA grantees, clinicians, and health researchers and practitioners.
-- A [DCCPS data resource](https://cancercontrol.cancer.gov/cr-dataset.html) from the Division of Cancer Control and Population Sciences was created for the public and research community. This inventory is a directory of data sources about cancer research and epidemiology, cancer survival, health services, and behavioral sciences.
-- [WISQARS](https://www.cdc.gov/injury/wisqars/index.html) is a collection of querying tools of data related to injury and violent death, for use by researchers, the public, and the media. It is run by the National Center for Injury Prevention and Control (CDC). It is divided into three data systems, fatal injury, non-fatal injury, and violent deaths, with 10 unique querying tools.
-- ACF programs and the populations they serve are reviewed by the Office of Planning, Research, and Evaluation. Search their findings in the [OPRE Library](https://www.cdc.gov/injury/wisqars/index.html).
-- The [Aging, Independence, and Disability Program Data Portal](https://agid.acl.gov/) provides visualized data through [Data-At-A-Glance](https://agid.acl.gov/DataGlance/) and [State Profiles](https://agid.acl.gov/StateProfiles/).
-- The [Agency for Healthcare Research and Quality](https://www.ahrq.gov/data/index.html) shares [infographics](https://www.ahrq.gov/data/index.html), [visualizations](https://www.ahrq.gov/data/visualizations/index.html), and [state snapshot tool](https://www.ahrq.gov/data/visualizations/index.html) to make sense of health care quality and disparities that may exist.
-- The [Substance Abuse and Mental Health Data Archive](https://www.datafiles.samhsa.gov/info/analyze-data-nid6) provides visualization and tools to enable user-defined analysis
+- Create a sense of urgency.
+- Attract new leaders to the field.
+- Leverage resources from all sectors.
+- Attract and unlock external funding and private capital.
+- Increase collaboration and stakeholder engagement.
+- Improve the customer experience.
+- De-risk and expedite commercialization.
+
+### Goals
+
+Engage Stakeholders to Facilitate Patient-Centered Innovations
+
+- Build trust among stakeholders through listening sessions, roundtables, and other learning approaches that ground innovations in lived experience
+- Engage stakeholders in identifying current areas of need to promote targeted innovations that will make real-world improvements in quality of care
+- Gain insights into patient needs and priorities through stakeholders' collective wisdom, and apply that wisdom in shaping future innovation challenges and events
+
+Advance Education and Awareness
+
+- Crowdsource innovative ideas for raising awareness about risks and prevention
+- Amplify and improve access to essential information supporting innovations in prevention, education, and care with open data/science
+- Foster the development of new, community-based education and prevention efforts through prize challenges and calls to action
+
+Foster Breakthroughs in Next-Gen Diagnostics
+
+- Promote innovation through a series of prize challenges that encourage application of cutting-edge technology and user-centered design to advance diagnostic tests and tools
+- Increase accuracy of diagnostics at all stages of Lyme disease by accelerating delivery of actionable information to healthcare providers, entrepreneurs, and patients
+- Incentivize and reduce risk for development to get new, more accurate diagnostics from lab to market
+
+### Ways to Get Involved
+
+Join us in driving the Lyme Innovation initiative forward! We invite you to join the [LymeX Crowdicity community](https://lymex.crowdicity.com/) to engage with others and help deliver transformative innovation to Lyme disease.
+
+### Blog Posts and Ways to Learn More
+
+For up-to-date information, statistics, and guidance on Lyme disease and related illnesses, visit the Centers for Disease Control and Prevention's Lyme Disease website. You can also check out these HHS blog posts and materials:
+
+- [The Lyme Innovation "TOP Health" Teams in 2020](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2020/01/22/lyme-innovation-top-health-teams-2020.html) (January 22, 2020)
+- [The Power of Lyme Innovation: One Year of Progress](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/10/21/the-power-of-lyme-innovation-one-year-of-progress.html) (October 21, 2019)
+- [Lyme Innovation Roundtable Summary Report - PDF](http://reports.opendataenterprise.org/Lyme%20Innovation%20Roundtable%20Report.pdf) (May 2019)
+- [Lyme Innovation Roundtable Highlights and Next Steps](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/04/15/lyme-innovation-roundtable-highlights-and-next-steps.html) (April 15, 2019)
+- [Deep Dive on "TOP Health": Data + Technology + Innovation for Lyme disease](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/03/19/deep-dive-top-health-data-technology-innovation-lyme.html) (March 19, 2019)
+- ["TOP Health" Tech Sprint Unleashes the Power of Open Data and AI](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/1/17/top-health-tech-sprint-unleashes-the-power-of-open-data-and-ai.html) (January 17, 2019)
+- [Lyme Innovation Roundtable](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) (December 19, 2018)
+- [The HHS Office of the CTO Announces a "Lyme Innovation" Initiative](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/11/20/the-hhs-office-of-the-cto-announces-a-lyme-innovation-initiative.html) (November 20, 2018)
+
+## Lyme Innovation: Real-World Impact
+
+This page documents Lyme Innovation's success story as it continues to unfold. Read on to see how our activities are making a positive real-world impact on Lyme disease and other tick-borne illnesses. Check back often for links to reports, apps, games, blog posts, videos, guides, and other material related to Lyme Innovation's ongoing work.
+
+### [Early Momentum (2015-2018)](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html)
+
+Technology efforts to address the multifaceted aspects of Lyme disease began to pick up steam in 2015, when patients, entrepreneurs, non-profit leaders, and academics organized a series of Lyme Innovation hackathons and events. These bottom-up efforts created new momentum while welcoming all stakeholders Patients and practitioners worked side-by-side to accelerate innovation in Lyme disease diagnostics, treatment, and information sharing across top-tier universities using open data, open science, open innovation, and open source code.
+
+Meanwhile, within federal government, the 21st Century Cures Act authorized HHS to establish a [Tick-Borne Disease Working Group](https://www.hhs.gov/ash/advisory-committees/tickbornedisease/index.html) in 2017 (TBDWG). For the first time, the TBDWG brought together federal and public members to review government efforts and scientific research in order to make shared recommendations on how to advance the field. The TBDWG produced its [first report with 28 recommendations to the U.S. Congress and HHS Secretary in 2018. - PDF](https://www.hhs.gov/sites/default/files/tbdwg-report-to-congress-2018.pdf)
+
+"I want you to know that we, at HHS, hear you. We, at HHS, are listening to your input. We, at HHS, are responding and making Lyme and other tick-borne diseases a priority."— HHS Deputy Secretary Eric Hargan
+
+In response to the 2018 TBDWG report, HHS launched its Lyme Innovation initiative to help connect the bottom-up community needs and momentum with top-down, federal priorities and resources. Transformative change happens when the bottom-up and top-down meet, as this ensures that federal efforts address real-world needs that matter to Americans and their communities. HHS Lyme Innovation became a confluence for all sectors and stakeholders to come together; it became a tool for participating in, boosting, and supporting patient-centered, data-driven approaches to Lyme disease. The HHS Lyme Innovation initiative augments and amplifies the early momentum of community-based innovation efforts by leveraging federal resources and reach—while seeing patients and citizens as driving forces of practical innovation.
+
+### [Lyme Innovation Roundtable (December 2018)](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html)
+
+The first-ever [Lyme Innovation Roundtable](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) at HHS convened leaders and experts in government, industry, academia, research, patient advocacy, nonprofits, and philanthropy to harness the power of collaboration, data-driven innovation, and new technologies in addressing tick-borne diseases. Hosted by HHS with external groups across sectors, the event facilitated information-sharing and feedback from stakeholders including patients, advocates, providers, clinicians, researchers, and policy makers. Following the Roundtable, HHS published a [summary report](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/04/15/lyme-innovation-roundtable-highlights-and-next-steps.html) with actionable recommendations for the Lyme disease community.
+
+### [The Opportunity Project (TOP) Health Tech Sprint (October 2018–January 2019)](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/1/17/top-health-tech-sprint-unleashes-the-power-of-open-data-and-ai.html)
+
+The [TOP Health tech sprint](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/1/17/top-health-tech-sprint-unleashes-the-power-of-open-data-and-ai.html) gave participants 14 weeks to tackle health-related challenges by applying curated federal data sets and emerging technologies. This sprint pilot showcased how industry teams and innovators of all ages can create new digital tools and real-world value from federal open data. TOP Health Challenge #2 asked, "How can we address Lyme and other tick-borne diseases through emerging technologies by coupling the power of the crowd and patient insights with data?" Teams created digital tools and information-sharing supports for data-driven public health decisions and improvements related to tick-borne disease. The sprint resulted in these tangible innovations:
+
+[CURA Patient for Lyme Disease (formerly Clyme Health app)](https://curapatient.com/) Artificial intelligence (AI) ecosystem for managing symptoms, customizing treatment plans, and helping patients follow individualized protocols (won the TOP Prize Challenge).
+- Using both natural language processing (NLP) and AI-vision technology, CURA Patient helps doctors and patients identify and document symptoms. Its AI-driven virtual assistant helps doctors customize treatment protocols and patients follow their unique treatment plans for complex chronic conditions like Lyme disease. CURA Patient is being piloted at the U.S. Department of Veterans Affairs.
+
+[Lyme Symptom Tracker app (free)](https://globallymealliance.org/press-releases/global-lyme-alliance-trialx-appbakery-introduced-lyme-symptom-tracker-mobile-app-white-house/) Helps patients track symptoms, securely share with care providers, and find clinical studies.
+- Developed by Global Lyme Alliance and TrialX during the HHS TOP Health tech sprint, the app uses patient-centric data in several ways to help with Lyme Disease. It helps patients easily track their daily symptoms and securely share with their healthcare provider. In addition, it uses data platforms to help connect users with relevant and nearby clinical studies. The data collected provides valuable insight into disease trends and statistics. (Available for Android and Apple devices)
+
+[TickTickBOOM!](https://livlymefoundation.org/education/) Learning game to protect against ticks made by and for middle schoolers.
+- The full TickTickBOOM! video game is in development and on track for free, public release in app stores in late 2020.
+
+[TickTracker app](https://ticktracker.com/) Real-time geolocation tool showing tick distribution to reduce tick exposure.
+- Currently, the TickTracker app is available in app stores for free for download. Under development is a version of the app that incorporates first-of-its-kind tick-recognition AI; it is expected to go public with beta testing in late 2020.
+
+### AI and Open Data: Lyme Innovation at the White House and TOP Demo Day (March 2019)
+
+TOP Health tech sprint teams [presented outcomes](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/03/19/deep-dive-top-health-data-technology-innovation-lyme.html) at the White House Eisenhower Executive Office at the "Artificial Intelligence and Open Data Innovation for Health" event. The next day, they presented their digital tools on the main stage of TOP Demo Day 2019 at the U.S. Census Bureau.
+
+### Lyme Innovation at Department of Labor Tech Day (May 2019)
+
+In partnership with the White House's Office of Science and Technology Policy and Chief Information Officer Council, the Department of Labor hosted its second annual Tech Day in May 2019 with the theme "Unleashing the Digital Workforce," aimed toward understanding how technology can help the federal government do mission-critical work. [Presentations highlighted Lyme Innovation's](https://www.dol.gov/agencies/oasam/centers-offices/ocio/tech-day) leveraging of new technologies, such as use of artificial intelligence in tracking patient symptoms; predictive analytics in forecasting and preparing for outbreaks; and crowdsourcing for timely, effective tick tracking.
+
+### Lyme Innovation with the Civic Digital Fellows (Summer 2019)
+
+HHS hosted a cohort of Civic Digital Fellows who worked on projects using data, user experience, emerging technologies, and innovation. The cohort, part of 55 fellows participating in the competitive fellowship program, [contributed to a range of HHS projects, including Lyme Innovation](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/08/08/above-and-beyond-summer-with-the-hhs-civic-digital-fellows.html). At Demo Day in August, cohort members demonstrated how their projects could help improve government through technology, innovation, and design thinking. One project used natural language processing to evaluate written public comments submitted to the TBDWG; another helped develop an acute Lyme disease use-case for the "All Hazards" clinical decision-support software.
+
+"Lyme is a frustrating and debilitating disease, but it's a problem we can solve."
+- Anonymous Lyme patient advocate
+
+### Lyme Innovation on Capitol Hill (February 2020) and Beyond
+
+Lyme Innovation is garnering increasingly widespread recognition for fostering cutting-edge solutions and increasing positive outcomes. In February 2020, non-profit organizations honored members of Congress and HHS staff for their strong support of efforts to address Lyme and other tick-borne diseases. Lyme Innovation took center stage, with several of the initiative's leaders receiving awards for outstanding efforts in advancing tools, technologies, and information-sharing resources relevant to these illnesses.
+
+To accelerate [progress](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/10/21/the-power-of-lyme-innovation-one-year-of-progress.html) and strategically advance tick-borne-disease solutions for Lyme in 2020, HHS and the Steven & Alexandra Cohen Foundation partnered to launch the LymeX Innovation Accelerator (LymeX). This LymeX partnership is designed to supercharge our collective impact. HHS also increased its funding for Lyme and tick-borne diseases, and Lyme Innovation will continue to carry forward the momentum of The Kay Hagan Tick Act (part of the fiscal year 2020 Appropriations Bill) with a focus on collaborative, patient-centered innovation.
+
+Check back often for updates on how this initiative is making a real-world impact against tick-borne illnesses.
+
+### Blog Posts and Ways to Learn More
+
+For the most up-to-date information, statistics, and guidance on Lyme disease and related illnesses, see the Centers for Disease Control and Prevention's [Lyme disease website](https://www.cdc.gov/lyme/index.html).
+
+These HHS blog posts offer additional information related to the LymeX partnership, which is one part of the broader Lyme Innovation initiative:
+
+- [Introducing Health+: An Iterative Collaboration Tackling High-Impact Health Issues](https://medium.com/andpartners/health-plus-gov-healthcare-3cf3ef9b992a) (June 17, 2020)
+- [The Lyme Innovation "TOP Health" Teams in 2020](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2020/01/22/lyme-innovation-top-health-teams-2020.html) (January 22, 2020)
+- [The Power of Lyme Innovation: One Year of Progress](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/10/21/the-power-of-lyme-innovation-one-year-of-progress.html) (October 21, 2019)
+- [Lyme Innovation Roundtable Summary Report - PDF](http://reports.opendataenterprise.org/Lyme%20Innovation%20Roundtable%20Report.pdf) (May 2019)
+- [Lyme Innovation Roundtable Highlights and Next Steps](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/04/15/lyme-innovation-roundtable-highlights-and-next-steps.html) (April 15, 2019)
+- [Deep Dive on "TOP Health": Data + Technology + Innovation for Lyme disease](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/03/19/deep-dive-top-health-data-technology-innovation-lyme.html) (March 19, 2019)
+- ["TOP Health" Tech Sprint Unleashes the Power of Open Data and AI](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/1/17/top-health-tech-sprint-unleashes-the-power-of-open-data-and-ai.html) (January 17, 2019)
+- [Lyme Innovation Roundtable](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) (December 19, 2018)
+- [The HHS Office of the CTO Announces a "Lyme Innovation" Initiative](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/11/20/the-hhs-office-of-the-cto-announces-a-lyme-innovation-initiative.html) (November 20, 2018)
+
+## LymeX
+
+Lyme disease and other tick-borne illnesses present an urgent public health challenge. We need all hands on deck for coordinated public health efforts to address the real threat these diseases pose. Developing new and better ways to address these diseases is crucial—but real advancement cannot occur in a vacuum.
+
+That's why HHS launched the LymeX Innovation Accelerator (LymeX), an innovation partnership with the [Steven & Alexandra Cohen Foundation](https://www.steveandalex.org/). LymeX is modeled after the success and methods of the [KidneyX Innovation Accelerator](https://www.hhs.gov/cto/initiatives/kidneyx/index.html), a partnership between HHS and the American Society of Nephrology that includes kidney-care patients in every step of its innovation process.
+
+### Mission
+
+LymeX will accelerate [Lyme Innovation progress](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/10/21/the-power-of-lyme-innovation-one-year-of-progress.html) and strategically advance tick-borne-disease solutions in direct collaboration with Lyme patients, patient advocates, and diverse stakeholders across academia, nonprofits, industry, and government.
+
+### Goals
+
+Engage Stakeholders to Facilitate Patient-Centered Innovations
+
+By including patients and stakeholders in every step of identifying, developing, and implementing advancements in Lyme disease care, LymeX fosters innovations that can deliver transformative impact on patients' quality of life. LymeX is exploring how collaborative partnership models can best support stakeholder engagement. For example, the [Health+](https://www.hhs.gov/cto/initiatives/digital-services/health-plus/index.html) approach pinpoints challenges from the patient's point of view to identify and map development of new tools and technological solutions.
+
+In close collaboration with stakeholders, LymeX aims to:
+
+- Build capacity for effective, efficient communication among patients, stakeholders, and HHS
+- Identify common challenges in patient and healthcare provider experiences
+- Hold a roundtable to outline possible improvements and solutions
+- Make plans for quickly developing and testing solution prototypes
+
+Foster Breakthroughs in Education and Awareness
+
+LymeX supports innovative health education and public awareness initiatives that focus on tick-borne disease prevention and help clinicians, patients, and caregivers benefit from the latest scientific findings.
+
+Accelerate Development of Next-Gen Diagnostics
+
+LymeX prize challenges encourage rapid, cross-sector, patient-centered diagnostic innovations. These challenges will drive creators, industries, and academia toward breakthroughs in more accurate Lyme diagnosis, helping make next-gen diagnostics available more quickly.
+
+### Blog Posts and Ways to Learn More
+
+For the most up-to-date information, statistics, and guidance on Lyme disease and related illnesses, see the Centers for Disease Control and Prevention's [Lyme disease website](https://www.cdc.gov/lyme/index.html).
+
+These HHS blog posts offer additional information related to the LymeX partnership, a part of the broader Lyme Innovation initiative:
+
+- [Introducing Health+: An Iterative Collaboration Tackling High-Impact Health Issues](https://medium.com/andpartners/health-plus-gov-healthcare-3cf3ef9b992a) (June 17, 2020)
+- [The Lyme Innovation "TOP Health" Teams in 2020](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2020/01/22/lyme-innovation-top-health-teams-2020.html) (January 22, 2020)
+- [The Power of Lyme Innovation: One Year of Progress](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/10/21/the-power-of-lyme-innovation-one-year-of-progress.html) (October 21, 2019)
+- [Lyme Innovation Roundtable Summary Report - PDF](http://reports.opendataenterprise.org/Lyme%20Innovation%20Roundtable%20Report.pdf) (May 2019)
+- [Lyme Innovation Roundtable Highlights and Next Steps](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/04/15/lyme-innovation-roundtable-highlights-and-next-steps.html) (April 15, 2019)
+- [Deep Dive on "TOP Health": Data + Technology + Innovation for Lyme disease](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/03/19/deep-dive-top-health-data-technology-innovation-lyme.html) (March 19, 2019)
+- ["TOP Health" Tech Sprint Unleashes the Power of Open Data and AI](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/1/17/top-health-tech-sprint-unleashes-the-power-of-open-data-and-ai.html) (January 17, 2019)
+- [Lyme Innovation Roundtable](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) (December 19, 2018)
+- [The HHS Office of the CTO Announces a "Lyme Innovation" Initiative](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/11/20/the-hhs-office-of-the-cto-announces-a-lyme-innovation-initiative.html) (November 20, 2018)
From f52fe6642d5933eeef478fd60871d7fcd2ae2f8f Mon Sep 17 00:00:00 2001
From: Cyrus Sethna <36174598+cygov@users.noreply.github.com>
Date: Wed, 17 Mar 2021 13:51:35 -0400
Subject: [PATCH 36/77] testing covid innovation page formatting
---
_config.yml | 2 +-
1 file changed, 1 insertion(+), 1 deletion(-)
diff --git a/_config.yml b/_config.yml
index 4a7cff8..957b198 100644
--- a/_config.yml
+++ b/_config.yml
@@ -79,7 +79,7 @@ primary_navigation:
- name: Core Projects
children:
- name: COVID-19 Data-Driven Innovation
- url: /resources/covid-19-data-driven-innovation/
+ url: /resources/covid-19-data-innovation/
- name: Lyme Innovation
url: /resources/lyme-innovation/
- name: KidneyX
From 002137b8502b54842399720f162e51422027d11b Mon Sep 17 00:00:00 2001
From: Cyrus Sethna <36174598+cygov@users.noreply.github.com>
Date: Wed, 17 Mar 2021 13:52:11 -0400
Subject: [PATCH 37/77] Create covid-19-data-innovation.md
---
_pages/resources/covid-19-data-innovation.md | 11 +++++++++++
1 file changed, 11 insertions(+)
create mode 100644 _pages/resources/covid-19-data-innovation.md
diff --git a/_pages/resources/covid-19-data-innovation.md b/_pages/resources/covid-19-data-innovation.md
new file mode 100644
index 0000000..20a53ec
--- /dev/null
+++ b/_pages/resources/covid-19-data-innovation.md
@@ -0,0 +1,11 @@
+---
+title: COVID-19 Data-Driven Innovation
+layout: page
+sidenav: true
+anchors:
+ - name: COVID-19 TOPx Sprint
+ - name: COVID-19 Diagnostics Design-a-thon
+ - name: COVID-19 Open Data Roundtables
+---
+
+# COVID-19 Data-Driven Innovation
From 495c7ce0cbd88bac8ef9242384363e00824918ce Mon Sep 17 00:00:00 2001
From: Cyrus Sethna <36174598+cygov@users.noreply.github.com>
Date: Wed, 17 Mar 2021 13:53:37 -0400
Subject: [PATCH 38/77] Update covid-19-data-innovation.md
---
_pages/resources/covid-19-data-innovation.md | 3 +++
1 file changed, 3 insertions(+)
diff --git a/_pages/resources/covid-19-data-innovation.md b/_pages/resources/covid-19-data-innovation.md
index 20a53ec..99cf4fd 100644
--- a/_pages/resources/covid-19-data-innovation.md
+++ b/_pages/resources/covid-19-data-innovation.md
@@ -9,3 +9,6 @@ anchors:
---
# COVID-19 Data-Driven Innovation
+Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance.
+
+COVID-19 data-driven innovation uses novel methods and collaboration to accelerate scientific and public health insights to ultimately shorten the time it takes for COVID-19 information and solutions to save lives. This HHS initiative is co-led by the [Office of the Assistant Secretary for Health](https://www.hhs.gov/ash/index.html) and the Office of the Chief Data Officer. Collaboratively, we are creating crosscutting impact and real-world value from a data-driven ecosystem during one of the most challenging public health crises of our lifetimes. By opening COVID-19 datasets on [HealthData.gov](https://healthdata.gov/) and applying proven innovation methods like [Health+ (“health plus”)](https://www.hhs.gov/cto/initiatives/digital-services/health-plus/index.html), our COVID-19 innovation success will be measured by patient outcomes, social equity, economic recovery, and how HHS improves the lives of all Americans touched by the novel coronavirus.
From 8184706e8cdcb8f9fdd97d3fbf0fd2d624af21a2 Mon Sep 17 00:00:00 2001
From: Cyrus Sethna <36174598+cygov@users.noreply.github.com>
Date: Wed, 17 Mar 2021 13:54:01 -0400
Subject: [PATCH 39/77] Update covid-19-data-innovation.md
---
_pages/resources/covid-19-data-innovation.md | 1 +
1 file changed, 1 insertion(+)
diff --git a/_pages/resources/covid-19-data-innovation.md b/_pages/resources/covid-19-data-innovation.md
index 99cf4fd..028b0cc 100644
--- a/_pages/resources/covid-19-data-innovation.md
+++ b/_pages/resources/covid-19-data-innovation.md
@@ -9,6 +9,7 @@ anchors:
---
# COVID-19 Data-Driven Innovation
+
Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance.
COVID-19 data-driven innovation uses novel methods and collaboration to accelerate scientific and public health insights to ultimately shorten the time it takes for COVID-19 information and solutions to save lives. This HHS initiative is co-led by the [Office of the Assistant Secretary for Health](https://www.hhs.gov/ash/index.html) and the Office of the Chief Data Officer. Collaboratively, we are creating crosscutting impact and real-world value from a data-driven ecosystem during one of the most challenging public health crises of our lifetimes. By opening COVID-19 datasets on [HealthData.gov](https://healthdata.gov/) and applying proven innovation methods like [Health+ (“health plus”)](https://www.hhs.gov/cto/initiatives/digital-services/health-plus/index.html), our COVID-19 innovation success will be measured by patient outcomes, social equity, economic recovery, and how HHS improves the lives of all Americans touched by the novel coronavirus.
From 2c4aadb80e5a8d751de245f4d7e7b069f79f51ac Mon Sep 17 00:00:00 2001
From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com>
Date: Thu, 1 Apr 2021 07:58:09 -0400
Subject: [PATCH 40/77] Update covid-19-data-innovation.md
---
_pages/resources/covid-19-data-innovation.md | 133 +++++++++++++++++++
1 file changed, 133 insertions(+)
diff --git a/_pages/resources/covid-19-data-innovation.md b/_pages/resources/covid-19-data-innovation.md
index 028b0cc..509fbe3 100644
--- a/_pages/resources/covid-19-data-innovation.md
+++ b/_pages/resources/covid-19-data-innovation.md
@@ -13,3 +13,136 @@ anchors:
Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance.
COVID-19 data-driven innovation uses novel methods and collaboration to accelerate scientific and public health insights to ultimately shorten the time it takes for COVID-19 information and solutions to save lives. This HHS initiative is co-led by the [Office of the Assistant Secretary for Health](https://www.hhs.gov/ash/index.html) and the Office of the Chief Data Officer. Collaboratively, we are creating crosscutting impact and real-world value from a data-driven ecosystem during one of the most challenging public health crises of our lifetimes. By opening COVID-19 datasets on [HealthData.gov](https://healthdata.gov/) and applying proven innovation methods like [Health+ (“health plus”)](https://www.hhs.gov/cto/initiatives/digital-services/health-plus/index.html), our COVID-19 innovation success will be measured by patient outcomes, social equity, economic recovery, and how HHS improves the lives of all Americans touched by the novel coronavirus.
+
+COVID-19 is a multi-faceted challenge and we are employing numerous innovative practices to address the crisis. Over [200 COVID-19 datasets](https://healthdata.gov/search/og_group_ref/286/type/dataset?query=covid-19&sort_by=changed&sort_order=DESC) on HealthData.gov serve as the fuel for much of our HHS innovation, including the:
+
+1. COVID-19 At-Anywhere Diagnostics “Design-a thon” - A virtual innovation sprint with 750 problem solvers who produced over 30 capstone projects and [16 winning Design-a-thon teams](https://www.hhs.gov/about/news/2020/12/16/winners-of-hhs-design-a-thon-to-develop-innovative-digital-health-tools-for-covid-19.html) to capture COVID-19 diagnostic data and report key elements to inform a data-driven pandemic response.
+
+2. COVID-19 TOPx Technology Sprint – A fast-paced, two-month build cycle using the “TOPx Toolkit” created by the U.S. Census Bureau with 14 industry-led teams to further develop COVID-19 diagnostic reporting tools and accelerate the public use of these tools, making it easier for individuals and organizations to safely report positive/negative test results.
+
+3. COVID-19 Open Data Roundtables – Hands on, structured workshops that improve accessibility and data sharing for public health and the public good, bringing together community, state and federal government leaders, the private sector, non-profits, research, and academia.
+
+These innovation methods succeed because of participation from diverse stakeholders across multiple sectors: industry, academia, non-profit organizations, all levels of government, and individual entrepreneurs and problem solvers. Together, through COVID-19 data-driven innovation, we are saving and improving American lives. Please join our solver community by creating a profile on our open-innovation, crowdsourcing platform: [waters.crowdicity.com](https://waters.crowdicity.com/).
+
+### Blog Posts and Ways to Learn More
+
+- [COVID-19 TOPx Tech Sprint Begins with Design-a-thon Teams — Join us! –](https://healthdata.gov/blog/covid-19-topx-tech-sprint-begins-design-thon-teams-%E2%80%94-join-us) Blog to launch the “COVID-19 TOPx” technology sprint to continue momentum and further develop digital health tools to capture, harmonize, and securely transmit key data elements from at-anywhere COVID-19 diagnostic tests.
+- [COVID-19 Open Data – Our Data is Your Data –](https://healthdata.gov/blog/covid-19-open-data-%E2%80%93-our-data-your-data) Blog to announce the publication of the Community Profile Report on the HHS website.
+- [COVID-19 is Complex, as is COVID-19 Open Data –](https://healthdata.gov/hhs-publishes-covid-19-hospital-facility-level-data) Blog to announce that HHS began publishing COVID-19 hospital data at the facility level for each week, going back to August 1st 2020.
+- [Waters.Crowdicity.com –](https://waters.crowdicity.com/) an open-innovation crowdsourcing platform for sharing data-driven innovations to combat COVID-19
+
+## COVID-19 TOPx Sprint
+
+Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance.
+
+The COVID-19 pandemic has rapidly changed the way we live. Data and data standards are essential for an effective U.S. response, but only if data are used and standards are widely adopted by all sectors. With COVID-19 TOPx, HHS is collaborating with industry-led teams to transform HHS open data and data standards into digital tools with practical real-world applications.
+
+### What is The Opportunity Project (TOP)?
+
+- [The Opportunity Project](https://opportunity.census.gov/) is a collaboration process developed by the White House in 2016 to speed up innovation fueled by government open data. Since then, the U.S. Census Bureau has scaled the program to different government agencies, working with thousands of participants to create over 100 digital products. TOP is a proven innovation model, typically a 12- to 14-week technology sprint with industry, which government can leverage alongside open data to catalyze new technologies.
+- Iterate with user-centered, agile build cycles.
+- Launch a new digital tool (or build new functionality for an existing tool).
+
+Each year, the U.S. Census Bureau hosts the annual [TOP Demo Day](https://opportunity.census.gov/our-process/) to showcase digital tools developed through TOP sprints. At Demo Day, the press, data enthusiasts, technologists, government leaders, and others gather to celebrate the launch of products built that year.
+
+### What is a TOPx Sprint?
+
+In late 2020, the U.S. Census Bureau published its [TOPx Toolkit](https://opportunity.census.gov/topx-toolkit/introduction/) with how-to instructions for agencies to run their own TOP-like sprints, called “TOPx” sprints. They bring together technologists, government, and communities to rapidly prototype digital products—powered by [U.S. open data](https://www.data.gov/)—that solve real-world problems. The TOPx model gives federal agencies a framework for collaborating with industry and non-government organizations using government open data to:
+
+- Address mission-critical priorities with data and technology innovation
+- Recruit cross-sector participants and strengthen collaborative networks
+- Facilitate a virtual technology development sprint on a flexible and modifiable timeline
+- Showcase outcomes and new digital tools at TOP or TOPx Demo Days
+
+### HHS InnovationX Pioneers the First-Ever COVID-19 TOPx Sprint
+
+Innovation necessitates trying new things, and the InnovationX team has introduced HHS to TOP and TOPx sprints. The first-ever HHS TOPx sprint, launched in January 2021, focused on COVID-19. Fourteen industry-led teams participated in this COVID-19 TOPx sprint with the goal to develop digital health tools to capture, harmonize, and securely transmit key data elements from at-anywhere COVID-19 diagnostic tests. Participating TOPx teams won the [COVID-19 At-Anywhere Diagnostics Design-a-thon](https://www.hhs.gov/coronavirus/covid-19-at-anywhere-diagnostics-design-a-thon/index.html) (innovation sprint) with HHS in late 2020.
+
+This first [COVID-19 TOPx sprint](https://waters.crowdicity.com/) used a condensed 8-week build cycle, compared to the usual 12- to 14-week TOP length. This abbreviated timeline reflects the urgency of today’s COVID-19 pandemic — people need COVID-19 solutions now.
+
+The COVID-19 TOPx sprint occurred in the open with all meetings and demos open to the public through waters.crowdicity.com, a crowdsourcing platform for interactive ideas exchange. This made the COVID-19 TOPx process visible, transparent, and accessible to all.
+
+During the TOPx sprint, HHS policy experts and data stewards provide feedback to the participating teams led by industry, academia, and non-government organizations. As with TOP sprints, all TOPx sprints must use government open data and agile methods to ship tangible, real-world digital tools by the end of the collaboration. Below is a typical process and timeline:
+
+- Develop TOPx problem statement(s) and identify relevant open datasets
+- Recruit sprint participants
+- Facilitate an 8- to 14-week technology development sprint
+ - Organize and facilitate milestone calls (User Research, Data Discovery, Alpha Demo, Beta Demo, Final Demo)
+ - Provide insight related to the agency’s policy and operational areas
+ - Answer questions about finding and using the agency’s public data
+ - Provide feedback on the products being developed
+- Host an (optional) in-person event during which products are launched and showcased
+- Participate in the annual TOP Demo Day, hosted by the U.S. Census Bureau.
+
+The InnovationX team is currently developing the HHS TOPx Toolkit, including HHS case studies and how-to methods using [HealthData.gov](https://healthdata.gov/). This will provide innovation support and an HHS-specific playbook for the 80,000+ HHS employees across 11 Operating Divisions and over 15 Staff Divisions that may wish to use TOP or TOPx methods to advance their priorities and mission.
+
+### Blog Posts and Ways to Learn More
+
+- [COVID-19 TOPx Tech Sprint Begins with Design-a-thon Teams — Join us! –](https://healthdata.gov/blog/covid-19-topx-tech-sprint-begins-design-thon-teams-%E2%80%94-join-us) Blog to launch the “COVID-19 TOPx” technology sprint to continue momentum and further develop digital health tools to capture, harmonize, and securely transmit key data elements from at-anywhere COVID-19 diagnostic tests.
+
+- [Waters.Crowdicity.com –](https://waters.crowdicity.com/) an open-innovation crowdsourcing platform for sharing data-driven innovations to combat COVID-19
+
+## COVID-19 Diagnostics Design-a-thon
+
+Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance.
+
+We brought together innovative private-sector tech teams and data-driven public sector leaders to address one of our most difficult problems using federal open data standards — diagnosing COVID-19 infections.
+
+### What is a Design-a-thon?
+
+A public-facing, open-innovation sprint that connects industry with the U.S. government. Teams work quickly to design software that can be scaled to address a public health need.
+
+The [COVID-19 At-Anywhere Diagnostics Design-a-thon](https://www.hhs.gov/about/news/2020/12/16/winners-of-hhs-design-a-thon-to-develop-innovative-digital-health-tools-for-covid-19.html) issued a call-to-action for American industry and the public to unleash the power of open innovation to develop digital solutions for COVID-19 data capture, harmonization, and reporting from diagnostic tests. HHS crowdsourced ideas from teams that proposed solutions through the [Waters.Crowdicity.com –](https://waters.crowdicity.com/) platform. This [“open innovation”](https://www.hhs.gov/cto/initiatives/open-innovation/about/index.html) platform enabled Design-a-thon teams to form, exchange ideas, and submit “Capstone Projects” built with HHS open data, open source code, and open science.
+
+### What are outcomes of the COVID-19 At-Anywhere Diagnostics Design-a-thon?
+
+The Design-a-thon brought together software developers, designers, and engineers with in vitro diagnostic device developers and COVID-19 subject matter experts to build software and digital tools that are directly integrated with COVID-19 tests. Over 750 problem solvers and innovators participated. Collectively, participants formed Design-a-thon teams and submitted over 30 “Capstone Projects” with capabilities to alleviate data collection and reporting burdens for patients, providers, anyone administering/using tests, or labs through which data is routed. These digital capabilities included automated and semi-automated digital tools for reporting COVID-19 results from at-home, non-prescription, and over-the-counter tests on the market now. Judges invited 16 winners to participate in the TOPx tech sprint.
+
+### What is WATERS?
+
+During the Design-a-thon, HHS built and launched a “Wireless Automated Transmission for Electronic Reporting Systems” or WATERS to ingest data feeds from many COVID-19 apps and digital tools, including those built by TOPx teams. WATERS provides digital infrastructure for government to securely receive, harmonize, and transmit data from diagnostic device apps, Laboratory Information Management Systems and other entities sending COVID-19 diagnostic data.
+
+A key function of WATERS is “optionality” – the ability to support disparate, complex systems to accommodate current and changing needs. We are ensuring that hospitals, nursing homes, and other healthcare providers have the options to use apps that suit their specific needs and reporting requirements. Such optionality will alleviate data collection and reporting burdens for patients, providers, anyone administering/using tests, labs through which data is routed, since the users can continue using their preferred app(s) and tool(s) for WATERS to ingest.
+Visit [Waters.Crowdicity.com –](https://waters.crowdicity.com/) to learn more about the COVID-19 At-Anywhere Design-a-thon along with upcoming events.
+
+### Blog Posts and Ways to Learn More
+[Waters.Crowdicity.com –](https://waters.crowdicity.com/) an open-innovation crowdsourcing platform for sharing data-driven innovations to combat COVID-19
+
+## COVID-19 Open Data Roundtables
+
+Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance.
+
+Open Data Roundtables are unique convenings that bring together data providers and their data users to help identify high-value datasets, find action-oriented solutions to data problems, catalyze research on emerging data issues, and establish new collaborations. They connect experts from government, nonprofits and NGOs, academia, and the private sector who may never have met before but who share common goals and interests.
+
+### What is the history of Open Data Roundtables?
+
+Open Data Roundtables held by the White House and numerous federal agencies have focused on topics including medical research and health care, transportation, energy and the environment, and the federal data strategy. A Roundtable can cover the use of an individual agency’s data, cross-cutting topics and issues that involve multiple agencies, or federal data policy across the government. Open Data Roundtables often involve participants from state and local governments to address how their data programs can best work together with federal programs.
+
+Since 2018, HHS has held seven Open Data Roundtables on a wide range of topics. The HHS Office of the CTO co-hosted these Roundtables with the nonprofit Center for Open Data Enterprise (CODE), which developed the methodology for working with federal agencies to hold these events.
+
+### When is the next Open Data Roundtable?
+
+HHS is now exploring a potential COVID-19 Open Data Roundtable as well as other efforts to engage stakeholders in addressing the pandemic. More information will be made available on this webpage.
+
+Previous HHS Roundtables include:
+
+- [Roundtable on Data Sharing Policies, Data-Driven Solutions, and the Opioid Crisis](http://reports.opendataenterprise.org/HHS-Opioid-Roundtable-Report.pdf)
+July 2018
+
+- [Lyme Innovation Roundtable](http://reports.opendataenterprise.org/Lyme%20Innovation%20Roundtable%20Report.pdf)
+December 2018
+
+- [Roundtable on Sharing and Utilizing Health Data for AI Applications](https://healthdatasharing.org/wp-content/uploads/2020/07/RT1-AI-Summary-Report-FINAL-2020.07.28.pdf)
+April 2019
+
+- [Roundtable on Balancing Privacy with Health Data Access](https://healthdatasharing.org/wp-content/uploads/2020/07/RT2-Privacy-Summary-Report-FINAL-2020.07.28.pdf)
+July 2019
+
+- [Roundtable on Leveraging Data on the Social Determinants of Health](https://healthdatasharing.org/wp-content/uploads/2020/07/RT3-SDOH-Summary-Report-FINAL-2020.07.28.pdf)
+October 2019
+
+- [Roundtable on Leveraging Data to Address Sickle Cell Disease](http://reports.opendataenterprise.org/SCD-Report-FINAL.pdf)
+June 2020
+
+- [Roundtable on Using SDOH Data to Fight COVID-19 and Support Recovery Efforts](https://healthdatasharing.org/wp-content/uploads/2020/12/COVID-SDOH-Summary-Report-Final.pdf)
+August 2020
From 8123be03acaae9660af6e33d65738d81a639c901 Mon Sep 17 00:00:00 2001
From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com>
Date: Thu, 1 Apr 2021 07:58:32 -0400
Subject: [PATCH 41/77] Update covid-19-data-driven-innovation.md
---
_pages/resources/covid-19-data-driven-innovation.md | 2 +-
1 file changed, 1 insertion(+), 1 deletion(-)
diff --git a/_pages/resources/covid-19-data-driven-innovation.md b/_pages/resources/covid-19-data-driven-innovation.md
index fbbeb1e..cdec7a6 100644
--- a/_pages/resources/covid-19-data-driven-innovation.md
+++ b/_pages/resources/covid-19-data-driven-innovation.md
@@ -130,7 +130,7 @@ Previous HHS Roundtables include:
- [Roundtable on Data Sharing Policies, Data-Driven Solutions, and the Opioid Crisis](http://reports.opendataenterprise.org/HHS-Opioid-Roundtable-Report.pdf)
July 2018
-- [Lyme Innovation Roundtable](http://reports.opendataenterprise.org/Lyme Innovation Roundtable Report.pdf)
+- [Lyme Innovation Roundtable](http://reports.opendataenterprise.org/Lyme%20Innovation%20Roundtable%20Report.pdf)
December 2018
- [Roundtable on Sharing and Utilizing Health Data for AI Applications](https://healthdatasharing.org/wp-content/uploads/2020/07/RT1-AI-Summary-Report-FINAL-2020.07.28.pdf)
From e8c0cb94b2773b58429fe43cc6873b2c7b63608a Mon Sep 17 00:00:00 2001
From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com>
Date: Thu, 1 Apr 2021 13:17:03 -0400
Subject: [PATCH 42/77] Create lyme-innovation2
---
_pages/resources/lyme-innovation2 | 24 ++++++++++++++++++++++++
1 file changed, 24 insertions(+)
create mode 100644 _pages/resources/lyme-innovation2
diff --git a/_pages/resources/lyme-innovation2 b/_pages/resources/lyme-innovation2
new file mode 100644
index 0000000..5971104
--- /dev/null
+++ b/_pages/resources/lyme-innovation2
@@ -0,0 +1,24 @@
+---
+title: Lyme Innovation
+layout: page
+sidenav: true
+anchors:
+ - name: Purpose
+ - name: Lyme Innovation: Real-World Impact
+ - name: LymeX
+---
+
+# Lyme Innovation
+
+The HHS Lyme Innovation initiative is a patient-centered, data-driven approach to the serious threat of Lyme disease and other tick-borne illnesses. A recently released estimate based on insurance records suggests that each year approximately [476,000 Americans are diagnosed and treated for Lyme disease](https://www.cdc.gov/lyme/stats/humancases.html). The geographic habitat range of ticks that can transmit pathogens and cause Lyme disease has also [expanded within the United States](https://www.cdc.gov/ncezid/dvbd/pdf/Brochure_National_Framework_VBDs-P.pdf). So is the geographic spread of the disease, which accounts for more than 70% of all vector-borne illnesses in our country. Lyme and other tick-borne conditions cost the U.S. economy billions of dollars annually.
+
+## Purpose
+
+HHS's Lyme Innovation initiative sees patients as more than the targets for new prevention, diagnostic, and treatment tools and techniques to address Lyme disease and other tick-borne illnesses. Patients are the driving forces of innovation, and their lived experience is our roadmap.
+
+Lyme Innovation uses strategic public-private partnerships to accelerate patient-centered advancements in how we address Lyme and other tick-borne diseases. By supporting interdisciplinary collaborations that reflect the initiative's core values, Lyme Innovation will:
+
+- Build commitment to data-driven, patient-centered innovations that improve outcomes.
+- Identify ways to better collect and share data while raising awareness of tick-borne illnesses.
+- Accelerate discovery of next-gen diagnostic tools and technologies.
+- Lower barriers across all phases of development, testing, and implementation.
From 0747d5974a1644a7c9f361a8d4f1641f65c70a9e Mon Sep 17 00:00:00 2001
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Date: Thu, 1 Apr 2021 13:21:30 -0400
Subject: [PATCH 43/77] Rename lyme-innovation2 to lyme-innovation2.md
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From d3243a9188668d238ced49ec536ab1e440ccee2f Mon Sep 17 00:00:00 2001
From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com>
Date: Thu, 1 Apr 2021 13:22:52 -0400
Subject: [PATCH 44/77] Update _config.yml
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--- a/_config.yml
+++ b/_config.yml
@@ -81,7 +81,7 @@ primary_navigation:
- name: COVID-19 Data-Driven Innovation
url: /resources/covid-19-data-innovation/
- name: Lyme Innovation
- url: /resources/lyme-innovation/
+ url: /resources/lyme-innovation2/
- name: KidneyX
url: /resources/kidneyx/
- name: Health+
From 4006c0e287bc8a1f56d9081f460d4a24a668a4bf Mon Sep 17 00:00:00 2001
From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com>
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PEOPLE FIRSTScience-Driven +
PEOPLE FIRSTPurpose Always
-Harnessing human-centered design, data-driven technologies, and open innovation to transform patient outcomes, improving the lives of all Americans.
+Catalyzing healthy futures for all through science-driven innovation
Learn More-Use Data Ethically
+Empower People with "Yes, And!"
Ethical use of data at original collection and future reuse demonstrates institutional integrity and endears trust in the @@ -23,7 +23,7 @@
Use Data Ethically
{% asset CV-Open.svg class="usa-media-block__img ocdo-about-icon" alt="Open/globe icon" %}-Work in the Open
+Apply Knowledge to Get Results
We are transparent about what we collect, why we collect it, how we collect it, and what we do with it. We request feedback from the @@ -38,7 +38,7 @@
Work in the Open
{% asset CV-Quality.svg class="usa-media-block__img ocdo-about-icon" alt="Quality/science icon" %}-+ From 71aed4f419caa170b522be9a9f6da0ccebad02e8 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Mon, 28 Jun 2021 10:51:01 -0400 Subject: [PATCH 51/77] Create lymeinnovation.md --- _pages/resources/lymeinnovation.md | 201 +++++++++++++++++++++++++++++ 1 file changed, 201 insertions(+) create mode 100644 _pages/resources/lymeinnovation.md diff --git a/_pages/resources/lymeinnovation.md b/_pages/resources/lymeinnovation.md new file mode 100644 index 0000000..d16db93 --- /dev/null +++ b/_pages/resources/lymeinnovation.md @@ -0,0 +1,201 @@ +--- +title: Lyme Innovation +layout: page +sidenav: true +anchors: + - name: Purpose + - name: Lyme Innovation: Real-World Impact + - name: LymeX +--- + +# Lyme Innovation + +The HHS Lyme Innovation initiative is a patient-centered, data-driven approach to the serious threat of Lyme disease and other tick-borne illnesses. A recently released estimate based on insurance records suggests that each year approximately [476,000 Americans are diagnosed and treated for Lyme disease](https://www.cdc.gov/lyme/stats/humancases.html). The geographic habitat range of ticks that can transmit pathogens and cause Lyme disease has also [expanded within the United States](https://www.cdc.gov/ncezid/dvbd/pdf/Brochure_National_Framework_VBDs-P.pdf). So is the geographic spread of the disease, which accounts for more than 70% of all vector-borne illnesses in our country. Lyme and other tick-borne conditions cost the U.S. economy billions of dollars annually. + +## Purpose + +HHS's Lyme Innovation initiative sees patients as more than the targets for new prevention, diagnostic, and treatment tools and techniques to address Lyme disease and other tick-borne illnesses. Patients are the driving forces of innovation, and their lived experience is our roadmap. + +Lyme Innovation uses strategic public-private partnerships to accelerate patient-centered advancements in how we address Lyme and other tick-borne diseases. By supporting interdisciplinary collaborations that reflect the initiative's core values, Lyme Innovation will: + +- Build commitment to data-driven, patient-centered innovations that improve outcomes. +- Identify ways to better collect and share data while raising awareness of tick-borne illnesses. +- Accelerate discovery of next-gen diagnostic tools and technologies. +- Lower barriers across all phases of development, testing, and implementation. + +### Core Values + +- RESPECT: Everyone is valued. +- INNOVATION: Shifting paradigms. Finding a better way. +- HONESTY/INTEGRITY: Find the truth. Tell the truth. +- EXCELLENCE: Quality, real-world evidence underlies decision-making. +- COMPASSION: Finding solutions to relieve suffering. +- COLLABORATION: Citizens and patients are equal partners. +- ACCOUNTABILITY: Taking responsibility. + +### Our Approach + +- Create a sense of urgency. +- Attract new leaders to the field. +- Leverage resources from all sectors. +- Attract and unlock external funding and private capital. +- Increase collaboration and stakeholder engagement. +- Improve the customer experience. +- De-risk and expedite commercialization. + +### Goals + +Engage Stakeholders to Facilitate Patient-Centered Innovations + +- Build trust among stakeholders through listening sessions, roundtables, and other learning approaches that ground innovations in lived experience +- Engage stakeholders in identifying current areas of need to promote targeted innovations that will make real-world improvements in quality of care +- Gain insights into patient needs and priorities through stakeholders' collective wisdom, and apply that wisdom in shaping future innovation challenges and events + +Advance Education and Awareness + +- Crowdsource innovative ideas for raising awareness about risks and prevention +- Amplify and improve access to essential information supporting innovations in prevention, education, and care with open data/science +- Foster the development of new, community-based education and prevention efforts through prize challenges and calls to action + +Foster Breakthroughs in Next-Gen Diagnostics + +- Promote innovation through a series of prize challenges that encourage application of cutting-edge technology and user-centered design to advance diagnostic tests and tools +- Increase accuracy of diagnostics at all stages of Lyme disease by accelerating delivery of actionable information to healthcare providers, entrepreneurs, and patients +- Incentivize and reduce risk for development to get new, more accurate diagnostics from lab to market + +### Ways to Get Involved + +Join us in driving the Lyme Innovation initiative forward! We invite you to join the [LymeX Crowdicity community](https://lymex.crowdicity.com/) to engage with others and help deliver transformative innovation to Lyme disease. + +### Blog Posts and Ways to Learn More + +For up-to-date information, statistics, and guidance on Lyme disease and related illnesses, visit the Centers for Disease Control and Prevention's Lyme Disease website. You can also check out these HHS blog posts and materials: + +- [The Lyme Innovation "TOP Health" Teams in 2020](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2020/01/22/lyme-innovation-top-health-teams-2020.html) (January 22, 2020) +- [The Power of Lyme Innovation: One Year of Progress](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/10/21/the-power-of-lyme-innovation-one-year-of-progress.html) (October 21, 2019) +- [Lyme Innovation Roundtable Summary Report - PDF](http://reports.opendataenterprise.org/Lyme%20Innovation%20Roundtable%20Report.pdf) (May 2019) +- [Lyme Innovation Roundtable Highlights and Next Steps](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/04/15/lyme-innovation-roundtable-highlights-and-next-steps.html) (April 15, 2019) +- [Deep Dive on "TOP Health": Data + Technology + Innovation for Lyme disease](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/03/19/deep-dive-top-health-data-technology-innovation-lyme.html) (March 19, 2019) +- ["TOP Health" Tech Sprint Unleashes the Power of Open Data and AI](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/1/17/top-health-tech-sprint-unleashes-the-power-of-open-data-and-ai.html) (January 17, 2019) +- [Lyme Innovation Roundtable](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) (December 19, 2018) +- [The HHS Office of the CTO Announces a "Lyme Innovation" Initiative](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/11/20/the-hhs-office-of-the-cto-announces-a-lyme-innovation-initiative.html) (November 20, 2018) + +## Lyme Innovation: Real-World Impact + +This page documents Lyme Innovation's success story as it continues to unfold. Read on to see how our activities are making a positive real-world impact on Lyme disease and other tick-borne illnesses. Check back often for links to reports, apps, games, blog posts, videos, guides, and other material related to Lyme Innovation's ongoing work. + +### [Early Momentum (2015-2018)](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) + +Technology efforts to address the multifaceted aspects of Lyme disease began to pick up steam in 2015, when patients, entrepreneurs, non-profit leaders, and academics organized a series of Lyme Innovation hackathons and events. These bottom-up efforts created new momentum while welcoming all stakeholders Patients and practitioners worked side-by-side to accelerate innovation in Lyme disease diagnostics, treatment, and information sharing across top-tier universities using open data, open science, open innovation, and open source code. + +Meanwhile, within federal government, the 21st Century Cures Act authorized HHS to establish a [Tick-Borne Disease Working Group](https://www.hhs.gov/ash/advisory-committees/tickbornedisease/index.html) in 2017 (TBDWG). For the first time, the TBDWG brought together federal and public members to review government efforts and scientific research in order to make shared recommendations on how to advance the field. The TBDWG produced its [first report with 28 recommendations to the U.S. Congress and HHS Secretary in 2018. - PDF](https://www.hhs.gov/sites/default/files/tbdwg-report-to-congress-2018.pdf) + +"I want you to know that we, at HHS, hear you. We, at HHS, are listening to your input. We, at HHS, are responding and making Lyme and other tick-borne diseases a priority."— HHS Deputy Secretary Eric Hargan + +In response to the 2018 TBDWG report, HHS launched its Lyme Innovation initiative to help connect the bottom-up community needs and momentum with top-down, federal priorities and resources. Transformative change happens when the bottom-up and top-down meet, as this ensures that federal efforts address real-world needs that matter to Americans and their communities. HHS Lyme Innovation became a confluence for all sectors and stakeholders to come together; it became a tool for participating in, boosting, and supporting patient-centered, data-driven approaches to Lyme disease. The HHS Lyme Innovation initiative augments and amplifies the early momentum of community-based innovation efforts by leveraging federal resources and reach—while seeing patients and citizens as driving forces of practical innovation. + +### [Lyme Innovation Roundtable (December 2018)](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) + +The first-ever [Lyme Innovation Roundtable](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) at HHS convened leaders and experts in government, industry, academia, research, patient advocacy, nonprofits, and philanthropy to harness the power of collaboration, data-driven innovation, and new technologies in addressing tick-borne diseases. Hosted by HHS with external groups across sectors, the event facilitated information-sharing and feedback from stakeholders including patients, advocates, providers, clinicians, researchers, and policy makers. Following the Roundtable, HHS published a [summary report](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/04/15/lyme-innovation-roundtable-highlights-and-next-steps.html) with actionable recommendations for the Lyme disease community. + +### [The Opportunity Project (TOP) Health Tech Sprint (October 2018–January 2019)](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/1/17/top-health-tech-sprint-unleashes-the-power-of-open-data-and-ai.html) + +The [TOP Health tech sprint](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/1/17/top-health-tech-sprint-unleashes-the-power-of-open-data-and-ai.html) gave participants 14 weeks to tackle health-related challenges by applying curated federal data sets and emerging technologies. This sprint pilot showcased how industry teams and innovators of all ages can create new digital tools and real-world value from federal open data. TOP Health Challenge #2 asked, "How can we address Lyme and other tick-borne diseases through emerging technologies by coupling the power of the crowd and patient insights with data?" Teams created digital tools and information-sharing supports for data-driven public health decisions and improvements related to tick-borne disease. The sprint resulted in these tangible innovations: + +[CURA Patient for Lyme Disease (formerly Clyme Health app)](https://curapatient.com/) Artificial intelligence (AI) ecosystem for managing symptoms, customizing treatment plans, and helping patients follow individualized protocols (won the TOP Prize Challenge). +- Using both natural language processing (NLP) and AI-vision technology, CURA Patient helps doctors and patients identify and document symptoms. Its AI-driven virtual assistant helps doctors customize treatment protocols and patients follow their unique treatment plans for complex chronic conditions like Lyme disease. CURA Patient is being piloted at the U.S. Department of Veterans Affairs. + +[Lyme Symptom Tracker app (free)](https://globallymealliance.org/press-releases/global-lyme-alliance-trialx-appbakery-introduced-lyme-symptom-tracker-mobile-app-white-house/) Helps patients track symptoms, securely share with care providers, and find clinical studies. +- Developed by Global Lyme Alliance and TrialX during the HHS TOP Health tech sprint, the app uses patient-centric data in several ways to help with Lyme Disease. It helps patients easily track their daily symptoms and securely share with their healthcare provider. In addition, it uses data platforms to help connect users with relevant and nearby clinical studies. The data collected provides valuable insight into disease trends and statistics. (Available for Android and Apple devices) + +[TickTickBOOM!](https://livlymefoundation.org/education/) Learning game to protect against ticks made by and for middle schoolers. +- The full TickTickBOOM! video game is in development and on track for free, public release in app stores in late 2020. + +[TickTracker app](https://ticktracker.com/) Real-time geolocation tool showing tick distribution to reduce tick exposure. +- Currently, the TickTracker app is available in app stores for free for download. Under development is a version of the app that incorporates first-of-its-kind tick-recognition AI; it is expected to go public with beta testing in late 2020. + +### AI and Open Data: Lyme Innovation at the White House and TOP Demo Day (March 2019) + +TOP Health tech sprint teams [presented outcomes](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/03/19/deep-dive-top-health-data-technology-innovation-lyme.html) at the White House Eisenhower Executive Office at the "Artificial Intelligence and Open Data Innovation for Health" event. The next day, they presented their digital tools on the main stage of TOP Demo Day 2019 at the U.S. Census Bureau. + +### Lyme Innovation at Department of Labor Tech Day (May 2019) + +In partnership with the White House's Office of Science and Technology Policy and Chief Information Officer Council, the Department of Labor hosted its second annual Tech Day in May 2019 with the theme "Unleashing the Digital Workforce," aimed toward understanding how technology can help the federal government do mission-critical work. [Presentations highlighted Lyme Innovation's](https://www.dol.gov/agencies/oasam/centers-offices/ocio/tech-day) leveraging of new technologies, such as use of artificial intelligence in tracking patient symptoms; predictive analytics in forecasting and preparing for outbreaks; and crowdsourcing for timely, effective tick tracking. + +### Lyme Innovation with the Civic Digital Fellows (Summer 2019) + +HHS hosted a cohort of Civic Digital Fellows who worked on projects using data, user experience, emerging technologies, and innovation. The cohort, part of 55 fellows participating in the competitive fellowship program, [contributed to a range of HHS projects, including Lyme Innovation](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/08/08/above-and-beyond-summer-with-the-hhs-civic-digital-fellows.html). At Demo Day in August, cohort members demonstrated how their projects could help improve government through technology, innovation, and design thinking. One project used natural language processing to evaluate written public comments submitted to the TBDWG; another helped develop an acute Lyme disease use-case for the "All Hazards" clinical decision-support software. + +"Lyme is a frustrating and debilitating disease, but it's a problem we can solve." +- Anonymous Lyme patient advocate + +### Lyme Innovation on Capitol Hill (February 2020) and Beyond + +Lyme Innovation is garnering increasingly widespread recognition for fostering cutting-edge solutions and increasing positive outcomes. In February 2020, non-profit organizations honored members of Congress and HHS staff for their strong support of efforts to address Lyme and other tick-borne diseases. Lyme Innovation took center stage, with several of the initiative's leaders receiving awards for outstanding efforts in advancing tools, technologies, and information-sharing resources relevant to these illnesses. + +To accelerate [progress](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/10/21/the-power-of-lyme-innovation-one-year-of-progress.html) and strategically advance tick-borne-disease solutions for Lyme in 2020, HHS and the Steven & Alexandra Cohen Foundation partnered to launch the LymeX Innovation Accelerator (LymeX). This LymeX partnership is designed to supercharge our collective impact. HHS also increased its funding for Lyme and tick-borne diseases, and Lyme Innovation will continue to carry forward the momentum of The Kay Hagan Tick Act (part of the fiscal year 2020 Appropriations Bill) with a focus on collaborative, patient-centered innovation. + +Check back often for updates on how this initiative is making a real-world impact against tick-borne illnesses. + +### Blog Posts and Ways to Learn More + +For the most up-to-date information, statistics, and guidance on Lyme disease and related illnesses, see the Centers for Disease Control and Prevention's [Lyme disease website](https://www.cdc.gov/lyme/index.html). + +These HHS blog posts offer additional information related to the LymeX partnership, which is one part of the broader Lyme Innovation initiative: + +- [Introducing Health+: An Iterative Collaboration Tackling High-Impact Health Issues](https://medium.com/andpartners/health-plus-gov-healthcare-3cf3ef9b992a) (June 17, 2020) +- [The Lyme Innovation "TOP Health" Teams in 2020](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2020/01/22/lyme-innovation-top-health-teams-2020.html) (January 22, 2020) +- [The Power of Lyme Innovation: One Year of Progress](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/10/21/the-power-of-lyme-innovation-one-year-of-progress.html) (October 21, 2019) +- [Lyme Innovation Roundtable Summary Report - PDF](http://reports.opendataenterprise.org/Lyme%20Innovation%20Roundtable%20Report.pdf) (May 2019) +- [Lyme Innovation Roundtable Highlights and Next Steps](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/04/15/lyme-innovation-roundtable-highlights-and-next-steps.html) (April 15, 2019) +- [Deep Dive on "TOP Health": Data + Technology + Innovation for Lyme disease](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/03/19/deep-dive-top-health-data-technology-innovation-lyme.html) (March 19, 2019) +- ["TOP Health" Tech Sprint Unleashes the Power of Open Data and AI](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/1/17/top-health-tech-sprint-unleashes-the-power-of-open-data-and-ai.html) (January 17, 2019) +- [Lyme Innovation Roundtable](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) (December 19, 2018) +- [The HHS Office of the CTO Announces a "Lyme Innovation" Initiative](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/11/20/the-hhs-office-of-the-cto-announces-a-lyme-innovation-initiative.html) (November 20, 2018) + +## LymeX + +Lyme disease and other tick-borne illnesses present an urgent public health challenge. We need all hands on deck for coordinated public health efforts to address the real threat these diseases pose. Developing new and better ways to address these diseases is crucial—but real advancement cannot occur in a vacuum. + +That's why HHS launched the LymeX Innovation Accelerator (LymeX), an innovation partnership with the [Steven & Alexandra Cohen Foundation](https://www.steveandalex.org/). LymeX is modeled after the success and methods of the [KidneyX Innovation Accelerator](https://www.hhs.gov/cto/initiatives/kidneyx/index.html), a partnership between HHS and the American Society of Nephrology that includes kidney-care patients in every step of its innovation process. + +### Mission + +LymeX will accelerate [Lyme Innovation progress](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/10/21/the-power-of-lyme-innovation-one-year-of-progress.html) and strategically advance tick-borne-disease solutions in direct collaboration with Lyme patients, patient advocates, and diverse stakeholders across academia, nonprofits, industry, and government. + +### Goals + +Engage Stakeholders to Facilitate Patient-Centered Innovations + +By including patients and stakeholders in every step of identifying, developing, and implementing advancements in Lyme disease care, LymeX fosters innovations that can deliver transformative impact on patients' quality of life. LymeX is exploring how collaborative partnership models can best support stakeholder engagement. For example, the [Health+](https://www.hhs.gov/cto/initiatives/digital-services/health-plus/index.html) approach pinpoints challenges from the patient's point of view to identify and map development of new tools and technological solutions. + +In close collaboration with stakeholders, LymeX aims to: + +- Build capacity for effective, efficient communication among patients, stakeholders, and HHS +- Identify common challenges in patient and healthcare provider experiences +- Hold a roundtable to outline possible improvements and solutions +- Make plans for quickly developing and testing solution prototypes + +Foster Breakthroughs in Education and Awareness + +LymeX supports innovative health education and public awareness initiatives that focus on tick-borne disease prevention and help clinicians, patients, and caregivers benefit from the latest scientific findings. + +Accelerate Development of Next-Gen Diagnostics + +LymeX prize challenges encourage rapid, cross-sector, patient-centered diagnostic innovations. These challenges will drive creators, industries, and academia toward breakthroughs in more accurate Lyme diagnosis, helping make next-gen diagnostics available more quickly. + +### Blog Posts and Ways to Learn More + +For the most up-to-date information, statistics, and guidance on Lyme disease and related illnesses, see the Centers for Disease Control and Prevention's [Lyme disease website](https://www.cdc.gov/lyme/index.html). + +These HHS blog posts offer additional information related to the LymeX partnership, a part of the broader Lyme Innovation initiative: + +- [Introducing Health+: An Iterative Collaboration Tackling High-Impact Health Issues](https://medium.com/andpartners/health-plus-gov-healthcare-3cf3ef9b992a) (June 17, 2020) +- [The Lyme Innovation "TOP Health" Teams in 2020](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2020/01/22/lyme-innovation-top-health-teams-2020.html) (January 22, 2020) +- [The Power of Lyme Innovation: One Year of Progress](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/10/21/the-power-of-lyme-innovation-one-year-of-progress.html) (October 21, 2019) +- [Lyme Innovation Roundtable Summary Report - PDF](http://reports.opendataenterprise.org/Lyme%20Innovation%20Roundtable%20Report.pdf) (May 2019) +- [Lyme Innovation Roundtable Highlights and Next Steps](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/04/15/lyme-innovation-roundtable-highlights-and-next-steps.html) (April 15, 2019) +- [Deep Dive on "TOP Health": Data + Technology + Innovation for Lyme disease](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/03/19/deep-dive-top-health-data-technology-innovation-lyme.html) (March 19, 2019) +- ["TOP Health" Tech Sprint Unleashes the Power of Open Data and AI](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/1/17/top-health-tech-sprint-unleashes-the-power-of-open-data-and-ai.html) (January 17, 2019) +- [Lyme Innovation Roundtable](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) (December 19, 2018) +- [The HHS Office of the CTO Announces a "Lyme Innovation" Initiative](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/11/20/the-hhs-office-of-the-cto-announces-a-lyme-innovation-initiative.html) (November 20, 2018) From 3aec4ca60008d49d4b533931cf13454bbb6c3c76 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Mon, 28 Jun 2021 10:52:47 -0400 Subject: [PATCH 52/77] Update _config.yml --- _config.yml | 2 +- 1 file changed, 1 insertion(+), 1 deletion(-) diff --git a/_config.yml b/_config.yml index 5f9781b..8818437 100644 --- a/_config.yml +++ b/_config.yml @@ -81,7 +81,7 @@ primary_navigation: - name: COVID-19 Data-Driven Innovation url: /resources/covid-19-data-innovation/ - name: Lyme Innovation - url: /resources/lyme-innovation2/ + url: /resources/lymeinnovation/ - name: KidneyX url: /resources/kidneyx/ - name: Health+ From 7ab2a5f1d53c3767a723e2f17cc75111c20fac5a Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Mon, 28 Jun 2021 10:56:21 -0400 Subject: [PATCH 53/77] Update innovation-tours.md --- _pages/operations/innovation-tours.md | 161 ++++++++++++++++++++++++++ 1 file changed, 161 insertions(+) diff --git a/_pages/operations/innovation-tours.md b/_pages/operations/innovation-tours.md index f183e0b..26151ee 100644 --- a/_pages/operations/innovation-tours.md +++ b/_pages/operations/innovation-tours.md @@ -31,3 +31,164 @@ join us for a 13-month tour of duty. You’ll be able to: - Be Backed Up At the Highest Levels. Your project will be supported at the highest levels of HHS leadership. - Gain Insider’s Access. You get a unique chance to gain experience and insights into government from the inside and the chance to develop a network of contacts inside and outside of HHS. - Unite with Other Innovators. You will have access to a network of internal and external innovators affiliated with HHS IDEA Lab who work in government and industry. + +#### Who Can Be An Entrepreneur-in-Residence? + +Anyone except current federal employees may apply to be an EIR. + +#### What Characteristics Do We Look For In An EIR? + +As with most questions in life: it depends! In this case, it varies depending on the needs of the project. But all of the projects need creative and talented problem solvers with a can-do attitude – an entrepreneurial spirit. + +Typically, EIRs are mid- to senior-level professionals. EIRs may be academics, technology entrepreneurs, software designers, policymakers, business gurus, or non-profit leaders who have led innovative achievements in their field. Every project requires different skillsets but across all projects, EIRs resonate with these three sentences: + +- The word “risk” does not scare me. You have lots of experience taking risks for a new product or solution. +- I know open innovation techniques like the back of my hand. You enjoy leveraging, discussing, and meditating on things like agile development, human-centered design, lean methodologies, and/or iterative program design. (You might even think about them on rainy days or on long car rides.) +- I love working on teams. You enjoy working with people with different professional backgrounds and can move cross-functional teams towards a common goal. + +#### What Does the Recruitment Process Look Like? + +This is what our recruitment process looks like if you were to apply: + +Step 1 – A project is selected and we post the opportunity/call for entrepreneurs. + +Step 2 – [INSERT YOUR NAME] submits an awesome application for review. This consists of submitting a resume and answering one short answer question. + +Step 3 – We do our internal thing (see Step 4) and typically get back to candidates within 30 days. + +Step 4 – After an internal shortlisting of qualified candidates, the HHS staff who are working on the project team will interview candidates and make the final EIR selection. + +### How Do I Apply? + +Sign up for our mailing list to find out about new EIR positions as they become available: https://cloud.connect.hhs.gov/IdeaLab + +## Submit a Project + +### Some challenges need outside help + +We don’t always have all the answers. + +The HHS Entrepreneurs-in-Residence program enables: + +- Access to a pool of unique skill sets difficult to identify in government +- Project support and visibility from the highest levels of HHS leadership +- Access to a network of internal and external innovators affiliated with HHS IDEA Lab programs +- Support and freedom to incorporate new approaches to reduce time, lower cost and improve customer satisfaction for your program/process +- A suite of tools typically not available to staff including a secure cloud environment for app development and testing as well as GitHub access +- Assistance with the hiring and on-boarding process for the EIR + +### Who can submit a project idea? + +Any HHS employee, or team of HHS employees, who want to test new methodologies to solve problems can submit a project idea. + +We do ask that each team designates a Project Lead and that she or he be able to dedicate approximately 25% of her or his time to the project. She or he should also be prepared to continue project implementation following the departure of the Entrepreneur-in-Residence (EIR) if the pilot is deemed successful or otherwise document the lessons learned. + +### How do I submit a project idea? + +Before you jump into the submission, we ask that you and your team reach out to us to have a brief conversation about your project. We will work together to decide if an EIR would be a good fit for the program. + +### What projects do we support? + +Any idea or identified problem can be the subject of a project. But alas, we do have a limited number of projects that we can support during the year. + +Projects that are a good fit for the HHS EIR Program typically have the following characteristics: + +- High priority for the participating office, HHS Operating Division, or Staff Division with the potential to affect major change within the organization +- Ability to be implemented in about a year +- Can uniquely benefit from input from entrepreneurial talent, and/or expertise in areas such as open innovation, agile development or lean startup +- Strong support from leadership within the HHS Operating / Staff Division +- Participation of outstanding employees from within HHS Operating / Staff Division +- Committed funding from the HHS Operating / Staff Division to support the EIR (salary and project expenses) and project implementation + +Projects that are a good fit for the HHS EIR Program typically have the following characteristics: + +- High priority for the participating office, HHS Operating Division, or Staff Division with the potential to affect major change within the organization, +- Ability to be implemented in about a year, +- Can uniquely benefit from input from entrepreneurial talent, and/or expertise in areas such as open innovation, agile development or lean startup, +- Strong support from leadership within the HHS Operating / Staff Division, +- Participation of outstanding employees from within HHS Operating / Staff Division, and +- Committed funding from the HHS Operating / Staff Division to support the EIR (salary and project expenses) and project implementation + +### I want to hire an EIR, what does the selection process look like? + +We (you and us) talk. If you are interested in applying, [please reach out to us](idealab@hhs.gov) so that we may have a brief conversation about your project and to explore if it may be a good fit for the program. + +In the application, we will ask you to share the following information (so you may want to have it ready): + +- Please identify an Executive Sponsor, project lead and internal project participants. +- Please provide a short summary about each internal project team member, their track record of working on challenging/risky projects, experience working on cross-functional teams and their role in the proposed project. +- Please estimate the amount of time that each internal project team member can dedicate to the project. +- What is the main problem this project is attempting to solve? Why is this project important and why is it a high priority for your agency? +- What will be the impact of completing this project? Which ( internal and external stakeholders) will benefit from completing this the project? +- What is your proposed approach for completing this project? What is the desired outcome for this project in about a year? +- What specific skill sets are desired for an Entrepreneur-in-Residence (EIR) and what is the proposed role of the EIR? Explain why the project cannot be completed without an EIR. +- What support do you have from Operating /Staff Division leadership to complete this project? +- Do you have an FTE and funding available to support an EIR for this project? Please describe and estimate the resources and budget needed to complete the project (please assume that the EIR will be paid at the same level as internal project team members and consider possible travel costs for the EIR). +- If the first year is successful, what would be the plan for continuing to implement the project after the EIR departs? + +Here’s our [project evaluation criteria - PDF](https://www.hhs.gov/sites/default/files/EIR-Evaluation-Criteria.pdf), in case you were wondering. + +## FAQs + +### We Also Work With Non-Profits to Bring New Ideas And Expertise Into The Department + +Not-for-profit organizations can sponsor a paid fellowship to be filled by an individual with a background in entrepreneurship and innovation. These “Innovators-in-Residence” leverage the resources and expertise of both organizations (HHS and the sponsoring organization) during their appointment, to tackle specific challenges in health and the delivery of human services. + +The IDEA Lab works with the Innovator-In-Residence and his or her supervisor (the sponsor), and designated HHS mentors to develop a project concept and establish project goals that are mutually agreed upon between HHS and the sponsor. + +Innovators-in-Residence are employees of the sponsor organization and participate in government activities through the Intergovernmental Personnel Act (IPA). The IPA enables the exchange of talent between government and organizations for a wide array of practices. If an organization has not previously participated in an IPA employee exchange with HHS, an application is submitted and reviewed for approval before the project is started. +If your organization is interested in becoming a sponsoring organization or has additional questions regarding eligibility, please email idealab@hhs.gov. + +### Contact Information + +Will Yang, Interim Program Director – Will.Yang@hhs.gov + +### EIRs in the news + +- [“How an Entrepreneur-In-residence changes the culture at CMS”](https://www.hitechanswers.net/entrepreneur-residence-changed-culture-cms/) by HITECH Answers +- [“HHS Taking Applications for Entrepreneurs”](http://www.federaltimes.com/story/government/it/health/2015/08/26/idea-lab-entrepreneur/32409823/) by Federal Times +- [“The American Way of Death Data”](https://fcw.com/articles/2015/08/14/mortality-data.aspx) by Federal Computer Week (featuring EIR Paula Braun & her project) +- [“An Interview with Greg Downing: Join Forces with Outside Talent”](http://federalnewsradio.com/federal-drive/2015/08/greg-downing-joining-forces-with-outside-talent/) by Federal News Radio +- [“Government Infecting Itself with Entrepreneurial Spirit”](http://techonomy.com/2015/07/government-infecting-itself-with-entrepreneurial-spirit/) by Techonomy +- [“HHS Adds New Class of Entrepreneurs-in-Residence”](https://www.washingtonpost.com/business/on-it/hhs-adds-new-class-of-entrepreneurs-in-residence/2014/12/05/92a4cfd6-7a71-11e4-9a27-6fdbc612bff8_story.html) by the Washington Post +- [“Next Wave of Entrepreneurs Arrives at HHS to Help Tackle Major Healthcare Challenges”](http://www.openhealthnews.com/content/next-wave-entrepreneurs-arrives-hhs-help-tackle-major-healthcare-challenges) by Open Health News + +### Frequently Asked Questions + +How are Entrepreneurs-in-Residence compensated? + +- It is up to the participating Operating / Staff Division to determine the compensation for the Entrepreneurs-in-Residence (EIR). EIRs will be brought in as Term Appointments and will receive the same employee benefits as any other Federal employee: + - Federal Employee Health Benefits (FEHB); + - Federal Employees’ Group Life Insurance Program (FEGLI); + - Federal Employees Retirement System (FERS); and + - Annual and sick leave. + +Do Entrepreneurs-in-Residence have to relocate? + +- In order to maximize the effectiveness of the project, we recommend that Entrepreneurs-in-Residence relocate to the project site for the duration of the program. Relocation costs for EIRs have not been covered in the past. + +Does the HHS IDEA Lab provide funding to support the Entrepreneurs-in-Residence? + +- No, the participating Operating or Staff Division must provide funding for the EIR salary, any anticipated travel, and project costs. HHS provides: + - Access to an external talent pool of individuals who do not normally apply for government positions + - Support and visibility of your project at the highest levels of HHS leadership to test your idea and remove barriers + - Access to a network of internal and external innovators, including current and former participants in the HHS Entrepreneurs-in-Residence, HHS Innovator-in-Residence and HHS Ignite programs + - Support and freedom to incorporate new approaches to reduce time, lower cost and improve customer satisfaction for your program/process + - A suite of tools typically not available to staff including a secure cloud environment for app development and testing, and GitHub access + - Assistance with the hiring process for the Entrepreneur-in-Residence + +How are federal employees, or Internal Entrepreneurs, compensated? + +- Internal Entrepreneurs will continue to be paid under the same compensation structure prior to joining the HHS EIR Program. + +For federal employees, what approvals (if any) do I need to apply? + +- In addition to identifying the project lead and project participants, each team needs to identify an Executive Sponsor for the project, who is typically at the Division Director, Bureau Chief, or Executive Officer level. + +## Entrepreneurs-in-Residence Projects + +We are always looking for individuals with ambitious entrepreneurial drive to join government and tackle health problems from a public perspective. The Entrepreneur-in-Residence program is a hiring framework that enables private-sector employees to serve government for short, limited durations. + +## Innovators in Residence + +Not-for-profit organizations can sponsor a paid fellowship to be filled by an individual with a background in entrepreneurship and innovation. These "Innovators-in-Residence" leverage the resources and expertise of both organizations (HHS and the sponsoring organization) during their appointment, to tackle specific challenges in health and the delivery of human services. From 5f68f8ce0529214d0dc0bb131808a93ce4087371 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Fri, 2 Jul 2021 12:37:22 -0400 Subject: [PATCH 54/77] Update tagline.html --- _includes/tagline.html | 6 ++++-- 1 file changed, 4 insertions(+), 2 deletions(-) diff --git a/_includes/tagline.html b/_includes/tagline.html index 256bf59..e178b3c 100644 --- a/_includes/tagline.html +++ b/_includes/tagline.html @@ -8,8 +8,10 @@Data Quality Matters
+Prioritize Impact
Trust in government depends on high quality of data and integrity of governance. We set policies and standards to guide the organization @@ -52,7 +52,7 @@
Data Quality Matters
{% asset CV-Team.svg class="usa-media-block__img ocdo-about-icon" alt="Team icon" %}-Data is a Team Sport
+Create Opportunities
Use collaboration within the agency and through engagement with partners and the public because we are greater together than apart. @@ -66,7 +66,7 @@
Data is a Team Sport
alt="Collaborate/link icon" %}@@ -32,23 +32,24 @@- Innovate & Design with (Not For) Users + Default to Transparency
We embrace transparency and user-centered methods to co-create @@ -82,7 +82,7 @@
{% asset CV-Momentum.svg class="usa-media-block__img ocdo-about-icon" alt="Momentum/trending up icon" %}
-Create Momentum
+Listen to the People we Serve
We have a bias toward action and strive to be the catalyst to deliver more value, faster, throughout the organization. From 20115a63375e55f6f04a380b6d18e57bbe32e99d Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Thu, 1 Apr 2021 13:49:18 -0400 Subject: [PATCH 48/77] Create innovation-tours.md --- _pages/operations/innovation-tours.md | 33 +++++++++++++++++++++++++++ 1 file changed, 33 insertions(+) create mode 100644 _pages/operations/innovation-tours.md diff --git a/_pages/operations/innovation-tours.md b/_pages/operations/innovation-tours.md new file mode 100644 index 0000000..f183e0b --- /dev/null +++ b/_pages/operations/innovation-tours.md @@ -0,0 +1,33 @@ +--- +title: Innovation "Tours of Duty" +layout: page +sidenav: true +anchors: + - name: Serve as an EIR + - name: Submit a Project + - name: FAQs + - name: Entrepreneurs-in-Residence Projects + - name: Innovators in Residence +--- + + + +# Innovation "Tours of Duty" + +Tapping into outside talent to solve complex problems in health and the delivery of human services. Join us to serve as an Entrepreneur-in-Residence (EIR)! + +## Serve as an EIR + +### Join Us For A Tour of Duty + +#### Serve Your Nation + Make A Difference in Health and Healthcare + +How would it feel to know that you are applying your excellent skills towards making an impact in the healthcare space and serving your country? Join us for a 13-month tour of duty. + +join us for a 13-month tour of duty. You’ll be able to: + +- Use Your Powers For Good. It’s an opportunity to use your talents and skills to benefit the public good. +- Challenge Yourself. You will work on some of the most pressing challenges in health, health care, and the delivery of human services. +- Be Backed Up At the Highest Levels. Your project will be supported at the highest levels of HHS leadership. +- Gain Insider’s Access. You get a unique chance to gain experience and insights into government from the inside and the chance to develop a network of contacts inside and outside of HHS. +- Unite with Other Innovators. You will have access to a network of internal and external innovators affiliated with HHS IDEA Lab who work in government and industry. From 2e24d7ec88541db933a44956896f2b71c79d77e3 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Thu, 1 Apr 2021 13:54:41 -0400 Subject: [PATCH 49/77] Update tagline.html --- _includes/tagline.html | 12 ++++++------ 1 file changed, 6 insertions(+), 6 deletions(-) diff --git a/_includes/tagline.html b/_includes/tagline.html index c7dcf5f..256bf59 100644 --- a/_includes/tagline.html +++ b/_includes/tagline.html @@ -9,13 +9,13 @@
Innovation can h
From 6edddcb75f1c5396178a9e9c584952c86b45e93b Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Thu, 1 Apr 2021 14:24:43 -0400 Subject: [PATCH 50/77] Update highlights.html --- _includes/highlights.html | 25 +++++++++++++------------ 1 file changed, 13 insertions(+), 12 deletions(-) diff --git a/_includes/highlights.html b/_includes/highlights.html index 470388c..fabc0b9 100644 --- a/_includes/highlights.html +++ b/_includes/highlights.html @@ -10,21 +10,21 @@Change in healthcare happens with collaboration, data-driven insights, and human centered design. We are bringing all three together to create better health outcomes for all.
-We achieve this by leveraging OCDO’s enterprise position: +
We achieve this by leveraging established open innovation methods:
-
-
- Engage 400 data sources and enterprise data sharing -
- Build coalitions and shared decision making -
- Assert OCDO’s capacity to convene and connect people -
- Scout and scale solutions emerging from Operating Divisions -
- Wield authority as OCDO to advance the department’s strategic priorities +
- Prize challenges provide incentive for innovation +
- Tech sprints apply industry best practices to government service +
- Human-centered design: build with, not for, the American people +
- Partnerships and collaboration leverage resources from private industry to advance our mission +
- Open data roundtables elevated underserved communities with social determinants of health insights
- {% asset highlight-dm.svg class="usa-media-block__img ocdo-highlight-icon" alt="Data maturity icon" %} -
- Learn More +
- Learn More
-Data Maturity
-A performance management tool to assess the current state of data capabilities, propose enhancements, and monitor progress.
+COVID-19 Data-Driven Innovation
+uUsing novel methods and collaboration to accelerate scientific and public health insights to shorten the time for COVID-19 information and solutions.
- {% asset highlight-ds.svg class="usa-media-block__img ocdo-highlight-icon" alt="Data assessment icon" %} -
- Learn More +
- Learn More
-Data Skills
-A service area to identify need, source training, recommend curriculum, and monitor overall data literacy for HHS.
+Lyme Innovation
+Accelerating innovation in tick-borne disease prevention, diagnostics, and patient outcomes via next-gen technologies and interdisciplinary collaborations.
Data Skills
- {% asset highlight-di.svg class="usa-media-block__img ocdo-highlight-icon" alt="Data inventory icon" %} -
- Learn More +
- Learn More
-Data Inventory
-A service area to provide HHS with a consolidated resource to locate data.
+KidneyX
+A public-private partnership between HHS and the American Society of Nephrology (ASN) to accelerate artificial kidney development toward human clinical trials.
- {% asset highlight-dg.svg class="usa-media-block__img ocdo-highlight-icon" alt="Data governance icon" %} -
- Learn More +
- Learn More
-Data Governance
-A service and communication tool to engage with HHS data leaders in the creation and adoption of data policies, standards, and other enterprise tools that improve the flow of data.
+Health+
+A rigorous scientific approach to facilitate patient-centered innovations with human-centered design.
Innovation can happen where you least expect it.
-Change in healthcare happens with collaboration, data-driven insights, and human centered design. We are bringing all three together to create better health outcomes for all.
-We achieve this by leveraging established open innovation methods: +
InnovationX unites inspired collaborators to decode and develop transformative solutions to today’s most pressing challenges.
+InnovationX is a team of doers reimagining and redefining what’s possible. We catalyze creative, game-changing approaches to health and human issues through historic public-private alliances, human-centered design, and data-driven innovation.
+Ignited by transparency, open data, emerging technologies, the latest science, and lived experiences, our engagements have reached across disciplines for over a decade to achieve results. Together, we build equitable, scalable, leading-edge ideas that government, industry, or philanthropy implement to ensure health and well-being for all.
+- Prize challenges provide incentive for innovation
- Tech sprints apply industry best practices to government service From 9246f372bda78852d7bb45dd41e945eae88935ea Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Fri, 2 Jul 2021 12:40:32 -0400 Subject: [PATCH 55/77] Update highlights.html --- _includes/highlights.html | 2 +- 1 file changed, 1 insertion(+), 1 deletion(-) diff --git a/_includes/highlights.html b/_includes/highlights.html index fabc0b9..2e9a7a4 100644 --- a/_includes/highlights.html +++ b/_includes/highlights.html @@ -14,7 +14,7 @@
COVID-19 Data-Driven Innovation
-uUsing novel methods and collaboration to accelerate scientific and public health insights to shorten the time for COVID-19 information and solutions.
+Using novel methods and collaboration to accelerate scientific and public health insights to shorten the time for COVID-19 information and solutions.
From 78a74fac2082852e94129b7b2f00e807d5bb29de Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Fri, 2 Jul 2021 13:09:04 -0400 Subject: [PATCH 56/77] Create covid19innovation.md --- _pages/resources/covid19innovation.md | 138 ++++++++++++++++++++++++++ 1 file changed, 138 insertions(+) create mode 100644 _pages/resources/covid19innovation.md diff --git a/_pages/resources/covid19innovation.md b/_pages/resources/covid19innovation.md new file mode 100644 index 0000000..bcb4db3 --- /dev/null +++ b/_pages/resources/covid19innovation.md @@ -0,0 +1,138 @@ +--- +title: COVID-19 Data-Driven Innovation +layout: page +sidenav: true +anchors: + - name: COVID-19 TOPx Sprint + - name: COVID-19 Diagnostics Design-a-thon + - name: COVID-19 Open Data Roundtables +--- + +# COVID-19 Data-Driven Innovation + +Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance. + +COVID-19 data-driven innovation uses novel methods and collaboration to accelerate scientific and public health insights to ultimately shorten the time it takes for COVID-19 information and solutions to save lives.
+This HHS initiative is co-led by the [Office of the Assistant Secretary for Health](https://www.hhs.gov/ash/index.html) and the Office of the Chief Data Officer. Collaboratively, we are creating crosscutting impact and real-world value from a data-driven ecosystem during one of the most challenging public health crises of our lifetimes. By opening COVID-19 datasets on [HealthData.gov](https://healthdata.gov/) and applying proven innovation methods like [Health+ (“health plus”)](https://www.hhs.gov/cto/initiatives/digital-services/health-plus/index.html), our COVID-19 innovation success will be measured by patient outcomes, social equity, economic recovery, and how HHS improves the lives of all Americans touched by the novel coronavirus. + +COVID-19 is a multi-faceted challenge and we are employing numerous innovative practices to address the crisis. Over [200 COVID-19 datasets](https://healthdata.gov/search/og_group_ref/286/type/dataset?query=covid-19&sort_by=changed&sort_order=DESC) on HealthData.gov serve as the fuel for much of our HHS innovation, including the: + +- COVID-19 At-Anywhere Diagnostics “Design-a thon” - A virtual innovation sprint with 750 problem solvers who produced over 30 capstone projects and [16 winning Design-a-thon teams](https://www.hhs.gov/about/news/2020/12/16/winners-of-hhs-design-a-thon-to-develop-innovative-digital-health-tools-for-covid-19.html) to capture COVID-19 diagnostic data and report key elements to inform a data-driven pandemic response. + +- COVID-19 TOPx Technology Sprint – A fast-paced, two-month build cycle using the “TOPx Toolkit” created by the U.S. Census Bureau with 14 industry-led teams to further develop COVID-19 diagnostic reporting tools and accelerate the public use of these tools, making it easier for individuals and organizations to safely report positive/negative test results. + +- COVID-19 Open Data Roundtables – Hands on, structured workshops that improve accessibility and data sharing for public health and the public good, bringing together community, state and federal government leaders, the private sector, non-profits, research, and academia. + +Together, through COVID-19 data-driven innovation, we are saving and improving American lives. Please join our solver community by creating a profile on our open-innovation, crowdsourcing platform: [waters.crowdicity.com](https://waters.crowdicity.com/). +
+The COVID-19 pandemic has rapidly changed the way we live. Data and data standards are essential for an effective U.S. response, but only if data are used and standards are widely adopted by all sectors. With COVID-19 TOPx, HHS is collaborating with industry-led teams to transform HHS open data and data standards into digital tools with practical real-world applications. + +## COVID-19 TOPx Sprint + +The COVID-19 pandemic has rapidly changed the way we live. Data and data standards are essential for an effective U.S. response, but only if data are used and standards are widely adopted by all sectors. With COVID-19 TOPx, HHS is collaborating with industry-led teams to transform HHS open data and data standards into digital tools with practical real-world applications. + +### What is The Opportunity Project (TOP)? + +- [The Opportunity Project](https://opportunity.census.gov/) is a collaboration process developed by the White House in 2016 to speed up innovation fueled by government open data. Since then, the U.S. Census Bureau has scaled the program to different government agencies, working with thousands of participants to create over 100 digital products. TOP is a proven innovation model, typically a 12- to 14-week technology sprint with industry, which government can leverage alongside open data to catalyze new technologies. +- Iterate with user-centered, agile build cycles. +- Launch a new digital tool (or build new functionality for an existing tool). + +Each year, the U.S. Census Bureau hosts the annual [TOP Demo Day](https://opportunity.census.gov/our-process/) to showcase digital tools developed through TOP sprints. At Demo Day, the press, data enthusiasts, technologists, government leaders, and others gather to celebrate the launch of products built that year. + +### What is a TOPx Sprint? + +In late 2020, the U.S. Census Bureau published its [TOPx Toolkit](https://opportunity.census.gov/topx-toolkit/introduction/) with how-to instructions for agencies to run their own TOP-like sprints, called “TOPx” sprints. They bring together technologists, government, and communities to rapidly prototype digital products—powered by [U.S. open data](https://www.data.gov/)—that solve real-world problems. The TOPx model gives federal agencies a framework for collaborating with industry and non-government organizations using government open data to: + +- Address mission-critical priorities with data and technology innovation +- Recruit cross-sector participants and strengthen collaborative networks +- Facilitate a virtual technology development sprint on a flexible and modifiable timeline +- Showcase outcomes and new digital tools at TOP or TOPx Demo Days + +### HHS InnovationX Pioneers the First-Ever COVID-19 TOPx Sprint + +Innovation necessitates trying new things, and the InnovationX team has introduced HHS to TOP and TOPx sprints. The first-ever HHS TOPx sprint, launched in January 2021, focused on COVID-19. Fourteen industry-led teams participated in this COVID-19 TOPx sprint with the goal to develop digital health tools to capture, harmonize, and securely transmit key data elements from at-anywhere COVID-19 diagnostic tests. Participating TOPx teams won the [COVID-19 At-Anywhere Diagnostics Design-a-thon](https://www.hhs.gov/coronavirus/covid-19-at-anywhere-diagnostics-design-a-thon/index.html) (innovation sprint) with HHS in late 2020. + +This first [COVID-19 TOPx sprint](https://waters.crowdicity.com/) used a condensed 8-week build cycle, compared to the usual 12- to 14-week TOP length. This abbreviated timeline reflects the urgency of today’s COVID-19 pandemic — people need COVID-19 solutions now. + +The COVID-19 TOPx sprint occurred in the open with all meetings and demos open to the public through waters.crowdicity.com, a crowdsourcing platform for interactive ideas exchange. This made the COVID-19 TOPx process visible, transparent, and accessible to all. + +During the TOPx sprint, HHS policy experts and data stewards provide feedback to the participating teams led by industry, academia, and non-government organizations. As with TOP sprints, all TOPx sprints must use government open data and agile methods to ship tangible, real-world digital tools by the end of the collaboration. Below is a typical process and timeline: + +- Develop TOPx problem statement(s) and identify relevant open datasets +- Recruit sprint participants +- Facilitate an 8- to 14-week technology development sprint + - Organize and facilitate milestone calls (User Research, Data Discovery, Alpha Demo, Beta Demo, Final Demo) + - Provide insight related to the agency’s policy and operational areas + - Answer questions about finding and using the agency’s public data + - Provide feedback on the products being developed +- Host an (optional) in-person event during which products are launched and showcased +- Participate in the annual TOP Demo Day, hosted by the U.S. Census Bureau. + +The InnovationX team is currently developing the HHS TOPx Toolkit, including HHS case studies and how-to methods using [HealthData.gov](https://healthdata.gov/). This will provide innovation support and an HHS-specific playbook for the 80,000+ HHS employees across 11 Operating Divisions and over 15 Staff Divisions that may wish to use TOP or TOPx methods to advance their priorities and mission. + +- [Waters.Crowdicity.com –](https://waters.crowdicity.com/) an open-innovation crowdsourcing platform for sharing data-driven innovations to combat COVID-19 + +## COVID-19 Diagnostics Design-a-thon + +Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance. + +We brought together innovative private-sector tech teams and data-driven public sector leaders to address one of our most difficult problems using federal open data standards — diagnosing COVID-19 infections. + +### What is a Design-a-thon? + +A public-facing, open-innovation sprint that connects industry with the U.S. government. Teams work quickly to design software that can be scaled to address a public health need. + +The [COVID-19 At-Anywhere Diagnostics Design-a-thon](https://www.hhs.gov/about/news/2020/12/16/winners-of-hhs-design-a-thon-to-develop-innovative-digital-health-tools-for-covid-19.html) issued a call-to-action for American industry and the public to unleash the power of open innovation to develop digital solutions for COVID-19 data capture, harmonization, and reporting from diagnostic tests. HHS crowdsourced ideas from teams that proposed solutions through the [Waters.Crowdicity.com –](https://waters.crowdicity.com/) platform. This [“open innovation”](https://www.hhs.gov/cto/initiatives/open-innovation/about/index.html) platform enabled Design-a-thon teams to form, exchange ideas, and submit “Capstone Projects” built with HHS open data, open source code, and open science. + +### What are outcomes of the COVID-19 At-Anywhere Diagnostics Design-a-thon? + +The Design-a-thon brought together software developers, designers, and engineers with in vitro diagnostic device developers and COVID-19 subject matter experts to build software and digital tools that are directly integrated with COVID-19 tests. Over 750 problem solvers and innovators participated. Collectively, participants formed Design-a-thon teams and submitted over 30 “Capstone Projects” with capabilities to alleviate data collection and reporting burdens for patients, providers, anyone administering/using tests, or labs through which data is routed. These digital capabilities included automated and semi-automated digital tools for reporting COVID-19 results from at-home, non-prescription, and over-the-counter tests on the market now. Judges invited 16 winners to participate in the TOPx tech sprint. + +### What is WATERS? + +During the Design-a-thon, HHS built and launched a “Wireless Automated Transmission for Electronic Reporting Systems” or WATERS to ingest data feeds from many COVID-19 apps and digital tools, including those built by TOPx teams. WATERS provides digital infrastructure for government to securely receive, harmonize, and transmit data from diagnostic device apps, Laboratory Information Management Systems and other entities sending COVID-19 diagnostic data. + +A key function of WATERS is “optionality” – the ability to support disparate, complex systems to accommodate current and changing needs. We are ensuring that hospitals, nursing homes, and other healthcare providers have the options to use apps that suit their specific needs and reporting requirements. Such optionality will alleviate data collection and reporting burdens for patients, providers, anyone administering/using tests, labs through which data is routed, since the users can continue using their preferred app(s) and tool(s) for WATERS to ingest. +Visit [Waters.Crowdicity.com –](https://waters.crowdicity.com/) to learn more about the COVID-19 At-Anywhere Design-a-thon along with upcoming events. + +### Learn More +[Waters.Crowdicity.com –](https://waters.crowdicity.com/) an open-innovation crowdsourcing platform for sharing data-driven innovations to combat COVID-19 + +## COVID-19 Open Data Roundtables + +Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance. + +Open Data Roundtables are unique convenings that bring together data providers and their data users to help identify high-value datasets, find action-oriented solutions to data problems, catalyze research on emerging data issues, and establish new collaborations. They connect experts from government, nonprofits and NGOs, academia, and the private sector who may never have met before but who share common goals and interests. + +### What is the history of Open Data Roundtables? + +Open Data Roundtables held by the White House and numerous federal agencies have focused on topics including medical research and health care, transportation, energy and the environment, and the federal data strategy. A Roundtable can cover the use of an individual agency’s data, cross-cutting topics and issues that involve multiple agencies, or federal data policy across the government. Open Data Roundtables often involve participants from state and local governments to address how their data programs can best work together with federal programs. + +Since 2018, HHS has held seven Open Data Roundtables on a wide range of topics. The HHS Office of the CTO co-hosted these Roundtables with the nonprofit Center for Open Data Enterprise (CODE), which developed the methodology for working with federal agencies to hold these events. + +### When is the next Open Data Roundtable? + +HHS is now exploring a potential COVID-19 Open Data Roundtable as well as other efforts to engage stakeholders in addressing the pandemic. More information will be made available on this webpage. + +Previous HHS Roundtables include: + +- [Roundtable on Data Sharing Policies, Data-Driven Solutions, and the Opioid Crisis](http://reports.opendataenterprise.org/HHS-Opioid-Roundtable-Report.pdf) +July 2018 + +- [Lyme Innovation Roundtable](http://reports.opendataenterprise.org/Lyme%20Innovation%20Roundtable%20Report.pdf) +December 2018 + +- [Roundtable on Sharing and Utilizing Health Data for AI Applications](https://healthdatasharing.org/wp-content/uploads/2020/07/RT1-AI-Summary-Report-FINAL-2020.07.28.pdf) +April 2019 + +- [Roundtable on Balancing Privacy with Health Data Access](https://healthdatasharing.org/wp-content/uploads/2020/07/RT2-Privacy-Summary-Report-FINAL-2020.07.28.pdf) +July 2019 + +- [Roundtable on Leveraging Data on the Social Determinants of Health](https://healthdatasharing.org/wp-content/uploads/2020/07/RT3-SDOH-Summary-Report-FINAL-2020.07.28.pdf) +October 2019 + +- [Roundtable on Leveraging Data to Address Sickle Cell Disease](http://reports.opendataenterprise.org/SCD-Report-FINAL.pdf) +June 2020 + +- [Roundtable on Using SDOH Data to Fight COVID-19 and Support Recovery Efforts](https://healthdatasharing.org/wp-content/uploads/2020/12/COVID-SDOH-Summary-Report-Final.pdf) +August 2020 From 7eeee965e03e4cc54b76d7afdf80b90b97d40fa7 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Fri, 2 Jul 2021 14:16:43 -0400 Subject: [PATCH 57/77] Update kidneyx.md --- _pages/resources/kidneyx.md | 32 ++++++-------------------------- 1 file changed, 6 insertions(+), 26 deletions(-) diff --git a/_pages/resources/kidneyx.md b/_pages/resources/kidneyx.md index 6c88405..a4e8f27 100644 --- a/_pages/resources/kidneyx.md +++ b/_pages/resources/kidneyx.md @@ -11,23 +11,15 @@ anchors: # KidneyX +[Follow us on Twitter](https://twitter.com/Kidney_X)! + The Kidney Innovation Accelerator (KidneyX) is a public-private partnership between the U.S. Department of Health and Human Services (HHS) and the American Society of Nephrology (ASN) to accelerate innovation in the prevention, diagnosis, and treatment of kidney diseases. -## About KidneyX +## Purpose An estimated 850 million people worldwide are living with kidney disease. [KidneyX](https://www.kidneyx.org/) seeks to improve their lives by accelerating the development of drugs, devices, biologics, and other therapies across the spectrum of kidney care. KidneyX will 'de-risk' innovation by streamlining processes, reducing regulatory barriers, and modernizing the way everyone pays for treatment. By inviting innovation from outside the government, KidneyX will stimulate and accelerate innovation through a series of cash prize competitions. -[Learn more and sign up for updates at KidneyX.org.](http://www.kidneyx.org/). - -### Why Kidney Care Innovation Matters - -[More than one in seven American adults](https://www.cdc.gov/kidneydisease/publications-resources/2019-national-facts.html) are living with kidney disease. For people with kidney failure, the only treatment option other than a transplant is dialysis, which takes a serious toll. [Dialysis patients typically spend 12 hours a week attached to a machine](https://www.gao.gov/products/gao-17-121) and their [five-year life expectancy](https://www.usrds.org/2018/view/Default.aspx) is worse than that of most cancer patients. The treatment is also extremely costly — Medicare alone spends [more than $100 billion](https://www.usrds.org/2018/view/v2_09.aspx) annually on kidney care, and [one in five Medicare dollars](https://www.advisory.com/daily-briefing/2019/03/08/kidney) are spent on dialysis. - -In 2019, President Trump signed an [Executive Order on Advancing American Kidney Health](https://www.whitehouse.gov/presidential-actions/executive-order-advancing-american-kidney-health/), a bold new initiative to improve the lives of Americans suffering from kidney disease, expand options for American patients, and reduce healthcare costs. The initiative provides specific solutions to deliver on three goals: fewer patients developing kidney failure, fewer Americans receiving dialysis in dialysis centers, and more kidneys available for transplant. - -As part of the Advancing [American Kidney Health Initiative](https://www.hhs.gov/about/news/2019/07/10/hhs-launches-president-trump-advancing-american-kidney-health-initiative.html?language=en), KidneyX launched the [Artificial Kidney Prize](https://akp.kidneyx.org/?utm_source=HHS&utm_medium=web-content&utm_campaign=launch), a competition to accelerate artificial kidney development toward human clinical trials. This multiphase competition is KidneyX’s first fully dedicated effort toward artificial kidney advancement, with initial phases offering up to $10 million in prizes. The first phase seeks solutions that enable and advance the functionality, effectiveness, and/or reliability of artificial kidneys. Phase 1 submissions are due March 24, 2021. [Read the official announcement here - PDF*.](https://www.hhs.gov/sites/default/files/kidneyx-rd2-prize-announcement-public-notice.pdf?language=en) - -KidneyX is also accepting submissions for the [COVID-19 Kidney Care Challenge](https://www.kidneyx.org/PrizeCompetitions/covid19kidneycarechallenge?utm_source=HHS&utm_medium=web-content&utm_campaign=launch). The $300,000 challenge seeks solutions that reduce the transmission of coronavirus among people living with kidney disease and/or reduce the risk of kidney damage among people who contract the virus. Round 1 submissions are due December 4, 2020. [Read the official announcement here - PDF*](https://www.hhs.gov/sites/default/files/kidneyx-covid-19-kidney-care-challenge-prize-announcement.pdf?language=en). +[Learn more and sign up for updates at KidneyX.org.](http://www.kidneyx.org/) ### The KidneyX Approach @@ -65,16 +57,14 @@ The Patient Innovator Challenge, funded by the National Kidney Foundation, chall [Learn more about the Patient Innovator Challenge and meet the winners](https://www.kidneyx.org/prizecompetitions/PatientInnovatorChallenge). +Learning more about the [Artificial Kidney Prize](https://akp.kidneyx.org/?utm_source=HHS&utm_medium=web-content&utm_campaign=launch). + ## Artificial Kidney Prize The [Artificial Kidney Prize](https://akp.kidneyx.org/?utm_source=HHS&utm_medium=web-content&utm_campaign=launch) is a competition to accelerate the development of artificial kidneys toward human clinical trials. Phases 1 and 2 will award up to $10 million in prizes. The Artificial Kidney Prize builds on [past KidneyX competitions](https://www.hhs.gov/cto/initiatives/kidneyx/previous-prize-competitions/index.html?language=en) but is distinct in its goal: to accelerate the development of continuous kidney replacement therapies that provide transformational treatment options beyond current dialysis methods. Artificial kidneys may be wearable, implantable, bioengineered, developed as a xenotransplant or chimera organ, or other approaches not yet conceived. -### Enter Phase 1 by March 24 - -Phase 1 seeks component or integrated prototype solutions that enable and advance the functionality, effectiveness, and/or reliability of artificial kidneys. Phase 1 submissions are due by 4:59 p.m. ET on March 24, 2021. - ### Looking ahead to Phase 2 Phase 2 of the Artificial Kidney Prize will be open to eligible entrants from Phase 1, as well as new eligible entrants who did not enter the first phase. The second phase will focus on initial integration of prototype solutions into an artificial kidney, or advancement of already integrated prototype solutions. Phase 2 is expected to launch in fall 2021. @@ -88,13 +78,3 @@ Learn more about the [Artificial Kidney Prize](https://akp.kidneyx.org/?utm_sour The $300,000 [KidneyX COVID-19 Kidney Care Challenge](https://www.kidneyx.org/PrizeCompetitions/covid19kidneycarechallenge?utm_source=HHS&utm_medium=web-content&utm_campaign=launch) seeks solutions that reduce the transmission of the coronavirus among people living with kidney disease and/or reduce the risk of kidney damage among people who contract the virus. Winners will receive $20,000 each in recognition of their solutions. The COVID-19 pandemic has created unique challenges for the estimated 37 million Americans living with kidney disease — as well as their caregivers and healthcare practitioners. Patients, caregivers, frontline staff, and organizations have quickly responded by developing or adapting solutions for safely delivering kidney care during the pandemic. The COVID-19 Kidney Care Challenge aims to identify and share the best of these solutions so that other patients, caregivers, and staff can benefit from them. - -### Round 1 submissions due by December 4 - -The challenge seeks to identify replicable frontline solutions and share them across healthcare communities. KidneyX is particularly interested in demonstrated solutions that consider the patient experience and could be implemented without requiring significant time, expertise, money, or other resources. Round 1 submissions are due by 4:59 p.m. ET on December 4, 2020. - -### Round 2 opens December 9 - -The second round will be open to eligible entrants from Round 1, as well as eligible entrants who did not enter the first round. Round 2 will accept solutions from December 9, 2020 to January 20, 2021. - -Learn more about the [COVID-19 Kidney Care Challenge](https://www.kidneyx.org/PrizeCompetitions/covid19kidneycarechallenge?utm_source=HHS&utm_medium=web-content&utm_campaign=launch). From a085b4351b9e3ce07226a9e3b7ff5682a557c725 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Fri, 2 Jul 2021 14:21:24 -0400 Subject: [PATCH 58/77] Create socialdeterminants.md --- _pages/resources/socialdeterminants.md | 20 ++++++++++++++++++++ 1 file changed, 20 insertions(+) create mode 100644 _pages/resources/socialdeterminants.md diff --git a/_pages/resources/socialdeterminants.md b/_pages/resources/socialdeterminants.md new file mode 100644 index 0000000..6342a63 --- /dev/null +++ b/_pages/resources/socialdeterminants.md @@ -0,0 +1,20 @@ +--- +title: Social Determinants of Health +layout: page +sidenav: true +--- + +# Social Determinants of Health + +Social Determinants of Health (SdoH) tackles the longest standing and costliest problems in health. We use data-driven and innovation methods to address root causes of health disparities and identify systemic discrimination and poverty related to health population. + +The Drivers of Inequity strategy is focused on achieving health equity by directly tackling the root causes of health disparities by addressing major underlying factors: systemic discrimination and poverty. + +- Medical disparities refer to genetic predispositions, clinical diagnoses, and direct care concerns of an individual or population. +- Health related social needs focus on social and economic factors, including insurance coverage, transportation and similar factors that affect healthcare delivery. +- Interpersonal health factors refer to the social and interpersonal aspects of an individual or groups’ lives that impact health status. +- Structural determinants of health focus on the economic and environmental factors that impact health and health behaviors. + +We harness the power of data to address inequity because data represents the foundation for advancement in meaningful root cause solutions to the Drivers of Equity. We deploy resources to ensure equal opportunity for all Americans. Financing and funding must be directed towards the actual root causes of disparities to sustainably attain equity. We also create a culture of collaboration to share successes. Collaboration and sharing risk and success will engender buy-in that prevents leaving anyone behind. + +Achieving equity comes with an end-to-end consideration of ethics and responsibility. For data and solutions, equity will mean balancing privacy and transparency in a way that puts people first. Ultimately, our goal is to rebuild and repair mistrust in the communities that have been most marginalized. From 15b89a4760f9df8931a6c21be17addfcf7bd0c13 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Fri, 2 Jul 2021 14:25:49 -0400 Subject: [PATCH 59/77] Update about.md --- _pages/about.md | 23 +++++++++-------------- 1 file changed, 9 insertions(+), 14 deletions(-) diff --git a/_pages/about.md b/_pages/about.md index 274fa72..6bef638 100644 --- a/_pages/about.md +++ b/_pages/about.md @@ -1,24 +1,19 @@ --- -title: About OCDO -layout: about -sidenav: false +title: About InnovationX +layout: page +sidenav: true +anchors: + - name: Core Values --- # About Us -The InnovationX team harnesses the power of collaboration, data-driven innovation, human-centered design through our Health+ methodology, and vector-borne diseases such as Lyme. Our work brings together scientists, public health experts, technologists, and designers to leverage emerging technologies to drive better, more equitable health outcomes across America. +InnovationX is a strategic team of innovators at the nexus of public health, environment, medicine, data, and technology. The team harnesses the power of collaboration, data-driven innovation, and human-centered design through Health+ methodology, and vector-borne diseases such as Lyme. Our work brings together scientists, public health experts, technologists, and designers to leverage emerging technologies to drive more equitable health outcomes across America. InnovationX catalyzes innovation for problems affecting trillion-dollar markets. -We are a team of innovators within the U.S. Department of Health and Human Services, Office of the Assistant Secretary for Health (OASH). Our work goes beyond the OASH and can be applied to many parts of HHS. +As the former Office of the Chief Technology Officer, InnovationX has a history of delivering high yield results to make change inside and outside of the U.S. Department of Health and Human Services. Their vision is to create a healthier nation through science and innovation. -If you are interested in working with us or learning more about what we do, contact us at idealab@hhs.gov. +InnovationX partners with all sectors of society to tackle the nation’s most challenging health issues and deliver evidence-based, data-driven solutions. Change in healthcare happens with collaboration, data-driven insights, and human centered design. -## Vision -People first, purpose always: catalyzing healthy futures for all through science-driven innovation. - -## Mission -The mission of InnovationX is to partner with all sectors of society to tackle our nation's most challenging health issues and deliver evidence-based, data-driven solutions. - -## Strategy -Prioritizing people first with human-centered design, InnovationX thinks big with the American people. We enhance the nation's health and well-being with the latest science, emerging technologies, and data-driven, open innovation. Our partnerships drive transformation and scale real-world impact. +For inquiries, contact [innovation@hhs.gov](mailto:innovation@hhs.gov). ## Core Values From 7f3c2636dc2d1b438b412f3b00547a8ecefb60c0 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Tue, 13 Jul 2021 14:54:15 -0400 Subject: [PATCH 60/77] Delete lyme-innovation.md --- _pages/resources/lyme-innovation.md | 201 ---------------------------- 1 file changed, 201 deletions(-) delete mode 100644 _pages/resources/lyme-innovation.md diff --git a/_pages/resources/lyme-innovation.md b/_pages/resources/lyme-innovation.md deleted file mode 100644 index d16db93..0000000 --- a/_pages/resources/lyme-innovation.md +++ /dev/null @@ -1,201 +0,0 @@ ---- -title: Lyme Innovation -layout: page -sidenav: true -anchors: - - name: Purpose - - name: Lyme Innovation: Real-World Impact - - name: LymeX ---- - -# Lyme Innovation - -The HHS Lyme Innovation initiative is a patient-centered, data-driven approach to the serious threat of Lyme disease and other tick-borne illnesses. A recently released estimate based on insurance records suggests that each year approximately [476,000 Americans are diagnosed and treated for Lyme disease](https://www.cdc.gov/lyme/stats/humancases.html). The geographic habitat range of ticks that can transmit pathogens and cause Lyme disease has also [expanded within the United States](https://www.cdc.gov/ncezid/dvbd/pdf/Brochure_National_Framework_VBDs-P.pdf). So is the geographic spread of the disease, which accounts for more than 70% of all vector-borne illnesses in our country. Lyme and other tick-borne conditions cost the U.S. economy billions of dollars annually. - -## Purpose - -HHS's Lyme Innovation initiative sees patients as more than the targets for new prevention, diagnostic, and treatment tools and techniques to address Lyme disease and other tick-borne illnesses. Patients are the driving forces of innovation, and their lived experience is our roadmap. - -Lyme Innovation uses strategic public-private partnerships to accelerate patient-centered advancements in how we address Lyme and other tick-borne diseases. By supporting interdisciplinary collaborations that reflect the initiative's core values, Lyme Innovation will: - -- Build commitment to data-driven, patient-centered innovations that improve outcomes. -- Identify ways to better collect and share data while raising awareness of tick-borne illnesses. -- Accelerate discovery of next-gen diagnostic tools and technologies. -- Lower barriers across all phases of development, testing, and implementation. - -### Core Values - -- RESPECT: Everyone is valued. -- INNOVATION: Shifting paradigms. Finding a better way. -- HONESTY/INTEGRITY: Find the truth. Tell the truth. -- EXCELLENCE: Quality, real-world evidence underlies decision-making. -- COMPASSION: Finding solutions to relieve suffering. -- COLLABORATION: Citizens and patients are equal partners. -- ACCOUNTABILITY: Taking responsibility. - -### Our Approach - -- Create a sense of urgency. -- Attract new leaders to the field. -- Leverage resources from all sectors. -- Attract and unlock external funding and private capital. -- Increase collaboration and stakeholder engagement. -- Improve the customer experience. -- De-risk and expedite commercialization. - -### Goals - -Engage Stakeholders to Facilitate Patient-Centered Innovations - -- Build trust among stakeholders through listening sessions, roundtables, and other learning approaches that ground innovations in lived experience -- Engage stakeholders in identifying current areas of need to promote targeted innovations that will make real-world improvements in quality of care -- Gain insights into patient needs and priorities through stakeholders' collective wisdom, and apply that wisdom in shaping future innovation challenges and events - -Advance Education and Awareness - -- Crowdsource innovative ideas for raising awareness about risks and prevention -- Amplify and improve access to essential information supporting innovations in prevention, education, and care with open data/science -- Foster the development of new, community-based education and prevention efforts through prize challenges and calls to action - -Foster Breakthroughs in Next-Gen Diagnostics - -- Promote innovation through a series of prize challenges that encourage application of cutting-edge technology and user-centered design to advance diagnostic tests and tools -- Increase accuracy of diagnostics at all stages of Lyme disease by accelerating delivery of actionable information to healthcare providers, entrepreneurs, and patients -- Incentivize and reduce risk for development to get new, more accurate diagnostics from lab to market - -### Ways to Get Involved - -Join us in driving the Lyme Innovation initiative forward! We invite you to join the [LymeX Crowdicity community](https://lymex.crowdicity.com/) to engage with others and help deliver transformative innovation to Lyme disease. - -### Blog Posts and Ways to Learn More - -For up-to-date information, statistics, and guidance on Lyme disease and related illnesses, visit the Centers for Disease Control and Prevention's Lyme Disease website. You can also check out these HHS blog posts and materials: - -- [The Lyme Innovation "TOP Health" Teams in 2020](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2020/01/22/lyme-innovation-top-health-teams-2020.html) (January 22, 2020) -- [The Power of Lyme Innovation: One Year of Progress](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/10/21/the-power-of-lyme-innovation-one-year-of-progress.html) (October 21, 2019) -- [Lyme Innovation Roundtable Summary Report - PDF](http://reports.opendataenterprise.org/Lyme%20Innovation%20Roundtable%20Report.pdf) (May 2019) -- [Lyme Innovation Roundtable Highlights and Next Steps](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/04/15/lyme-innovation-roundtable-highlights-and-next-steps.html) (April 15, 2019) -- [Deep Dive on "TOP Health": Data + Technology + Innovation for Lyme disease](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/03/19/deep-dive-top-health-data-technology-innovation-lyme.html) (March 19, 2019) -- ["TOP Health" Tech Sprint Unleashes the Power of Open Data and AI](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/1/17/top-health-tech-sprint-unleashes-the-power-of-open-data-and-ai.html) (January 17, 2019) -- [Lyme Innovation Roundtable](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) (December 19, 2018) -- [The HHS Office of the CTO Announces a "Lyme Innovation" Initiative](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/11/20/the-hhs-office-of-the-cto-announces-a-lyme-innovation-initiative.html) (November 20, 2018) - -## Lyme Innovation: Real-World Impact - -This page documents Lyme Innovation's success story as it continues to unfold. Read on to see how our activities are making a positive real-world impact on Lyme disease and other tick-borne illnesses. Check back often for links to reports, apps, games, blog posts, videos, guides, and other material related to Lyme Innovation's ongoing work. - -### [Early Momentum (2015-2018)](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) - -Technology efforts to address the multifaceted aspects of Lyme disease began to pick up steam in 2015, when patients, entrepreneurs, non-profit leaders, and academics organized a series of Lyme Innovation hackathons and events. These bottom-up efforts created new momentum while welcoming all stakeholders Patients and practitioners worked side-by-side to accelerate innovation in Lyme disease diagnostics, treatment, and information sharing across top-tier universities using open data, open science, open innovation, and open source code. - -Meanwhile, within federal government, the 21st Century Cures Act authorized HHS to establish a [Tick-Borne Disease Working Group](https://www.hhs.gov/ash/advisory-committees/tickbornedisease/index.html) in 2017 (TBDWG). For the first time, the TBDWG brought together federal and public members to review government efforts and scientific research in order to make shared recommendations on how to advance the field. The TBDWG produced its [first report with 28 recommendations to the U.S. Congress and HHS Secretary in 2018. - PDF](https://www.hhs.gov/sites/default/files/tbdwg-report-to-congress-2018.pdf) - -"I want you to know that we, at HHS, hear you. We, at HHS, are listening to your input. We, at HHS, are responding and making Lyme and other tick-borne diseases a priority."— HHS Deputy Secretary Eric Hargan - -In response to the 2018 TBDWG report, HHS launched its Lyme Innovation initiative to help connect the bottom-up community needs and momentum with top-down, federal priorities and resources. Transformative change happens when the bottom-up and top-down meet, as this ensures that federal efforts address real-world needs that matter to Americans and their communities. HHS Lyme Innovation became a confluence for all sectors and stakeholders to come together; it became a tool for participating in, boosting, and supporting patient-centered, data-driven approaches to Lyme disease. The HHS Lyme Innovation initiative augments and amplifies the early momentum of community-based innovation efforts by leveraging federal resources and reach—while seeing patients and citizens as driving forces of practical innovation. - -### [Lyme Innovation Roundtable (December 2018)](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) - -The first-ever [Lyme Innovation Roundtable](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) at HHS convened leaders and experts in government, industry, academia, research, patient advocacy, nonprofits, and philanthropy to harness the power of collaboration, data-driven innovation, and new technologies in addressing tick-borne diseases. Hosted by HHS with external groups across sectors, the event facilitated information-sharing and feedback from stakeholders including patients, advocates, providers, clinicians, researchers, and policy makers. Following the Roundtable, HHS published a [summary report](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/04/15/lyme-innovation-roundtable-highlights-and-next-steps.html) with actionable recommendations for the Lyme disease community. - -### [The Opportunity Project (TOP) Health Tech Sprint (October 2018–January 2019)](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/1/17/top-health-tech-sprint-unleashes-the-power-of-open-data-and-ai.html) - -The [TOP Health tech sprint](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/1/17/top-health-tech-sprint-unleashes-the-power-of-open-data-and-ai.html) gave participants 14 weeks to tackle health-related challenges by applying curated federal data sets and emerging technologies. This sprint pilot showcased how industry teams and innovators of all ages can create new digital tools and real-world value from federal open data. TOP Health Challenge #2 asked, "How can we address Lyme and other tick-borne diseases through emerging technologies by coupling the power of the crowd and patient insights with data?" Teams created digital tools and information-sharing supports for data-driven public health decisions and improvements related to tick-borne disease. The sprint resulted in these tangible innovations: - -[CURA Patient for Lyme Disease (formerly Clyme Health app)](https://curapatient.com/) Artificial intelligence (AI) ecosystem for managing symptoms, customizing treatment plans, and helping patients follow individualized protocols (won the TOP Prize Challenge). -- Using both natural language processing (NLP) and AI-vision technology, CURA Patient helps doctors and patients identify and document symptoms. Its AI-driven virtual assistant helps doctors customize treatment protocols and patients follow their unique treatment plans for complex chronic conditions like Lyme disease. CURA Patient is being piloted at the U.S. Department of Veterans Affairs. - -[Lyme Symptom Tracker app (free)](https://globallymealliance.org/press-releases/global-lyme-alliance-trialx-appbakery-introduced-lyme-symptom-tracker-mobile-app-white-house/) Helps patients track symptoms, securely share with care providers, and find clinical studies. -- Developed by Global Lyme Alliance and TrialX during the HHS TOP Health tech sprint, the app uses patient-centric data in several ways to help with Lyme Disease. It helps patients easily track their daily symptoms and securely share with their healthcare provider. In addition, it uses data platforms to help connect users with relevant and nearby clinical studies. The data collected provides valuable insight into disease trends and statistics. (Available for Android and Apple devices) - -[TickTickBOOM!](https://livlymefoundation.org/education/) Learning game to protect against ticks made by and for middle schoolers. -- The full TickTickBOOM! video game is in development and on track for free, public release in app stores in late 2020. - -[TickTracker app](https://ticktracker.com/) Real-time geolocation tool showing tick distribution to reduce tick exposure. -- Currently, the TickTracker app is available in app stores for free for download. Under development is a version of the app that incorporates first-of-its-kind tick-recognition AI; it is expected to go public with beta testing in late 2020. - -### AI and Open Data: Lyme Innovation at the White House and TOP Demo Day (March 2019) - -TOP Health tech sprint teams [presented outcomes](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/03/19/deep-dive-top-health-data-technology-innovation-lyme.html) at the White House Eisenhower Executive Office at the "Artificial Intelligence and Open Data Innovation for Health" event. The next day, they presented their digital tools on the main stage of TOP Demo Day 2019 at the U.S. Census Bureau. - -### Lyme Innovation at Department of Labor Tech Day (May 2019) - -In partnership with the White House's Office of Science and Technology Policy and Chief Information Officer Council, the Department of Labor hosted its second annual Tech Day in May 2019 with the theme "Unleashing the Digital Workforce," aimed toward understanding how technology can help the federal government do mission-critical work. [Presentations highlighted Lyme Innovation's](https://www.dol.gov/agencies/oasam/centers-offices/ocio/tech-day) leveraging of new technologies, such as use of artificial intelligence in tracking patient symptoms; predictive analytics in forecasting and preparing for outbreaks; and crowdsourcing for timely, effective tick tracking. - -### Lyme Innovation with the Civic Digital Fellows (Summer 2019) - -HHS hosted a cohort of Civic Digital Fellows who worked on projects using data, user experience, emerging technologies, and innovation. The cohort, part of 55 fellows participating in the competitive fellowship program, [contributed to a range of HHS projects, including Lyme Innovation](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/08/08/above-and-beyond-summer-with-the-hhs-civic-digital-fellows.html). At Demo Day in August, cohort members demonstrated how their projects could help improve government through technology, innovation, and design thinking. One project used natural language processing to evaluate written public comments submitted to the TBDWG; another helped develop an acute Lyme disease use-case for the "All Hazards" clinical decision-support software. - -"Lyme is a frustrating and debilitating disease, but it's a problem we can solve." -- Anonymous Lyme patient advocate - -### Lyme Innovation on Capitol Hill (February 2020) and Beyond - -Lyme Innovation is garnering increasingly widespread recognition for fostering cutting-edge solutions and increasing positive outcomes. In February 2020, non-profit organizations honored members of Congress and HHS staff for their strong support of efforts to address Lyme and other tick-borne diseases. Lyme Innovation took center stage, with several of the initiative's leaders receiving awards for outstanding efforts in advancing tools, technologies, and information-sharing resources relevant to these illnesses. - -To accelerate [progress](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/10/21/the-power-of-lyme-innovation-one-year-of-progress.html) and strategically advance tick-borne-disease solutions for Lyme in 2020, HHS and the Steven & Alexandra Cohen Foundation partnered to launch the LymeX Innovation Accelerator (LymeX). This LymeX partnership is designed to supercharge our collective impact. HHS also increased its funding for Lyme and tick-borne diseases, and Lyme Innovation will continue to carry forward the momentum of The Kay Hagan Tick Act (part of the fiscal year 2020 Appropriations Bill) with a focus on collaborative, patient-centered innovation. - -Check back often for updates on how this initiative is making a real-world impact against tick-borne illnesses. - -### Blog Posts and Ways to Learn More - -For the most up-to-date information, statistics, and guidance on Lyme disease and related illnesses, see the Centers for Disease Control and Prevention's [Lyme disease website](https://www.cdc.gov/lyme/index.html). - -These HHS blog posts offer additional information related to the LymeX partnership, which is one part of the broader Lyme Innovation initiative: - -- [Introducing Health+: An Iterative Collaboration Tackling High-Impact Health Issues](https://medium.com/andpartners/health-plus-gov-healthcare-3cf3ef9b992a) (June 17, 2020) -- [The Lyme Innovation "TOP Health" Teams in 2020](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2020/01/22/lyme-innovation-top-health-teams-2020.html) (January 22, 2020) -- [The Power of Lyme Innovation: One Year of Progress](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/10/21/the-power-of-lyme-innovation-one-year-of-progress.html) (October 21, 2019) -- [Lyme Innovation Roundtable Summary Report - PDF](http://reports.opendataenterprise.org/Lyme%20Innovation%20Roundtable%20Report.pdf) (May 2019) -- [Lyme Innovation Roundtable Highlights and Next Steps](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/04/15/lyme-innovation-roundtable-highlights-and-next-steps.html) (April 15, 2019) -- [Deep Dive on "TOP Health": Data + Technology + Innovation for Lyme disease](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/03/19/deep-dive-top-health-data-technology-innovation-lyme.html) (March 19, 2019) -- ["TOP Health" Tech Sprint Unleashes the Power of Open Data and AI](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/1/17/top-health-tech-sprint-unleashes-the-power-of-open-data-and-ai.html) (January 17, 2019) -- [Lyme Innovation Roundtable](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) (December 19, 2018) -- [The HHS Office of the CTO Announces a "Lyme Innovation" Initiative](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/11/20/the-hhs-office-of-the-cto-announces-a-lyme-innovation-initiative.html) (November 20, 2018) - -## LymeX - -Lyme disease and other tick-borne illnesses present an urgent public health challenge. We need all hands on deck for coordinated public health efforts to address the real threat these diseases pose. Developing new and better ways to address these diseases is crucial—but real advancement cannot occur in a vacuum. - -That's why HHS launched the LymeX Innovation Accelerator (LymeX), an innovation partnership with the [Steven & Alexandra Cohen Foundation](https://www.steveandalex.org/). LymeX is modeled after the success and methods of the [KidneyX Innovation Accelerator](https://www.hhs.gov/cto/initiatives/kidneyx/index.html), a partnership between HHS and the American Society of Nephrology that includes kidney-care patients in every step of its innovation process. - -### Mission - -LymeX will accelerate [Lyme Innovation progress](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/10/21/the-power-of-lyme-innovation-one-year-of-progress.html) and strategically advance tick-borne-disease solutions in direct collaboration with Lyme patients, patient advocates, and diverse stakeholders across academia, nonprofits, industry, and government. - -### Goals - -Engage Stakeholders to Facilitate Patient-Centered Innovations - -By including patients and stakeholders in every step of identifying, developing, and implementing advancements in Lyme disease care, LymeX fosters innovations that can deliver transformative impact on patients' quality of life. LymeX is exploring how collaborative partnership models can best support stakeholder engagement. For example, the [Health+](https://www.hhs.gov/cto/initiatives/digital-services/health-plus/index.html) approach pinpoints challenges from the patient's point of view to identify and map development of new tools and technological solutions. - -In close collaboration with stakeholders, LymeX aims to: - -- Build capacity for effective, efficient communication among patients, stakeholders, and HHS -- Identify common challenges in patient and healthcare provider experiences -- Hold a roundtable to outline possible improvements and solutions -- Make plans for quickly developing and testing solution prototypes - -Foster Breakthroughs in Education and Awareness - -LymeX supports innovative health education and public awareness initiatives that focus on tick-borne disease prevention and help clinicians, patients, and caregivers benefit from the latest scientific findings. - -Accelerate Development of Next-Gen Diagnostics - -LymeX prize challenges encourage rapid, cross-sector, patient-centered diagnostic innovations. These challenges will drive creators, industries, and academia toward breakthroughs in more accurate Lyme diagnosis, helping make next-gen diagnostics available more quickly. - -### Blog Posts and Ways to Learn More - -For the most up-to-date information, statistics, and guidance on Lyme disease and related illnesses, see the Centers for Disease Control and Prevention's [Lyme disease website](https://www.cdc.gov/lyme/index.html). - -These HHS blog posts offer additional information related to the LymeX partnership, a part of the broader Lyme Innovation initiative: - -- [Introducing Health+: An Iterative Collaboration Tackling High-Impact Health Issues](https://medium.com/andpartners/health-plus-gov-healthcare-3cf3ef9b992a) (June 17, 2020) -- [The Lyme Innovation "TOP Health" Teams in 2020](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2020/01/22/lyme-innovation-top-health-teams-2020.html) (January 22, 2020) -- [The Power of Lyme Innovation: One Year of Progress](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/10/21/the-power-of-lyme-innovation-one-year-of-progress.html) (October 21, 2019) -- [Lyme Innovation Roundtable Summary Report - PDF](http://reports.opendataenterprise.org/Lyme%20Innovation%20Roundtable%20Report.pdf) (May 2019) -- [Lyme Innovation Roundtable Highlights and Next Steps](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/04/15/lyme-innovation-roundtable-highlights-and-next-steps.html) (April 15, 2019) -- [Deep Dive on "TOP Health": Data + Technology + Innovation for Lyme disease](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/03/19/deep-dive-top-health-data-technology-innovation-lyme.html) (March 19, 2019) -- ["TOP Health" Tech Sprint Unleashes the Power of Open Data and AI](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2019/1/17/top-health-tech-sprint-unleashes-the-power-of-open-data-and-ai.html) (January 17, 2019) -- [Lyme Innovation Roundtable](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) (December 19, 2018) -- [The HHS Office of the CTO Announces a "Lyme Innovation" Initiative](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/11/20/the-hhs-office-of-the-cto-announces-a-lyme-innovation-initiative.html) (November 20, 2018) From 72abc4c75cf94347ab401d16ce6e3309d6356a10 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Tue, 13 Jul 2021 14:54:59 -0400 Subject: [PATCH 61/77] Delete lyme-innovation2.md --- _pages/resources/lyme-innovation2.md | 24 ------------------------ 1 file changed, 24 deletions(-) delete mode 100644 _pages/resources/lyme-innovation2.md diff --git a/_pages/resources/lyme-innovation2.md b/_pages/resources/lyme-innovation2.md deleted file mode 100644 index 5971104..0000000 --- a/_pages/resources/lyme-innovation2.md +++ /dev/null @@ -1,24 +0,0 @@ ---- -title: Lyme Innovation -layout: page -sidenav: true -anchors: - - name: Purpose - - name: Lyme Innovation: Real-World Impact - - name: LymeX ---- - -# Lyme Innovation - -The HHS Lyme Innovation initiative is a patient-centered, data-driven approach to the serious threat of Lyme disease and other tick-borne illnesses. A recently released estimate based on insurance records suggests that each year approximately [476,000 Americans are diagnosed and treated for Lyme disease](https://www.cdc.gov/lyme/stats/humancases.html). The geographic habitat range of ticks that can transmit pathogens and cause Lyme disease has also [expanded within the United States](https://www.cdc.gov/ncezid/dvbd/pdf/Brochure_National_Framework_VBDs-P.pdf). So is the geographic spread of the disease, which accounts for more than 70% of all vector-borne illnesses in our country. Lyme and other tick-borne conditions cost the U.S. economy billions of dollars annually. - -## Purpose - -HHS's Lyme Innovation initiative sees patients as more than the targets for new prevention, diagnostic, and treatment tools and techniques to address Lyme disease and other tick-borne illnesses. Patients are the driving forces of innovation, and their lived experience is our roadmap. - -Lyme Innovation uses strategic public-private partnerships to accelerate patient-centered advancements in how we address Lyme and other tick-borne diseases. By supporting interdisciplinary collaborations that reflect the initiative's core values, Lyme Innovation will: - -- Build commitment to data-driven, patient-centered innovations that improve outcomes. -- Identify ways to better collect and share data while raising awareness of tick-borne illnesses. -- Accelerate discovery of next-gen diagnostic tools and technologies. -- Lower barriers across all phases of development, testing, and implementation. From 5ba4b7304e5db95efb1ec81d4a0b330ad0d9d7f2 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Tue, 13 Jul 2021 15:20:44 -0400 Subject: [PATCH 62/77] Update socialdeterminants.md --- _pages/resources/socialdeterminants.md | 4 ++-- 1 file changed, 2 insertions(+), 2 deletions(-) diff --git a/_pages/resources/socialdeterminants.md b/_pages/resources/socialdeterminants.md index 6342a63..ee944fe 100644 --- a/_pages/resources/socialdeterminants.md +++ b/_pages/resources/socialdeterminants.md @@ -1,10 +1,10 @@ --- -title: Social Determinants of Health +title: Drivers of Inequity layout: page sidenav: true --- -# Social Determinants of Health +# Drivers of Inequity Social Determinants of Health (SdoH) tackles the longest standing and costliest problems in health. We use data-driven and innovation methods to address root causes of health disparities and identify systemic discrimination and poverty related to health population. From ae8ad396cf34e6124ddb32e946bffba09375fbee Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Tue, 13 Jul 2021 15:23:52 -0400 Subject: [PATCH 63/77] Create lymex.md --- _pages/resources/lymex.md | 20 ++++++++++++++++++++ 1 file changed, 20 insertions(+) create mode 100644 _pages/resources/lymex.md diff --git a/_pages/resources/lymex.md b/_pages/resources/lymex.md new file mode 100644 index 0000000..be681f7 --- /dev/null +++ b/_pages/resources/lymex.md @@ -0,0 +1,20 @@ +--- +title: Lyme Innovation and LymeX Innovation Accelerator +layout: page +sidenav: true +--- + +# Lyme Innovation and LymeX Innovation Accelerator + +Social Determinants of Health (SdoH) tackles the longest standing and costliest problems in health. We use data-driven and innovation methods to address root causes of health disparities and identify systemic discrimination and poverty related to health population. + +The Drivers of Inequity strategy is focused on achieving health equity by directly tackling the root causes of health disparities by addressing major underlying factors: systemic discrimination and poverty. + +- Medical disparities refer to genetic predispositions, clinical diagnoses, and direct care concerns of an individual or population. +- Health related social needs focus on social and economic factors, including insurance coverage, transportation and similar factors that affect healthcare delivery. +- Interpersonal health factors refer to the social and interpersonal aspects of an individual or groups’ lives that impact health status. +- Structural determinants of health focus on the economic and environmental factors that impact health and health behaviors. + +We harness the power of data to address inequity because data represents the foundation for advancement in meaningful root cause solutions to the Drivers of Equity. We deploy resources to ensure equal opportunity for all Americans. Financing and funding must be directed towards the actual root causes of disparities to sustainably attain equity. We also create a culture of collaboration to share successes. Collaboration and sharing risk and success will engender buy-in that prevents leaving anyone behind. + +Achieving equity comes with an end-to-end consideration of ethics and responsibility. For data and solutions, equity will mean balancing privacy and transparency in a way that puts people first. Ultimately, our goal is to rebuild and repair mistrust in the communities that have been most marginalized. From 6aca507231ba74c07ebcffe3dc2215104ccc21c0 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Tue, 13 Jul 2021 15:25:54 -0400 Subject: [PATCH 64/77] Create covid19.md --- _pages/resources/covid19.md | 20 ++++++++++++++++++++ 1 file changed, 20 insertions(+) create mode 100644 _pages/resources/covid19.md diff --git a/_pages/resources/covid19.md b/_pages/resources/covid19.md new file mode 100644 index 0000000..874a957 --- /dev/null +++ b/_pages/resources/covid19.md @@ -0,0 +1,20 @@ +--- +title: COVID-19 Data-Driven Innovation +layout: page +sidenav: true +--- + +# COVID-19 Data-Driven Innovation + +Social Determinants of Health (SdoH) tackles the longest standing and costliest problems in health. We use data-driven and innovation methods to address root causes of health disparities and identify systemic discrimination and poverty related to health population. + +The Drivers of Inequity strategy is focused on achieving health equity by directly tackling the root causes of health disparities by addressing major underlying factors: systemic discrimination and poverty. + +- Medical disparities refer to genetic predispositions, clinical diagnoses, and direct care concerns of an individual or population. +- Health related social needs focus on social and economic factors, including insurance coverage, transportation and similar factors that affect healthcare delivery. +- Interpersonal health factors refer to the social and interpersonal aspects of an individual or groups’ lives that impact health status. +- Structural determinants of health focus on the economic and environmental factors that impact health and health behaviors. + +We harness the power of data to address inequity because data represents the foundation for advancement in meaningful root cause solutions to the Drivers of Equity. We deploy resources to ensure equal opportunity for all Americans. Financing and funding must be directed towards the actual root causes of disparities to sustainably attain equity. We also create a culture of collaboration to share successes. Collaboration and sharing risk and success will engender buy-in that prevents leaving anyone behind. + +Achieving equity comes with an end-to-end consideration of ethics and responsibility. For data and solutions, equity will mean balancing privacy and transparency in a way that puts people first. Ultimately, our goal is to rebuild and repair mistrust in the communities that have been most marginalized. From 9bf766763b7e1b332459dded37d065acdc47161c Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Tue, 13 Jul 2021 15:26:44 -0400 Subject: [PATCH 65/77] Delete covid-19-data-driven-innovation.md --- .../covid-19-data-driven-innovation.md | 150 ------------------ 1 file changed, 150 deletions(-) delete mode 100644 _pages/resources/covid-19-data-driven-innovation.md diff --git a/_pages/resources/covid-19-data-driven-innovation.md b/_pages/resources/covid-19-data-driven-innovation.md deleted file mode 100644 index cdec7a6..0000000 --- a/_pages/resources/covid-19-data-driven-innovation.md +++ /dev/null @@ -1,150 +0,0 @@ ---- -title: COVID-19 Data-Driven Innovation -layout: page -sidenav: true -anchors: - - name: COVID-19 TOPx Sprint - - name: COVID-19 Diagnostics Design-a-thon - - name: COVID-19 Open Data Roundtables ---- - - -# COVID-19 Data-Driven Innovation - -Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance. - -COVID-19 data-driven innovation uses novel methods and collaboration to accelerate scientific and public health insights to ultimately shorten the time it takes for COVID-19 information and solutions to save lives. This HHS initiative is co-led by the [Office of the Assistant Secretary for Health](https://www.hhs.gov/ash/index.html) and the Office of the Chief Data Officer. Collaboratively, we are creating crosscutting impact and real-world value from a data-driven ecosystem during one of the most challenging public health crises of our lifetimes. By opening COVID-19 datasets on [HealthData.gov](https://healthdata.gov/) and applying proven innovation methods like [Health+ (“health plus”)](https://www.hhs.gov/cto/initiatives/digital-services/health-plus/index.html), our COVID-19 innovation success will be measured by patient outcomes, social equity, economic recovery, and how HHS improves the lives of all Americans touched by the novel coronavirus. - -COVID-19 is a multi-faceted challenge and we are employing numerous innovative practices to address the crisis. Over [200 COVID-19 datasets](https://healthdata.gov/search/og_group_ref/286/type/dataset?query=covid-19&sort_by=changed&sort_order=DESC) on HealthData.gov serve as the fuel for much of our HHS innovation, including the: - -1. COVID-19 At-Anywhere Diagnostics “Design-a thon” - A virtual innovation sprint with 750 problem solvers who produced over 30 capstone projects and [16 winning Design-a-thon teams](https://www.hhs.gov/about/news/2020/12/16/winners-of-hhs-design-a-thon-to-develop-innovative-digital-health-tools-for-covid-19.html) to capture COVID-19 diagnostic data and report key elements to inform a data-driven pandemic response. - -2. COVID-19 TOPx Technology Sprint – A fast-paced, two-month build cycle using the “TOPx Toolkit” created by the U.S. Census Bureau with 14 industry-led teams to further develop COVID-19 diagnostic reporting tools and accelerate the public use of these tools, making it easier for individuals and organizations to safely report positive/negative test results. - -3. COVID-19 Open Data Roundtables – Hands on, structured workshops that improve accessibility and data sharing for public health and the public good, bringing together community, state and federal government leaders, the private sector, non-profits, research, and academia. - -These innovation methods succeed because of participation from diverse stakeholders across multiple sectors: industry, academia, non-profit organizations, all levels of government, and individual entrepreneurs and problem solvers. Together, through COVID-19 data-driven innovation, we are saving and improving American lives. Please join our solver community by creating a profile on our open-innovation, crowdsourcing platform: [waters.crowdicity.com](https://waters.crowdicity.com/). - -### Blog Posts and Ways to Learn More - -- [COVID-19 TOPx Tech Sprint Begins with Design-a-thon Teams — Join us! –](https://healthdata.gov/blog/covid-19-topx-tech-sprint-begins-design-thon-teams-%E2%80%94-join-us) Blog to launch the “COVID-19 TOPx” technology sprint to continue momentum and further develop digital health tools to capture, harmonize, and securely transmit key data elements from at-anywhere COVID-19 diagnostic tests. -- [COVID-19 Open Data – Our Data is Your Data –](https://healthdata.gov/blog/covid-19-open-data-%E2%80%93-our-data-your-data) Blog to announce the publication of the Community Profile Report on the HHS website. -- [COVID-19 is Complex, as is COVID-19 Open Data –](https://healthdata.gov/hhs-publishes-covid-19-hospital-facility-level-data) Blog to announce that HHS began publishing COVID-19 hospital data at the facility level for each week, going back to August 1st 2020. -- [Waters.Crowdicity.com –](https://waters.crowdicity.com/) an open-innovation crowdsourcing platform for sharing data-driven innovations to combat COVID-19 - -## COVID-19 TOPx Sprint - -Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance. - -The COVID-19 pandemic has rapidly changed the way we live. Data and data standards are essential for an effective U.S. response, but only if data are used and standards are widely adopted by all sectors. With COVID-19 TOPx, HHS is collaborating with industry-led teams to transform HHS open data and data standards into digital tools with practical real-world applications. - -### What is The Opportunity Project (TOP)? - -- [The Opportunity Project](https://opportunity.census.gov/) is a collaboration process developed by the White House in 2016 to speed up innovation fueled by government open data. Since then, the U.S. Census Bureau has scaled the program to different government agencies, working with thousands of participants to create over 100 digital products. TOP is a proven innovation model, typically a 12- to 14-week technology sprint with industry, which government can leverage alongside open data to catalyze new technologies. -- Iterate with user-centered, agile build cycles. -- Launch a new digital tool (or build new functionality for an existing tool). - -Each year, the U.S. Census Bureau hosts the annual [TOP Demo Day](https://opportunity.census.gov/our-process/) to showcase digital tools developed through TOP sprints. At Demo Day, the press, data enthusiasts, technologists, government leaders, and others gather to celebrate the launch of products built that year. - -### What is a TOPx Sprint? - -In late 2020, the U.S. Census Bureau published its [TOPx Toolkit](https://opportunity.census.gov/topx-toolkit/introduction/) with how-to instructions for agencies to run their own TOP-like sprints, called “TOPx” sprints. They bring together technologists, government, and communities to rapidly prototype digital products—powered by [U.S. open data](https://www.data.gov/)—that solve real-world problems. The TOPx model gives federal agencies a framework for collaborating with industry and non-government organizations using government open data to: - -- Address mission-critical priorities with data and technology innovation -- Recruit cross-sector participants and strengthen collaborative networks -- Facilitate a virtual technology development sprint on a flexible and modifiable timeline -- Showcase outcomes and new digital tools at TOP or TOPx Demo Days - -### HHS InnovationX Pioneers the First-Ever COVID-19 TOPx Sprint - -Innovation necessitates trying new things, and the InnovationX team has introduced HHS to TOP and TOPx sprints. The first-ever HHS TOPx sprint, launched in January 2021, focused on COVID-19. Fourteen industry-led teams participated in this COVID-19 TOPx sprint with the goal to develop digital health tools to capture, harmonize, and securely transmit key data elements from at-anywhere COVID-19 diagnostic tests. Participating TOPx teams won the [COVID-19 At-Anywhere Diagnostics Design-a-thon](https://www.hhs.gov/coronavirus/covid-19-at-anywhere-diagnostics-design-a-thon/index.html) (innovation sprint) with HHS in late 2020. - -This first [COVID-19 TOPx sprint](https://waters.crowdicity.com/) used a condensed 8-week build cycle, compared to the usual 12- to 14-week TOP length. This abbreviated timeline reflects the urgency of today’s COVID-19 pandemic — people need COVID-19 solutions now. - -The COVID-19 TOPx sprint occurred in the open with all meetings and demos open to the public through waters.crowdicity.com, a crowdsourcing platform for interactive ideas exchange. This made the COVID-19 TOPx process visible, transparent, and accessible to all. - -During the TOPx sprint, HHS policy experts and data stewards provide feedback to the participating teams led by industry, academia, and non-government organizations. As with TOP sprints, all TOPx sprints must use government open data and agile methods to ship tangible, real-world digital tools by the end of the collaboration. Below is a typical process and timeline: - -- Develop TOPx problem statement(s) and identify relevant open datasets -- Recruit sprint participants -- Facilitate an 8- to 14-week technology development sprint - - Organize and facilitate milestone calls (User Research, Data Discovery, Alpha Demo, Beta Demo, Final Demo) - - Provide insight related to the agency’s policy and operational areas - - Answer questions about finding and using the agency’s public data - - Provide feedback on the products being developed -- Host an (optional) in-person event during which products are launched and showcased -- Participate in the annual TOP Demo Day, hosted by the U.S. Census Bureau. - -The InnovationX team is currently developing the HHS TOPx Toolkit, including HHS case studies and how-to methods using [HealthData.gov](https://healthdata.gov/). This will provide innovation support and an HHS-specific playbook for the 80,000+ HHS employees across 11 Operating Divisions and over 15 Staff Divisions that may wish to use TOP or TOPx methods to advance their priorities and mission. - -### Blog Posts and Ways to Learn More - -- [COVID-19 TOPx Tech Sprint Begins with Design-a-thon Teams — Join us! –](https://healthdata.gov/blog/covid-19-topx-tech-sprint-begins-design-thon-teams-%E2%80%94-join-us) Blog to launch the “COVID-19 TOPx” technology sprint to continue momentum and further develop digital health tools to capture, harmonize, and securely transmit key data elements from at-anywhere COVID-19 diagnostic tests. - -- [Waters.Crowdicity.com –](https://waters.crowdicity.com/) an open-innovation crowdsourcing platform for sharing data-driven innovations to combat COVID-19 - -## COVID-19 Diagnostics Design-a-thon - -Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance. - -We brought together innovative private-sector tech teams and data-driven public sector leaders to address one of our most difficult problems using federal open data standards — diagnosing COVID-19 infections. - -### What is a Design-a-thon? - -A public-facing, open-innovation sprint that connects industry with the U.S. government. Teams work quickly to design software that can be scaled to address a public health need. - -The [COVID-19 At-Anywhere Diagnostics Design-a-thon](https://www.hhs.gov/about/news/2020/12/16/winners-of-hhs-design-a-thon-to-develop-innovative-digital-health-tools-for-covid-19.html) issued a call-to-action for American industry and the public to unleash the power of open innovation to develop digital solutions for COVID-19 data capture, harmonization, and reporting from diagnostic tests. HHS crowdsourced ideas from teams that proposed solutions through the [Waters.Crowdicity.com –](https://waters.crowdicity.com/) platform. This [“open innovation”](https://www.hhs.gov/cto/initiatives/open-innovation/about/index.html) platform enabled Design-a-thon teams to form, exchange ideas, and submit “Capstone Projects” built with HHS open data, open source code, and open science. - -### What are outcomes of the COVID-19 At-Anywhere Diagnostics Design-a-thon? - -The Design-a-thon brought together software developers, designers, and engineers with in vitro diagnostic device developers and COVID-19 subject matter experts to build software and digital tools that are directly integrated with COVID-19 tests. Over 750 problem solvers and innovators participated. Collectively, participants formed Design-a-thon teams and submitted over 30 “Capstone Projects” with capabilities to alleviate data collection and reporting burdens for patients, providers, anyone administering/using tests, or labs through which data is routed. These digital capabilities included automated and semi-automated digital tools for reporting COVID-19 results from at-home, non-prescription, and over-the-counter tests on the market now. Judges invited 16 winners to participate in the TOPx tech sprint. - -### What is WATERS? - -During the Design-a-thon, HHS built and launched a “Wireless Automated Transmission for Electronic Reporting Systems” or WATERS to ingest data feeds from many COVID-19 apps and digital tools, including those built by TOPx teams. WATERS provides digital infrastructure for government to securely receive, harmonize, and transmit data from diagnostic device apps, Laboratory Information Management Systems and other entities sending COVID-19 diagnostic data. - -A key function of WATERS is “optionality” – the ability to support disparate, complex systems to accommodate current and changing needs. We are ensuring that hospitals, nursing homes, and other healthcare providers have the options to use apps that suit their specific needs and reporting requirements. Such optionality will alleviate data collection and reporting burdens for patients, providers, anyone administering/using tests, labs through which data is routed, since the users can continue using their preferred app(s) and tool(s) for WATERS to ingest. -Visit [Waters.Crowdicity.com –](https://waters.crowdicity.com/) to learn more about the COVID-19 At-Anywhere Design-a-thon along with upcoming events. - -### Blog Posts and Ways to Learn More -[Waters.Crowdicity.com –](https://waters.crowdicity.com/) an open-innovation crowdsourcing platform for sharing data-driven innovations to combat COVID-19 - -## COVID-19 Open Data Roundtables - -Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance. - -Open Data Roundtables are unique convenings that bring together data providers and their data users to help identify high-value datasets, find action-oriented solutions to data problems, catalyze research on emerging data issues, and establish new collaborations. They connect experts from government, nonprofits and NGOs, academia, and the private sector who may never have met before but who share common goals and interests. - -### What is the history of Open Data Roundtables? - -Open Data Roundtables held by the White House and numerous federal agencies have focused on topics including medical research and health care, transportation, energy and the environment, and the federal data strategy. A Roundtable can cover the use of an individual agency’s data, cross-cutting topics and issues that involve multiple agencies, or federal data policy across the government. Open Data Roundtables often involve participants from state and local governments to address how their data programs can best work together with federal programs. - -Since 2018, HHS has held seven Open Data Roundtables on a wide range of topics. The HHS Office of the CTO co-hosted these Roundtables with the nonprofit Center for Open Data Enterprise (CODE), which developed the methodology for working with federal agencies to hold these events. - -### When is the next Open Data Roundtable? - -HHS is now exploring a potential COVID-19 Open Data Roundtable as well as other efforts to engage stakeholders in addressing the pandemic. More information will be made available on this webpage. - -Previous HHS Roundtables include: - -- [Roundtable on Data Sharing Policies, Data-Driven Solutions, and the Opioid Crisis](http://reports.opendataenterprise.org/HHS-Opioid-Roundtable-Report.pdf) -July 2018 - -- [Lyme Innovation Roundtable](http://reports.opendataenterprise.org/Lyme%20Innovation%20Roundtable%20Report.pdf) -December 2018 - -- [Roundtable on Sharing and Utilizing Health Data for AI Applications](https://healthdatasharing.org/wp-content/uploads/2020/07/RT1-AI-Summary-Report-FINAL-2020.07.28.pdf) -April 2019 - -- [Roundtable on Balancing Privacy with Health Data Access](https://healthdatasharing.org/wp-content/uploads/2020/07/RT2-Privacy-Summary-Report-FINAL-2020.07.28.pdf) -July 2019 - -- [Roundtable on Leveraging Data on the Social Determinants of Health](https://healthdatasharing.org/wp-content/uploads/2020/07/RT3-SDOH-Summary-Report-FINAL-2020.07.28.pdf) -October 2019 - -- [Roundtable on Leveraging Data to Address Sickle Cell Disease](http://reports.opendataenterprise.org/SCD-Report-FINAL.pdf) -June 2020 - -- [Roundtable on Using SDOH Data to Fight COVID-19 and Support Recovery Efforts](https://healthdatasharing.org/wp-content/uploads/2020/12/COVID-SDOH-Summary-Report-Final.pdf) -August 2020 - From 0c415c48b6164974e214dbc9fac402bd7458244d Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Tue, 13 Jul 2021 15:27:15 -0400 Subject: [PATCH 66/77] Delete covid19innovation.md --- _pages/resources/covid19innovation.md | 138 -------------------------- 1 file changed, 138 deletions(-) delete mode 100644 _pages/resources/covid19innovation.md diff --git a/_pages/resources/covid19innovation.md b/_pages/resources/covid19innovation.md deleted file mode 100644 index bcb4db3..0000000 --- a/_pages/resources/covid19innovation.md +++ /dev/null @@ -1,138 +0,0 @@ ---- -title: COVID-19 Data-Driven Innovation -layout: page -sidenav: true -anchors: - - name: COVID-19 TOPx Sprint - - name: COVID-19 Diagnostics Design-a-thon - - name: COVID-19 Open Data Roundtables ---- - -# COVID-19 Data-Driven Innovation - -Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance. - -COVID-19 data-driven innovation uses novel methods and collaboration to accelerate scientific and public health insights to ultimately shorten the time it takes for COVID-19 information and solutions to save lives.
-This HHS initiative is co-led by the [Office of the Assistant Secretary for Health](https://www.hhs.gov/ash/index.html) and the Office of the Chief Data Officer. Collaboratively, we are creating crosscutting impact and real-world value from a data-driven ecosystem during one of the most challenging public health crises of our lifetimes. By opening COVID-19 datasets on [HealthData.gov](https://healthdata.gov/) and applying proven innovation methods like [Health+ (“health plus”)](https://www.hhs.gov/cto/initiatives/digital-services/health-plus/index.html), our COVID-19 innovation success will be measured by patient outcomes, social equity, economic recovery, and how HHS improves the lives of all Americans touched by the novel coronavirus. - -COVID-19 is a multi-faceted challenge and we are employing numerous innovative practices to address the crisis. Over [200 COVID-19 datasets](https://healthdata.gov/search/og_group_ref/286/type/dataset?query=covid-19&sort_by=changed&sort_order=DESC) on HealthData.gov serve as the fuel for much of our HHS innovation, including the: - -- COVID-19 At-Anywhere Diagnostics “Design-a thon” - A virtual innovation sprint with 750 problem solvers who produced over 30 capstone projects and [16 winning Design-a-thon teams](https://www.hhs.gov/about/news/2020/12/16/winners-of-hhs-design-a-thon-to-develop-innovative-digital-health-tools-for-covid-19.html) to capture COVID-19 diagnostic data and report key elements to inform a data-driven pandemic response. - -- COVID-19 TOPx Technology Sprint – A fast-paced, two-month build cycle using the “TOPx Toolkit” created by the U.S. Census Bureau with 14 industry-led teams to further develop COVID-19 diagnostic reporting tools and accelerate the public use of these tools, making it easier for individuals and organizations to safely report positive/negative test results. - -- COVID-19 Open Data Roundtables – Hands on, structured workshops that improve accessibility and data sharing for public health and the public good, bringing together community, state and federal government leaders, the private sector, non-profits, research, and academia. - -Together, through COVID-19 data-driven innovation, we are saving and improving American lives. Please join our solver community by creating a profile on our open-innovation, crowdsourcing platform: [waters.crowdicity.com](https://waters.crowdicity.com/). -
-The COVID-19 pandemic has rapidly changed the way we live. Data and data standards are essential for an effective U.S. response, but only if data are used and standards are widely adopted by all sectors. With COVID-19 TOPx, HHS is collaborating with industry-led teams to transform HHS open data and data standards into digital tools with practical real-world applications. - -## COVID-19 TOPx Sprint - -The COVID-19 pandemic has rapidly changed the way we live. Data and data standards are essential for an effective U.S. response, but only if data are used and standards are widely adopted by all sectors. With COVID-19 TOPx, HHS is collaborating with industry-led teams to transform HHS open data and data standards into digital tools with practical real-world applications. - -### What is The Opportunity Project (TOP)? - -- [The Opportunity Project](https://opportunity.census.gov/) is a collaboration process developed by the White House in 2016 to speed up innovation fueled by government open data. Since then, the U.S. Census Bureau has scaled the program to different government agencies, working with thousands of participants to create over 100 digital products. TOP is a proven innovation model, typically a 12- to 14-week technology sprint with industry, which government can leverage alongside open data to catalyze new technologies. -- Iterate with user-centered, agile build cycles. -- Launch a new digital tool (or build new functionality for an existing tool). - -Each year, the U.S. Census Bureau hosts the annual [TOP Demo Day](https://opportunity.census.gov/our-process/) to showcase digital tools developed through TOP sprints. At Demo Day, the press, data enthusiasts, technologists, government leaders, and others gather to celebrate the launch of products built that year. - -### What is a TOPx Sprint? - -In late 2020, the U.S. Census Bureau published its [TOPx Toolkit](https://opportunity.census.gov/topx-toolkit/introduction/) with how-to instructions for agencies to run their own TOP-like sprints, called “TOPx” sprints. They bring together technologists, government, and communities to rapidly prototype digital products—powered by [U.S. open data](https://www.data.gov/)—that solve real-world problems. The TOPx model gives federal agencies a framework for collaborating with industry and non-government organizations using government open data to: - -- Address mission-critical priorities with data and technology innovation -- Recruit cross-sector participants and strengthen collaborative networks -- Facilitate a virtual technology development sprint on a flexible and modifiable timeline -- Showcase outcomes and new digital tools at TOP or TOPx Demo Days - -### HHS InnovationX Pioneers the First-Ever COVID-19 TOPx Sprint - -Innovation necessitates trying new things, and the InnovationX team has introduced HHS to TOP and TOPx sprints. The first-ever HHS TOPx sprint, launched in January 2021, focused on COVID-19. Fourteen industry-led teams participated in this COVID-19 TOPx sprint with the goal to develop digital health tools to capture, harmonize, and securely transmit key data elements from at-anywhere COVID-19 diagnostic tests. Participating TOPx teams won the [COVID-19 At-Anywhere Diagnostics Design-a-thon](https://www.hhs.gov/coronavirus/covid-19-at-anywhere-diagnostics-design-a-thon/index.html) (innovation sprint) with HHS in late 2020. - -This first [COVID-19 TOPx sprint](https://waters.crowdicity.com/) used a condensed 8-week build cycle, compared to the usual 12- to 14-week TOP length. This abbreviated timeline reflects the urgency of today’s COVID-19 pandemic — people need COVID-19 solutions now. - -The COVID-19 TOPx sprint occurred in the open with all meetings and demos open to the public through waters.crowdicity.com, a crowdsourcing platform for interactive ideas exchange. This made the COVID-19 TOPx process visible, transparent, and accessible to all. - -During the TOPx sprint, HHS policy experts and data stewards provide feedback to the participating teams led by industry, academia, and non-government organizations. As with TOP sprints, all TOPx sprints must use government open data and agile methods to ship tangible, real-world digital tools by the end of the collaboration. Below is a typical process and timeline: - -- Develop TOPx problem statement(s) and identify relevant open datasets -- Recruit sprint participants -- Facilitate an 8- to 14-week technology development sprint - - Organize and facilitate milestone calls (User Research, Data Discovery, Alpha Demo, Beta Demo, Final Demo) - - Provide insight related to the agency’s policy and operational areas - - Answer questions about finding and using the agency’s public data - - Provide feedback on the products being developed -- Host an (optional) in-person event during which products are launched and showcased -- Participate in the annual TOP Demo Day, hosted by the U.S. Census Bureau. - -The InnovationX team is currently developing the HHS TOPx Toolkit, including HHS case studies and how-to methods using [HealthData.gov](https://healthdata.gov/). This will provide innovation support and an HHS-specific playbook for the 80,000+ HHS employees across 11 Operating Divisions and over 15 Staff Divisions that may wish to use TOP or TOPx methods to advance their priorities and mission. - -- [Waters.Crowdicity.com –](https://waters.crowdicity.com/) an open-innovation crowdsourcing platform for sharing data-driven innovations to combat COVID-19 - -## COVID-19 Diagnostics Design-a-thon - -Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance. - -We brought together innovative private-sector tech teams and data-driven public sector leaders to address one of our most difficult problems using federal open data standards — diagnosing COVID-19 infections. - -### What is a Design-a-thon? - -A public-facing, open-innovation sprint that connects industry with the U.S. government. Teams work quickly to design software that can be scaled to address a public health need. - -The [COVID-19 At-Anywhere Diagnostics Design-a-thon](https://www.hhs.gov/about/news/2020/12/16/winners-of-hhs-design-a-thon-to-develop-innovative-digital-health-tools-for-covid-19.html) issued a call-to-action for American industry and the public to unleash the power of open innovation to develop digital solutions for COVID-19 data capture, harmonization, and reporting from diagnostic tests. HHS crowdsourced ideas from teams that proposed solutions through the [Waters.Crowdicity.com –](https://waters.crowdicity.com/) platform. This [“open innovation”](https://www.hhs.gov/cto/initiatives/open-innovation/about/index.html) platform enabled Design-a-thon teams to form, exchange ideas, and submit “Capstone Projects” built with HHS open data, open source code, and open science. - -### What are outcomes of the COVID-19 At-Anywhere Diagnostics Design-a-thon? - -The Design-a-thon brought together software developers, designers, and engineers with in vitro diagnostic device developers and COVID-19 subject matter experts to build software and digital tools that are directly integrated with COVID-19 tests. Over 750 problem solvers and innovators participated. Collectively, participants formed Design-a-thon teams and submitted over 30 “Capstone Projects” with capabilities to alleviate data collection and reporting burdens for patients, providers, anyone administering/using tests, or labs through which data is routed. These digital capabilities included automated and semi-automated digital tools for reporting COVID-19 results from at-home, non-prescription, and over-the-counter tests on the market now. Judges invited 16 winners to participate in the TOPx tech sprint. - -### What is WATERS? - -During the Design-a-thon, HHS built and launched a “Wireless Automated Transmission for Electronic Reporting Systems” or WATERS to ingest data feeds from many COVID-19 apps and digital tools, including those built by TOPx teams. WATERS provides digital infrastructure for government to securely receive, harmonize, and transmit data from diagnostic device apps, Laboratory Information Management Systems and other entities sending COVID-19 diagnostic data. - -A key function of WATERS is “optionality” – the ability to support disparate, complex systems to accommodate current and changing needs. We are ensuring that hospitals, nursing homes, and other healthcare providers have the options to use apps that suit their specific needs and reporting requirements. Such optionality will alleviate data collection and reporting burdens for patients, providers, anyone administering/using tests, labs through which data is routed, since the users can continue using their preferred app(s) and tool(s) for WATERS to ingest. -Visit [Waters.Crowdicity.com –](https://waters.crowdicity.com/) to learn more about the COVID-19 At-Anywhere Design-a-thon along with upcoming events. - -### Learn More -[Waters.Crowdicity.com –](https://waters.crowdicity.com/) an open-innovation crowdsourcing platform for sharing data-driven innovations to combat COVID-19 - -## COVID-19 Open Data Roundtables - -Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance. - -Open Data Roundtables are unique convenings that bring together data providers and their data users to help identify high-value datasets, find action-oriented solutions to data problems, catalyze research on emerging data issues, and establish new collaborations. They connect experts from government, nonprofits and NGOs, academia, and the private sector who may never have met before but who share common goals and interests. - -### What is the history of Open Data Roundtables? - -Open Data Roundtables held by the White House and numerous federal agencies have focused on topics including medical research and health care, transportation, energy and the environment, and the federal data strategy. A Roundtable can cover the use of an individual agency’s data, cross-cutting topics and issues that involve multiple agencies, or federal data policy across the government. Open Data Roundtables often involve participants from state and local governments to address how their data programs can best work together with federal programs. - -Since 2018, HHS has held seven Open Data Roundtables on a wide range of topics. The HHS Office of the CTO co-hosted these Roundtables with the nonprofit Center for Open Data Enterprise (CODE), which developed the methodology for working with federal agencies to hold these events. - -### When is the next Open Data Roundtable? - -HHS is now exploring a potential COVID-19 Open Data Roundtable as well as other efforts to engage stakeholders in addressing the pandemic. More information will be made available on this webpage. - -Previous HHS Roundtables include: - -- [Roundtable on Data Sharing Policies, Data-Driven Solutions, and the Opioid Crisis](http://reports.opendataenterprise.org/HHS-Opioid-Roundtable-Report.pdf) -July 2018 - -- [Lyme Innovation Roundtable](http://reports.opendataenterprise.org/Lyme%20Innovation%20Roundtable%20Report.pdf) -December 2018 - -- [Roundtable on Sharing and Utilizing Health Data for AI Applications](https://healthdatasharing.org/wp-content/uploads/2020/07/RT1-AI-Summary-Report-FINAL-2020.07.28.pdf) -April 2019 - -- [Roundtable on Balancing Privacy with Health Data Access](https://healthdatasharing.org/wp-content/uploads/2020/07/RT2-Privacy-Summary-Report-FINAL-2020.07.28.pdf) -July 2019 - -- [Roundtable on Leveraging Data on the Social Determinants of Health](https://healthdatasharing.org/wp-content/uploads/2020/07/RT3-SDOH-Summary-Report-FINAL-2020.07.28.pdf) -October 2019 - -- [Roundtable on Leveraging Data to Address Sickle Cell Disease](http://reports.opendataenterprise.org/SCD-Report-FINAL.pdf) -June 2020 - -- [Roundtable on Using SDOH Data to Fight COVID-19 and Support Recovery Efforts](https://healthdatasharing.org/wp-content/uploads/2020/12/COVID-SDOH-Summary-Report-Final.pdf) -August 2020 From 0493d06629840d3bad75fcf78341cd2bd7b92308 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Tue, 13 Jul 2021 15:48:58 -0400 Subject: [PATCH 67/77] Create ourteam.md --- _pages/ourteam.md | 37 +++++++++++++++++++++++++++++++++++++ 1 file changed, 37 insertions(+) create mode 100644 _pages/ourteam.md diff --git a/_pages/ourteam.md b/_pages/ourteam.md new file mode 100644 index 0000000..3074090 --- /dev/null +++ b/_pages/ourteam.md @@ -0,0 +1,37 @@ +--- +title: Our Team +layout: page +sidenav: true +--- + +# Our Team + +- Kristen Honey
+ Chief Data Scientist
+ InnovationX Executive Director + +- Ben Eloff
+Innovation Management Director +- Sophia B Liu
+Open Innovation Director +- Joshua Prasad
+Health Equity Director +- Alex Wilson
+Health+ (“health plus”) Director +- Cyrus Sethna
+Communications Director +- Molly Franzonello
+Management and Program Analyst +- Tonia Cosley
+Project Manager +- Carla Bynum
+Communications Manager +- Rachel Melo
+Communications Lead +- Nicolas Otalora
+Executive Assistant +- Karyn Claxton
+Project Coordinator +- Dominique Marshall
+Administrative Assistant + From 870f89daea36b8419388badb0a9a9358ab1628c8 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Tue, 13 Jul 2021 15:50:28 -0400 Subject: [PATCH 68/77] Create about.md --- _pages/about.md | 2 -- 1 file changed, 2 deletions(-) diff --git a/_pages/about.md b/_pages/about.md index 6bef638..1d441e0 100644 --- a/_pages/about.md +++ b/_pages/about.md @@ -15,5 +15,3 @@ As the former Office of the Chief Technology Officer, InnovationX has a history InnovationX partners with all sectors of society to tackle the nation’s most challenging health issues and deliver evidence-based, data-driven solutions. Change in healthcare happens with collaboration, data-driven insights, and human centered design. For inquiries, contact [innovation@hhs.gov](mailto:innovation@hhs.gov). - -## Core Values From 0eecc9c33b70fd1d1f9eda66f36ca2e1c03fabf0 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Tue, 13 Jul 2021 16:02:43 -0400 Subject: [PATCH 69/77] Create mission.md --- _pages/mission.md | 37 +++++++++++++++++++++++++++++++++++++ 1 file changed, 37 insertions(+) create mode 100644 _pages/mission.md diff --git a/_pages/mission.md b/_pages/mission.md new file mode 100644 index 0000000..658ccc2 --- /dev/null +++ b/_pages/mission.md @@ -0,0 +1,37 @@ +--- +title: Mission Statement and Core Values +layout: page +sidenav: true +--- + +# Mission Statement and Core Values + +## InnovationX Mission + +InnovationX unites inspired collaborators to decode and develop transformative solutions to today’s most pressing challenges. + +InnovationX is a team of doers reimagining and redefining what’s possible. We catalyze creative, game-changing approaches to health and human issues through historic public-private alliances, human-centered design, and data-driven innovation. + +Ignited by transparency, open data, emerging technologies, the latest science, and lived experiences, our engagements have reached across disciplines and political lines for over a decade to achieve results. Together, we build equitable, scalable, leading-edge ideas that government, industry, or philanthropy implement to ensure health and well-being for all. + +## Core Values + +Empower People with "Yes, And!" +- Ethical use of data at original collection and future reuse demonstrates institutional integrity and endears trust in the decisions the data informs. + +Apply Knowledge to Get Results +- We are transparent about what we collect, why we collect it, how we collect it, and what we do with it. We request feedback from the broadest base of stakeholders. We aim to increase trust in the data, processes, and organization. + +Prioritize Impact +- Trust in government depends on high quality of data and integrity of governance. We set policies and standards to guide the organization to apply consistent quality assurance for reliable decisions. + +Create Opportunities +- Use collaboration within the agency and through engagement with partners and the public because we are greater together than apart. + +Default to Transparency +- We embrace transparency and user-centered methods to co-create solutions with all stakeholders who—no matter their background and training—are respected and valued as partners. With open minds and humility, we listen. + +Listen to the People we Serve +- We have a bias toward action and strive to be the catalyst to deliver more value, faster, throughout the organization. + +For inquiries, contact innovation@hhs.gov. From 43daec62989f4263b0e9ca1e5964cf0e4edb8ddc Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Tue, 13 Jul 2021 16:07:42 -0400 Subject: [PATCH 70/77] Create currentportfolio.md --- _pages/currentportfolio.md | 13 +++++++++++++ 1 file changed, 13 insertions(+) create mode 100644 _pages/currentportfolio.md diff --git a/_pages/currentportfolio.md b/_pages/currentportfolio.md new file mode 100644 index 0000000..e23e36d --- /dev/null +++ b/_pages/currentportfolio.md @@ -0,0 +1,13 @@ +--- +title: Current Portfolio +layout: page +sidenav: true +--- + +# Current Portfolio + +- COVID-19 Data Driven Innovation: Using novel methods and collaboration to accelerate scientific and public health insights to shorten the time for COVID-19 information and solutions. +- Lyme Innovation and LymeX Innovation Accelerator: Accelerating innovation in tick-borne disease prevention, diagnostics, and patient outcomes via next-gen technologies and interdisciplinary collaborations. +- KidneyX: A public-private collaboration between HHS and the American Society of Nephrology (ASN) to accelerate artificial kidney development toward human clinical trials. +- Health+: A rigorous scientific approach to facilitate patient-centered innovations with human-centered design. +- Drivers of Inequity: focused on achieving health equity by directly tackling the root causes of health disparities by addressing major underlying factors: systemic discrimination and poverty. From 77631086dc2c4b042454915101c7c513506ec3c9 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Tue, 13 Jul 2021 16:15:23 -0400 Subject: [PATCH 71/77] Update _config.yml --- _config.yml | 44 ++++++++++++++++++++++++++++++++------------ 1 file changed, 32 insertions(+), 12 deletions(-) diff --git a/_config.yml b/_config.yml index 8818437..8cd0f95 100644 --- a/_config.yml +++ b/_config.yml @@ -76,31 +76,51 @@ ga: primary_navigation: - name: Home url: / - - name: Core Projects + children: + - name: About Us + url: /about/ + - name: Our Team + url: /ourteam/ + - name: Mission Statement and Core Values + url: /mission/ + - name: Current Portfolio + url: /currentportfolio/ + - name: Current Portfolio children: - name: COVID-19 Data-Driven Innovation - url: /resources/covid-19-data-innovation/ - - name: Lyme Innovation - url: /resources/lymeinnovation/ + url: /resources/covid19/ + - name: Lyme Innovation and LymeX Innovation Accelerator + url: /resources/lymex/ - name: KidneyX url: /resources/kidneyx/ - name: Health+ url: /resources/health+/ - - name: Open Innovation + - name: Drivers of Inequity + url: /resources/socialdeterminants/ + - name: Approach url: /operations/ children: - - name: About Open Innovation + - name: Human-Centered Design + url: /resources/health+/ + - name: Sprints + url: /sprints/ + - name: Open Innovation url: /operations/ - - name: Ignite Accelerator + - name: Partnerships + url: /partnerships/ + - name: Accelerator Model url: /operations/ignite-accelerator/ - - name: Innovation "Tours of Duty" + - name: Tours of Duty url: /operations/innovation-tours-of-duty/ - name: Innovation/Demo/Startup Days url: /operations/startup-days/ - - name: Blog - url: /blog/ - - name: About - url: /about/ + - name: News + url: /news/ + children: + - name: News + url: /news/ + - name: Calendar of Events + url: /calendar/ # secondary_navigation: # - name: COVID Data Hub From b78df3b76441a784d9846c9d808be33ad2ce4663 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Tue, 13 Jul 2021 16:17:22 -0400 Subject: [PATCH 72/77] Create sprints.md --- _pages/sprints.md | 20 ++++++++++++++++++++ 1 file changed, 20 insertions(+) create mode 100644 _pages/sprints.md diff --git a/_pages/sprints.md b/_pages/sprints.md new file mode 100644 index 0000000..fe2f1d2 --- /dev/null +++ b/_pages/sprints.md @@ -0,0 +1,20 @@ +--- +title: Sprints +layout: page +sidenav: true +--- + +# Sprints + +Social Determinants of Health (SdoH) tackles the longest standing and costliest problems in health. We use data-driven and innovation methods to address root causes of health disparities and identify systemic discrimination and poverty related to health population. + +The Drivers of Inequity strategy is focused on achieving health equity by directly tackling the root causes of health disparities by addressing major underlying factors: systemic discrimination and poverty. + +- Medical disparities refer to genetic predispositions, clinical diagnoses, and direct care concerns of an individual or population. +- Health related social needs focus on social and economic factors, including insurance coverage, transportation and similar factors that affect healthcare delivery. +- Interpersonal health factors refer to the social and interpersonal aspects of an individual or groups’ lives that impact health status. +- Structural determinants of health focus on the economic and environmental factors that impact health and health behaviors. + +We harness the power of data to address inequity because data represents the foundation for advancement in meaningful root cause solutions to the Drivers of Equity. We deploy resources to ensure equal opportunity for all Americans. Financing and funding must be directed towards the actual root causes of disparities to sustainably attain equity. We also create a culture of collaboration to share successes. Collaboration and sharing risk and success will engender buy-in that prevents leaving anyone behind. + +Achieving equity comes with an end-to-end consideration of ethics and responsibility. For data and solutions, equity will mean balancing privacy and transparency in a way that puts people first. Ultimately, our goal is to rebuild and repair mistrust in the communities that have been most marginalized. From c125f86486413ba3083e9c3be7b9f4228ae33186 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Tue, 13 Jul 2021 16:17:58 -0400 Subject: [PATCH 73/77] Create partnerships.md --- _pages/partnerships.md | 20 ++++++++++++++++++++ 1 file changed, 20 insertions(+) create mode 100644 _pages/partnerships.md diff --git a/_pages/partnerships.md b/_pages/partnerships.md new file mode 100644 index 0000000..6d43c91 --- /dev/null +++ b/_pages/partnerships.md @@ -0,0 +1,20 @@ +--- +title: Partnerships +layout: page +sidenav: true +--- + +# Partnerships + +Social Determinants of Health (SdoH) tackles the longest standing and costliest problems in health. We use data-driven and innovation methods to address root causes of health disparities and identify systemic discrimination and poverty related to health population. + +The Drivers of Inequity strategy is focused on achieving health equity by directly tackling the root causes of health disparities by addressing major underlying factors: systemic discrimination and poverty. + +- Medical disparities refer to genetic predispositions, clinical diagnoses, and direct care concerns of an individual or population. +- Health related social needs focus on social and economic factors, including insurance coverage, transportation and similar factors that affect healthcare delivery. +- Interpersonal health factors refer to the social and interpersonal aspects of an individual or groups’ lives that impact health status. +- Structural determinants of health focus on the economic and environmental factors that impact health and health behaviors. + +We harness the power of data to address inequity because data represents the foundation for advancement in meaningful root cause solutions to the Drivers of Equity. We deploy resources to ensure equal opportunity for all Americans. Financing and funding must be directed towards the actual root causes of disparities to sustainably attain equity. We also create a culture of collaboration to share successes. Collaboration and sharing risk and success will engender buy-in that prevents leaving anyone behind. + +Achieving equity comes with an end-to-end consideration of ethics and responsibility. For data and solutions, equity will mean balancing privacy and transparency in a way that puts people first. Ultimately, our goal is to rebuild and repair mistrust in the communities that have been most marginalized. From 8e864accc56124fe011f6813a6d34c1de57b653d Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Tue, 13 Jul 2021 16:18:34 -0400 Subject: [PATCH 74/77] Create news.md --- _pages/news.md | 20 ++++++++++++++++++++ 1 file changed, 20 insertions(+) create mode 100644 _pages/news.md diff --git a/_pages/news.md b/_pages/news.md new file mode 100644 index 0000000..c7e7a2d --- /dev/null +++ b/_pages/news.md @@ -0,0 +1,20 @@ +--- +title: News +layout: page +sidenav: true +--- + +# News + +Social Determinants of Health (SdoH) tackles the longest standing and costliest problems in health. We use data-driven and innovation methods to address root causes of health disparities and identify systemic discrimination and poverty related to health population. + +The Drivers of Inequity strategy is focused on achieving health equity by directly tackling the root causes of health disparities by addressing major underlying factors: systemic discrimination and poverty. + +- Medical disparities refer to genetic predispositions, clinical diagnoses, and direct care concerns of an individual or population. +- Health related social needs focus on social and economic factors, including insurance coverage, transportation and similar factors that affect healthcare delivery. +- Interpersonal health factors refer to the social and interpersonal aspects of an individual or groups’ lives that impact health status. +- Structural determinants of health focus on the economic and environmental factors that impact health and health behaviors. + +We harness the power of data to address inequity because data represents the foundation for advancement in meaningful root cause solutions to the Drivers of Equity. We deploy resources to ensure equal opportunity for all Americans. Financing and funding must be directed towards the actual root causes of disparities to sustainably attain equity. We also create a culture of collaboration to share successes. Collaboration and sharing risk and success will engender buy-in that prevents leaving anyone behind. + +Achieving equity comes with an end-to-end consideration of ethics and responsibility. For data and solutions, equity will mean balancing privacy and transparency in a way that puts people first. Ultimately, our goal is to rebuild and repair mistrust in the communities that have been most marginalized. From 1c1128ec0eddab11aa54b6f34275cd60250e6ac4 Mon Sep 17 00:00:00 2001 From: Alex Wilson <65970213+alexanderjwilson@users.noreply.github.com> Date: Tue, 13 Jul 2021 16:19:09 -0400 Subject: [PATCH 75/77] Create calendar.md --- _pages/calendar.md | 20 ++++++++++++++++++++ 1 file changed, 20 insertions(+) create mode 100644 _pages/calendar.md diff --git a/_pages/calendar.md b/_pages/calendar.md new file mode 100644 index 0000000..d14656e --- /dev/null +++ b/_pages/calendar.md @@ -0,0 +1,20 @@ +--- +title: Calendar +layout: page +sidenav: true +--- + +# Calendar + +Social Determinants of Health (SdoH) tackles the longest standing and costliest problems in health. We use data-driven and innovation methods to address root causes of health disparities and identify systemic discrimination and poverty related to health population. + +The Drivers of Inequity strategy is focused on achieving health equity by directly tackling the root causes of health disparities by addressing major underlying factors: systemic discrimination and poverty. + +- Medical disparities refer to genetic predispositions, clinical diagnoses, and direct care concerns of an individual or population. +- Health related social needs focus on social and economic factors, including insurance coverage, transportation and similar factors that affect healthcare delivery. +- Interpersonal health factors refer to the social and interpersonal aspects of an individual or groups’ lives that impact health status. +- Structural determinants of health focus on the economic and environmental factors that impact health and health behaviors. + +We harness the power of data to address inequity because data represents the foundation for advancement in meaningful root cause solutions to the Drivers of Equity. We deploy resources to ensure equal opportunity for all Americans. Financing and funding must be directed towards the actual root causes of disparities to sustainably attain equity. We also create a culture of collaboration to share successes. Collaboration and sharing risk and success will engender buy-in that prevents leaving anyone behind. + +Achieving equity comes with an end-to-end consideration of ethics and responsibility. For data and solutions, equity will mean balancing privacy and transparency in a way that puts people first. Ultimately, our goal is to rebuild and repair mistrust in the communities that have been most marginalized. From 1027ac463b4433f3f7ab48e1424a217f401b6a56 Mon Sep 17 00:00:00 2001 From: milesle15 <89808092+milesle15@users.noreply.github.com> Date: Tue, 21 Sep 2021 12:29:50 -0400 Subject: [PATCH 76/77] Sitemap Update --- .gitignore | 1 + .../covid-19-data-innovation.md | 0 .../innovation-tours-of-duty.md | 0 .../lymeinnovation.md | 5 +- DEPRECATED PAGES/lymex.md | 20 + .../operations (open innovations old).md | 0 Gemfile.lock | 4 +- _assets/css/index.scss | 116 ++++++ _config.yml | 51 +-- _data/bios.yaml | 47 +++ _includes/bios.html | 10 + _includes/tagline.html | 9 - _pages/about.md | 17 - _pages/about/aboutInnovationX.md | 39 ++ _pages/{ => about}/currentportfolio.md | 0 _pages/about/ourteam.md | 11 + _pages/approach/crowdsourcing.md | 36 ++ .../ignite-accelerator.md | 0 .../innovation-tours.md | 13 +- _pages/approach/operations.md | 374 ++++++++++++++++++ _pages/{ => approach}/partnerships.md | 0 _pages/{ => approach}/sprints.md | 0 .../{operations => approach}/startup-days.md | 0 _pages/ourteam.md | 37 -- _pages/resources/covid19.md | 116 +++++- _pages/resources/health+.md | 4 +- _pages/resources/kidneyx.md | 2 +- _pages/resources/lymex.md | 42 +- _pages/resources/socialdeterminants.md | 4 + thumbnails/alex_thumb.png | Bin 0 -> 57918 bytes thumbnails/ben_thumb.png | Bin 0 -> 57997 bytes thumbnails/carla_thumb.png | Bin 0 -> 24576 bytes thumbnails/cyrus_thumb.png | Bin 0 -> 73141 bytes thumbnails/deb_thumb.png | Bin 0 -> 70990 bytes thumbnails/josh_thumb.png | Bin 0 -> 62030 bytes thumbnails/karyn_thumb.png | Bin 0 -> 28315 bytes thumbnails/kristen_thumb.png | Bin 0 -> 78931 bytes thumbnails/miles_thumb.png | Bin 0 -> 179045 bytes thumbnails/molly_thumb.png | Bin 0 -> 206374 bytes thumbnails/rachel_thumb.png | Bin 0 -> 23580 bytes thumbnails/tonia_thumb.png | Bin 0 -> 67329 bytes 41 files changed, 838 insertions(+), 120 deletions(-) rename {_pages/resources => DEPRECATED PAGES}/covid-19-data-innovation.md (100%) rename {_pages/operations => DEPRECATED PAGES}/innovation-tours-of-duty.md (100%) rename {_pages/resources => DEPRECATED PAGES}/lymeinnovation.md (99%) create mode 100644 DEPRECATED PAGES/lymex.md rename _pages/operations.md => DEPRECATED PAGES/operations (open innovations old).md (100%) create mode 100644 _data/bios.yaml create mode 100644 _includes/bios.html delete mode 100644 _pages/about.md create mode 100644 _pages/about/aboutInnovationX.md rename _pages/{ => about}/currentportfolio.md (100%) create mode 100644 _pages/about/ourteam.md create mode 100644 _pages/approach/crowdsourcing.md rename _pages/{operations => approach}/ignite-accelerator.md (100%) rename _pages/{operations => approach}/innovation-tours.md (97%) create mode 100644 _pages/approach/operations.md rename _pages/{ => approach}/partnerships.md (100%) rename _pages/{ => approach}/sprints.md (100%) rename _pages/{operations => approach}/startup-days.md (100%) delete mode 100644 _pages/ourteam.md create mode 100644 thumbnails/alex_thumb.png create mode 100644 thumbnails/ben_thumb.png create mode 100644 thumbnails/carla_thumb.png create mode 100644 thumbnails/cyrus_thumb.png create mode 100644 thumbnails/deb_thumb.png create mode 100644 thumbnails/josh_thumb.png create mode 100644 thumbnails/karyn_thumb.png create mode 100644 thumbnails/kristen_thumb.png create mode 100644 thumbnails/miles_thumb.png create mode 100644 thumbnails/molly_thumb.png create mode 100644 thumbnails/rachel_thumb.png create mode 100644 thumbnails/tonia_thumb.png diff --git a/.gitignore b/.gitignore index 238c9a3..ac64e3c 100644 --- a/.gitignore +++ b/.gitignore @@ -4,3 +4,4 @@ _site node_modules .bundle .jekyll-cache/ +_assets/favicons/favicon.ico diff --git a/_pages/resources/covid-19-data-innovation.md b/DEPRECATED PAGES/covid-19-data-innovation.md similarity index 100% rename from _pages/resources/covid-19-data-innovation.md rename to DEPRECATED PAGES/covid-19-data-innovation.md diff --git a/_pages/operations/innovation-tours-of-duty.md b/DEPRECATED PAGES/innovation-tours-of-duty.md similarity index 100% rename from _pages/operations/innovation-tours-of-duty.md rename to DEPRECATED PAGES/innovation-tours-of-duty.md diff --git a/_pages/resources/lymeinnovation.md b/DEPRECATED PAGES/lymeinnovation.md similarity index 99% rename from _pages/resources/lymeinnovation.md rename to DEPRECATED PAGES/lymeinnovation.md index d16db93..5cc5efd 100644 --- a/_pages/resources/lymeinnovation.md +++ b/DEPRECATED PAGES/lymeinnovation.md @@ -4,8 +4,9 @@ layout: page sidenav: true anchors: - name: Purpose - - name: Lyme Innovation: Real-World Impact + - name: Lyme Innovation Real-World Impact - name: LymeX + - name: Core Values --- # Lyme Innovation @@ -80,7 +81,7 @@ For up-to-date information, statistics, and guidance on Lyme disease and related - [Lyme Innovation Roundtable](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/12/19/lyme-innovation-roundtable.html) (December 19, 2018) - [The HHS Office of the CTO Announces a "Lyme Innovation" Initiative](https://public3.pagefreezer.com/content/HHS.gov/01-01-2021T09:10/https://www.hhs.gov/cto/blog/2018/11/20/the-hhs-office-of-the-cto-announces-a-lyme-innovation-initiative.html) (November 20, 2018) -## Lyme Innovation: Real-World Impact +## Lyme Innovation Real-World Impact This page documents Lyme Innovation's success story as it continues to unfold. Read on to see how our activities are making a positive real-world impact on Lyme disease and other tick-borne illnesses. Check back often for links to reports, apps, games, blog posts, videos, guides, and other material related to Lyme Innovation's ongoing work. diff --git a/DEPRECATED PAGES/lymex.md b/DEPRECATED PAGES/lymex.md new file mode 100644 index 0000000..be681f7 --- /dev/null +++ b/DEPRECATED PAGES/lymex.md @@ -0,0 +1,20 @@ +--- +title: Lyme Innovation and LymeX Innovation Accelerator +layout: page +sidenav: true +--- + +# Lyme Innovation and LymeX Innovation Accelerator + +Social Determinants of Health (SdoH) tackles the longest standing and costliest problems in health. We use data-driven and innovation methods to address root causes of health disparities and identify systemic discrimination and poverty related to health population. + +The Drivers of Inequity strategy is focused on achieving health equity by directly tackling the root causes of health disparities by addressing major underlying factors: systemic discrimination and poverty. + +- Medical disparities refer to genetic predispositions, clinical diagnoses, and direct care concerns of an individual or population. +- Health related social needs focus on social and economic factors, including insurance coverage, transportation and similar factors that affect healthcare delivery. +- Interpersonal health factors refer to the social and interpersonal aspects of an individual or groups’ lives that impact health status. +- Structural determinants of health focus on the economic and environmental factors that impact health and health behaviors. + +We harness the power of data to address inequity because data represents the foundation for advancement in meaningful root cause solutions to the Drivers of Equity. We deploy resources to ensure equal opportunity for all Americans. Financing and funding must be directed towards the actual root causes of disparities to sustainably attain equity. We also create a culture of collaboration to share successes. Collaboration and sharing risk and success will engender buy-in that prevents leaving anyone behind. + +Achieving equity comes with an end-to-end consideration of ethics and responsibility. For data and solutions, equity will mean balancing privacy and transparency in a way that puts people first. Ultimately, our goal is to rebuild and repair mistrust in the communities that have been most marginalized. diff --git a/_pages/operations.md b/DEPRECATED PAGES/operations (open innovations old).md similarity index 100% rename from _pages/operations.md rename to DEPRECATED PAGES/operations (open innovations old).md diff --git a/Gemfile.lock b/Gemfile.lock index 66f8f59..a33ab5f 100644 --- a/Gemfile.lock +++ b/Gemfile.lock @@ -124,7 +124,6 @@ GEM thread_safe (~> 0.1) tzinfo-data (1.2020.5) tzinfo (>= 1.0.0) - wdm (0.1.1) yell (2.2.2) PLATFORMS @@ -143,10 +142,9 @@ DEPENDENCIES kramdown-parser-gfm (~> 1.1.0) sprockets (~> 3.7) tzinfo-data - wdm (~> 0.1.0) RUBY VERSION ruby 2.6.6p146 BUNDLED WITH - 1.17.2 + 2.2.26 diff --git a/_assets/css/index.scss b/_assets/css/index.scss index 16469ba..bffc684 100644 --- a/_assets/css/index.scss +++ b/_assets/css/index.scss @@ -142,3 +142,119 @@ a.ocdo-footer-link { display: block; } } + + +// collection component + +$theme-collection-font-family: "ui"; 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+} + +.usa-collection__description { + @include u-margin-y(1); +} + +.usa-collection__meta { + @include unstyled-list; + @include u-margin-top(0.5); +} + +.usa-collection__meta-item { + @include u-margin-top(0.5); + @include typeset("ui", "2xs", 3); + display: block; + margin-right: units(1); + + &.usa-tag { + @include u-bg("base-lighter"); + @include u-line-height("ui", 1); + @include u-padding-y(0.5); + @include u-text("ink"); + display: inline-block; + margin-top: units(0.5); + text-transform: capitalize; + + &--new { + @include u-bg("accent-warm-dark"); + @include u-text("white"); + } + } +} + +.usa-collection__calendar-date { + text-decoration: none; +} + +.usa-collection__calendar-date-month, +.usa-collection__calendar-date-day { + @include u-font("ui", 6); + display: block; + font-weight: fw("bold"); + padding: units(0.5); + text-align: center; + + @include at-media("tablet") { + padding: units(1); + } +} + +.usa-collection__calendar-date-month { + @include u-radius-top("sm"); + background-color: color("primary"); + color: color("white"); +} + +.usa-collection__calendar-date-day { + @include u-radius-bottom("sm"); + border: 1px solid color("primary"); + color: color("primary"); +} + +.usa-collection--condensed { + .usa-collection__item { + @include u-margin-y(1); + @include u-padding-top(1); + } +} diff --git a/_config.yml b/_config.yml index 8cd0f95..4498d6d 100644 --- a/_config.yml +++ b/_config.yml @@ -76,44 +76,47 @@ ga: primary_navigation: - name: Home url: / - children: - - name: About Us - url: /about/ - - name: Our Team - url: /ourteam/ - - name: Mission Statement and Core Values - url: /mission/ - - name: Current Portfolio - url: /currentportfolio/ - name: Current Portfolio children: - - name: COVID-19 Data-Driven Innovation + - name: COVID-19 url: /resources/covid19/ - - name: Lyme Innovation and LymeX Innovation Accelerator - url: /resources/lymex/ - - name: KidneyX - url: /resources/kidneyx/ - - name: Health+ - url: /resources/health+/ - name: Drivers of Inequity url: /resources/socialdeterminants/ + - name: Health+ + url: /resources/health+/ + - name: KidneyX + url: /resources/kidneyx/ + - name: LymeX + url: /resources/lymex/ - name: Approach - url: /operations/ + url: /approach/ children: + - name: Crowdsourcing & Citizen Science + url: /approach/crowdsourcing/ - name: Human-Centered Design - url: /resources/health+/ + url: /approach/health+/ - name: Sprints - url: /sprints/ + url: /approach/sprints/ - name: Open Innovation - url: /operations/ + url: /approach/operations/ - name: Partnerships - url: /partnerships/ + url: /approach/partnerships/ - name: Accelerator Model - url: /operations/ignite-accelerator/ + url: /approach/ignite-accelerator/ - name: Tours of Duty - url: /operations/innovation-tours-of-duty/ + url: /approach/innovation-tours/ - name: Innovation/Demo/Startup Days - url: /operations/startup-days/ + url: /approach/startup-days/ + - name: About + children: + - name: About InnovationX + url: /about/aboutInnovationX/ + - name: Mission Statement and Core Values + url: /about/mission/ + - name: Our Team + url: /about/ourteam/ + - name: Current Portfolio + url: /about/currentportfolio/ - name: News url: /news/ children: diff --git a/_data/bios.yaml b/_data/bios.yaml new file mode 100644 index 0000000..b6414d6 --- /dev/null +++ b/_data/bios.yaml @@ -0,0 +1,47 @@ +- name: Kristen Honey + description: is the Chief Data Scientist & InnovationX Executive Director + thumb_url: kristen_thumb.png + +- name: Ben Eloff + description: is the Innovation Management Director + thumb_url: ben_thumb.png + +- name: Molly Franzonello + description: is the Solutions and Management Architect + thumb_url: molly_thumb.png + +- name: Joshua Prasad + description: is the Health Equity Director + thumb_url: josh_thumb.png + +- name: Alex Wilson + description: is the Health+ ("Health Plus") Director + thumb_url: alex_thumb.png + +- name: Cyrus Sethna + description: is the Communications Director + thumb_url: cyrus_thumb.png + +- name: Tonia Cosley + description: is the Project Manager + thumb_url: tonia_thumb.png + +- name: Deb Lovett + description: is the Senior Communications Manager + thumb_url: deb_thumb.png + +- name: Carla Bynum + description: is the Communications Manager + thumb_url: carla_thumb.png + +- name: Rachel Melo + description: is the Communications Lead + thumb_url: rachel_thumb.png + +- name: Miles Le + description: is the Communications Specialist + thumb_url: miles_thumb.png + +- name: Karyn Claxton + description: is the Project Coordinator + thumb_url: karyn_thumb.png diff --git a/_includes/bios.html b/_includes/bios.html new file mode 100644 index 0000000..2b6c20e --- /dev/null +++ b/_includes/bios.html @@ -0,0 +1,10 @@ +-
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Innovation can h
InnovationX unites inspired collaborators to decode and develop transformative solutions to today’s most pressing challenges.
InnovationX is a team of doers reimagining and redefining what’s possible. We catalyze creative, game-changing approaches to health and human issues through historic public-private alliances, human-centered design, and data-driven innovation.
Ignited by transparency, open data, emerging technologies, the latest science, and lived experiences, our engagements have reached across disciplines for over a decade to achieve results. Together, we build equitable, scalable, leading-edge ideas that government, industry, or philanthropy implement to ensure health and well-being for all.
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- Prize challenges provide incentive for innovation -
- Tech sprints apply industry best practices to government service -
- Human-centered design: build with, not for, the American people -
- Partnerships and collaboration leverage resources from private industry to advance our mission -
- Open data roundtables elevated underserved communities with social determinants of health insights -
- Chief Data Scientist
- InnovationX Executive Director - -- Ben Eloff
-Innovation Management Director -- Sophia B Liu
-Open Innovation Director -- Joshua Prasad
-Health Equity Director -- Alex Wilson
-Health+ (“health plus”) Director -- Cyrus Sethna
-Communications Director -- Molly Franzonello
-Management and Program Analyst -- Tonia Cosley
-Project Manager -- Carla Bynum
-Communications Manager -- Rachel Melo
-Communications Lead -- Nicolas Otalora
-Executive Assistant -- Karyn Claxton
-Project Coordinator -- Dominique Marshall
-Administrative Assistant - diff --git a/_pages/resources/covid19.md b/_pages/resources/covid19.md index 874a957..614fd9b 100644 --- a/_pages/resources/covid19.md +++ b/_pages/resources/covid19.md @@ -2,19 +2,119 @@ title: COVID-19 Data-Driven Innovation layout: page sidenav: true +anchors: + - name: What is the Opportunity Project (TOP)? + - name: COVID-19 Diagnostics Design-a-thon --- # COVID-19 Data-Driven Innovation -Social Determinants of Health (SdoH) tackles the longest standing and costliest problems in health. We use data-driven and innovation methods to address root causes of health disparities and identify systemic discrimination and poverty related to health population. +_Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and guidance._ -The Drivers of Inequity strategy is focused on achieving health equity by directly tackling the root causes of health disparities by addressing major underlying factors: systemic discrimination and poverty. +COVID-19 Data Driven Innovation uses novel methods and collaboration to accelerate scientific and public health insights to shorten the time it takes for COVID-19 information and solutions to save lives. -- Medical disparities refer to genetic predispositions, clinical diagnoses, and direct care concerns of an individual or population. -- Health related social needs focus on social and economic factors, including insurance coverage, transportation and similar factors that affect healthcare delivery. -- Interpersonal health factors refer to the social and interpersonal aspects of an individual or groups’ lives that impact health status. -- Structural determinants of health focus on the economic and environmental factors that impact health and health behaviors. +This HHS initiative is led by the [Office of the Assistant Secretary for Health](https://www.hhs.gov/ash/index.html) and the Office of the Chief Data Officer. Collaboratively, we are creating crosscutting impact and real-world value from a data-driven ecosystem during one of the most challenging public health crises of our lifetimes. Opening COVID-19 datasets on HealthData.gov and applying proven innovation methods like Health+ (“health plus”) allow COVID-19 innovation success to be measured by patient outcomes, social equity, economic recovery, and how HHS improved the lives of all Americans affected by novel coronavirus. -We harness the power of data to address inequity because data represents the foundation for advancement in meaningful root cause solutions to the Drivers of Equity. We deploy resources to ensure equal opportunity for all Americans. Financing and funding must be directed towards the actual root causes of disparities to sustainably attain equity. We also create a culture of collaboration to share successes. Collaboration and sharing risk and success will engender buy-in that prevents leaving anyone behind. +COVID-19 is a multi-faceted challenge and we are employing numerous innovative practices to address the crisis. Over [200 COVID-19 datasets](https://healthdata.gov/search/og_group_ref/286/type/dataset?query=covid-19&sort_by=changed&sort_order=DESC) on HealthData.gov serve as the fuel for much of our HHS innovation, including the: + +- COVID-19 At-Anywhere Diagnostics “Design-a thon” - A virtual innovation sprint with 750 problem solvers who produced over 30 capstone projects. [Winning Design-a-thon teams](https://www.hhs.gov/about/news/2020/12/16/winners-of-hhs-design-a-thon-to-develop-innovative-digital-health-tools-for-covid-19.html) captured COVID-19 diagnostic data and report key elements to inform a data-driven pandemic response. +- COVID-19 TOPx Technology Sprint – A fast-paced, 10-week build cycle using the “TOPx Toolkit” created by the U.S. Census Bureau with 12 industry-led teams to further develop COVID-19 diagnostic reporting tools and accelerate the public use of these tools, making it easier for individuals and organizations to safely report positive/negative test results. +- COVID-19 Open Data Roundtables – Hands on, structured workshops that improve accessibility and data sharing for public health and the public good, bringing together community, state and federal government leaders, the private sector, non-profits, research, and academia. + +Together, through COVID-19 data-driven innovation, we are saving and improving American lives. Please join our solver community by creating a profile on our open-innovation, crowdsourcing platform: [waters.crowdicity.com](https://waters.crowdicity.com). + +The COVID-19 pandemic has rapidly changed the way we live. Data and data standards are essential for an effective U.S. response, but only if data are used and standards are widely adopted by all sectors. With COVID-19 TOPx, HHS is collaborating with industry-led teams to transform HHS open data and data standards into digital tools with practical real-world applications. + +## What is the Opportunity Project (TOP)? + +- [The Opportunity Project](https://opportunity.census.gov/) is a collaboration process developed by the White House in 2016 to speed up innovation fueled by government open data. Since then, the U.S. Census Bureau has scaled the program to different government agencies, working with thousands of participants to create over 100 digital products. TOP is a proven innovation model, typically a 12- to 14-week technology sprint with industry, which the government can leverage alongside open data to catalyze new technologies. +- Iterate with user-centered, agile build cycles. +- Launch a new digital tool (or build new functionality for an existing tool). + +Each year, the U.S. Census Bureau hosts the annual [TOP Demo Day](https://opportunity.census.gov/our-process/) to showcase digital tools developed through TOP sprints. At Demo Day, the press, data enthusiasts, technologists, government leaders, and others gather to celebrate the launch of products built that year. + +## What is a TOPx Sprint? + +In late 2020, the U.S. Census Bureau published its [TOPx Toolkit](https://opportunity.census.gov/topx-toolkit/introduction/) with how-to instructions for agencies to run their own TOP-like sprints, called “TOPx” sprints. They bring together technologists, government, and communities to rapidly prototype digital products—powered by [U.S. open data](https://www.data.gov/)—that solve real-world problems. The TOPx model gives federal agencies a framework for collaborating with industry and non-government organizations using government open data to: +- Address mission-critical priorities with data and technology innovation +- Recruit cross-sector participants and strengthen collaborative networks +- Facilitate a virtual technology development sprint on a flexible and modifiable timeline +- Showcase outcomes and new digital tools at TOP or TOPx Demo Days + +### HHS InnovationX Pioneers the First-Ever COVID-19 TOPx Sprint + +Innovation necessitates trying new things, and the InnovationX team has introduced HHS to TOP and TOPx sprints. The first-ever HHS TOPx sprint, launched in January 2021, focused on COVID-19. Fourteen industry-led teams participated in this COVID-19 TOPx sprint with the goal to develop digital health tools to capture, harmonize, and securely transmit key data elements from at-anywhere COVID-19 diagnostic tests. Participating TOPx teams won the [COVID-19 At-Anywhere Diagnostics Design-a-thon](https://www.hhs.gov/coronavirus/covid-19-at-anywhere-diagnostics-design-a-thon/index.html) (innovation sprint) with HHS in late 2020. + +This first [COVID-19 TOPx sprint](https://waters.crowdicity.com/) used a condensed 8-week build cycle, compared to the usual 12- to 14-week TOP length. This abbreviated timeline reflects the urgency of today’s COVID-19 pandemic — people need COVID-19 solutions now. + +The COVID-19 TOPx sprint occurred in the open with all meetings and demos open to the public through waters.crowdicity.com, a crowdsourcing platform for interactive ideas exchange. This made the COVID-19 TOPx process visible, transparent, and accessible to all. + +During the TOPx sprint, HHS policy experts and data stewards provide feedback to the participating teams led by industry, academia, and non-government organizations. As with TOP sprints, all TOPx sprints must use government open data and agile methods to ship tangible, real-world digital tools by the end of the collaboration. Below is a typical process and timeline: + +- Develop TOPx problem statement(s) and identify relevant open datasets +- Recruit sprint participants +- Facilitate an 8- to 14-week technology development sprint + - Organize and facilitate milestone calls (User Research, Data Discovery, Alpha Demo, Beta Demo, Final Demo) + - Provide insight related to the agency’s policy and operational areas + - Answer questions about finding and using the agency’s public data + - Provide feedback on the products being developed +- Host an (optional) in-person event during which products are launched and showcased +- Participate in the annual TOP Demo Day, hosted by the U.S. Census Bureau. + +The InnovationX team is currently developing the HHS TOPx Toolkit, including HHS case studies and how-to methods using [HealthData.gov](https://healthdata.gov/). This will provide innovation support and an HHS-specific playbook for the 80,000+ HHS employees across 11 Operating Divisions and over 15 Staff Divisions that may wish to use TOP or TOPx methods to advance their priorities and mission. + +COVID-19 TOPx Tech Sprint Begins with Design-a-thon Teams — Join us! – Blog to launch the “COVID-19 TOPx” technology sprint to continue momentum and further develop digital health tools to capture, harmonize, and securely transmit key data elements from at-anywhere COVID-19 diagnostic tests. + +- [Waters.Crowdicity.com](https://waters.crowdicity.com/) – an open-innovation crowdsourcing platform for sharing data-driven innovations to combat COVID-19 + +## COVID-19 Diagnostics Design-a-thon +_Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance._ + +We brought together innovative private-sector tech teams and data-driven public sector leaders to address one of our most difficult problems using federal open data standards — diagnosing COVID-19 infections. + +_What is a Design-a-thon?_ +A public-facing, open-innovation sprint that connects industry with the U.S. government. Teams work quickly to design software that can be scaled to address a public health need. + +The [COVID-19 At-Anywhere Diagnostics Design-a-thon](https://www.hhs.gov/about/news/2020/12/16/winners-of-hhs-design-a-thon-to-develop-innovative-digital-health-tools-for-covid-19.html) issued a call-to-action for American industry and the public to unleash the power of open innovation to develop digital solutions for COVID-19 data capture, harmonization, and reporting from diagnostic tests. HHS crowdsourced ideas from teams that proposed solutions through the [Waters.Crowdicity.com –](https://waters.crowdicity.com/) platform. This [“open innovation”](https://www.hhs.gov/cto/initiatives/open-innovation/about/index.html) platform enabled Design-a-thon teams to form, exchange ideas, and submit “Capstone Projects” built with HHS open data, open source code, and open science. + +_What are outcomes of the COVID-19 At-Anywhere Diagnostics Design-a-thon?_ + +The Design-a-thon brought together software developers, designers, and engineers with in vitro diagnostic device developers and COVID-19 subject matter experts to build software and digital tools that are directly integrated with COVID-19 tests. Over 750 problem solvers and innovators participated. Collectively, participants formed Design-a-thon teams and submitted over 30 “Capstone Projects” with capabilities to alleviate data collection and reporting burdens for patients, providers, anyone administering/using tests, or labs through which data is routed. These digital capabilities included automated and semi-automated digital tools for reporting COVID-19 results from at-home, non-prescription, and over-the-counter tests on the market now. Judges invited 16 winners to participate in the TOPx tech sprint. + +## What is WATERS? +During the Design-a-thon, HHS built and launched a “Wireless Automated Transmission for Electronic Reporting Systems” or WATERS to ingest data feeds from many COVID-19 apps and digital tools, including those built by TOPx teams. WATERS provides digital infrastructure for government to securely receive, harmonize, and transmit data from diagnostic device apps, Laboratory Information Management Systems and other entities sending COVID-19 diagnostic data. + +A key function of WATERS is “optionality” – the ability to support disparate, complex systems to accommodate current and changing needs. We are ensuring that hospitals, nursing homes, and other healthcare providers have the options to use apps that suit their specific needs and reporting requirements. Such optionality will alleviate data collection and reporting burdens for patients, providers, anyone administering/using tests, labs through which data is routed, since the users can continue using their preferred app(s) and tool(s) for WATERS to ingest. Visit [Waters.Crowdicity.com –](https://waters.crowdicity.com/) to learn more about the COVID-19 At-Anywhere Design-a-thon along with upcoming events. + +**Learn More** +[Waters.Crowdicity.com –](https://waters.crowdicity.com/) an open-innovation crowdsourcing platform for sharing data-driven innovations to combat COVID-19 + +## COVID-19 Open Data Roundtables +_Note: Please visit the [CDC’s website on COVID-19](https://www.cdc.gov/coronavirus/2019-ncov/index.html) for the most up-to-date information and COVID-19 guidance._ + +Open Data Roundtables are unique convenings that bring together data providers and their data users to help identify high-value datasets, find action-oriented solutions to data problems, catalyze research on emerging data issues, and establish new collaborations. They connect experts from government, nonprofits and NGOs, academia, and the private sector who may never have met before but who share common goals and interests. + +### What is the history of Open Data Roundtables? +Open Data Roundtables held by the White House and numerous federal agencies have focused on topics including medical research and health care, transportation, energy and the environment, and the federal data strategy. A Roundtable can cover the use of an individual agency’s data, cross-cutting topics and issues that involve multiple agencies, or federal data policy across the government. Open Data Roundtables often involve participants from state and local governments to address how their data programs can best work together with federal programs. + +Since 2018, HHS has held seven Open Data Roundtables on a wide range of topics. The HHS Office of the CTO co-hosted these Roundtables with the nonprofit Center for Open Data Enterprise (CODE), which developed the methodology for working with federal agencies to hold these events. + +### When is the next Open Data Roundtable? +HHS is now exploring a potential COVID-19 Open Data Roundtable as well as other efforts to engage stakeholders in addressing the pandemic. More information will be made available on this webpage. + +Previous HHS Roundtables include: + +- [Roundtable on Data Sharing Policies, Data-Driven Solutions, and the Opioid Crisis July](http://reports.opendataenterprise.org/HHS-Opioid-Roundtable-Report.pdf) 2018 + +- [Lyme Innovation Roundtable December](http://reports.opendataenterprise.org/Lyme%20Innovation%20Roundtable%20Report.pdf) 2018 + +- [Roundtable on Sharing and Utilizing Health Data for AI Applications](https://healthdatasharing.org/wp-content/uploads/2020/07/RT1-AI-Summary-Report-FINAL-2020.07.28.pdf) April 2019 + +- [Roundtable on Balancing Privacy with Health Data Access](https://healthdatasharing.org/wp-content/uploads/2020/07/RT2-Privacy-Summary-Report-FINAL-2020.07.28.pdf) July 2019 + +- [Roundtable on Leveraging Data on the Social Determinants of Health](https://healthdatasharing.org/wp-content/uploads/2020/07/RT3-SDOH-Summary-Report-FINAL-2020.07.28.pdf) October 2019 + +- [Roundtable on Leveraging Data to Address Sickle Cell Disease](http://reports.opendataenterprise.org/SCD-Report-FINAL.pdf) June 2020 + +- [Roundtable on Using SDOH Data to Fight COVID-19 and Support Recovery Efforts](https://healthdatasharing.org/wp-content/uploads/2020/12/COVID-SDOH-Summary-Report-Final.pdf) August 2020 -Achieving equity comes with an end-to-end consideration of ethics and responsibility. For data and solutions, equity will mean balancing privacy and transparency in a way that puts people first. Ultimately, our goal is to rebuild and repair mistrust in the communities that have been most marginalized. diff --git a/_pages/resources/health+.md b/_pages/resources/health+.md index e00d9ec..f822a8a 100644 --- a/_pages/resources/health+.md +++ b/_pages/resources/health+.md @@ -21,11 +21,11 @@ Health+ (“health plus”) is an ongoing series of research and healthathon cyc ## Design, Discovery & Definition -We will conduct landscape research focused on developing deep understanding of the challenge, the audience, and the vision set forth by executive stakeholders and intra-agency partnerships. By utilizing Human Centered Design (HCD) methods, conducting problem validation with stakeholders, identifying salient user stories, and forming of personas and journey maps, we can inform the round table vision and suggest solutions for those affected by critical health issues. Together, we will work hand-in-hand to execute a roundtable with identified stakeholders, match emerging themes to data sets, and prepare artifacts necessary so that a product team is able to execute different strategies during the rapid prototyping phase. +We conduct landscape research focused on developing a deep understanding of the challenge, the audience, and the vision set forth by executive stakeholders and intra-agency partnerships. By utilizing Human Centered Design (HCD) methods, conducting problem validation with stakeholders, identifying salient user stories, and forming of personas and journey maps, we can inform the round table vision and suggest solutions for those affected by critical health issues. Together, we work hand-in-hand to execute a roundtable with identified stakeholders, match emerging themes to data sets, and prepare artifacts necessary so that a product team is able to execute different strategies during the rapid prototyping phase. ## Rapid Prototyping -This phase includes engaging with patients, subject matter experts, and policy makers in a healthathon, in which participants prototype creative solutions for specific audiences, problems, and opportunities identified by the roundtable. Healthathon outputs may include policy initiatives, technical products, white papers, and more. +This phase includes engaging with patients, subject matter experts, and policy makers in a healthathon, in which participants prototype creative solutions for specific audiences, problems, and opportunities identified by the roundtable. Health-a-thon outputs may include policy initiatives, technical products, white papers, and more. ## Transition diff --git a/_pages/resources/kidneyx.md b/_pages/resources/kidneyx.md index a4e8f27..3a36e7d 100644 --- a/_pages/resources/kidneyx.md +++ b/_pages/resources/kidneyx.md @@ -9,7 +9,7 @@ anchors: - name: COVID-19 Kidney Care Challenge --- -# KidneyX +# KidneyX and KidneyX Accelerator [Follow us on Twitter](https://twitter.com/Kidney_X)! diff --git a/_pages/resources/lymex.md b/_pages/resources/lymex.md index be681f7..a1bd2de 100644 --- a/_pages/resources/lymex.md +++ b/_pages/resources/lymex.md @@ -1,20 +1,42 @@ --- -title: Lyme Innovation and LymeX Innovation Accelerator +title: LymeX layout: page sidenav: true +anchors: +- name: Purpose +- name: Goals --- -# Lyme Innovation and LymeX Innovation Accelerator +# LymeX and LymeX Accelerator +[Follow us on Twitter!](https://twitter.com/Lyme_X) -Social Determinants of Health (SdoH) tackles the longest standing and costliest problems in health. We use data-driven and innovation methods to address root causes of health disparities and identify systemic discrimination and poverty related to health population. +## Purpose +The Lyme Innovation initiative sees patients as more than the targets for new prevention, diagnostic, and treatment tools and techniques to address Lyme disease and other tick-borne illnesses. Patients are the driving forces of innovation, and their lived experience is our roadmap. +Lyme Innovation uses strategic public-private partnerships to accelerate patient-centered advancements in how we address Lyme and other tick-borne diseases. By supporting interdisciplinary collaborations that reflect the initiative’s core values, Lyme Innovation will: +- Build commitment to data-driven, patient-centered innovations that improve outcomes. +- Identify ways to better collect and share data while raising awareness of tick-borne illnesses. +- Accelerate discovery of next-gen diagnostic tools and technologies. +- Lower barriers across all phases of development, testing, and implementation. -The Drivers of Inequity strategy is focused on achieving health equity by directly tackling the root causes of health disparities by addressing major underlying factors: systemic discrimination and poverty. +## LymeX +HHS launched the LymeX Innovation Accelerator (LymeX), an innovation partnership with the Steven & Alexandra Cohen Foundation. LymeX is modeled after the success and methods of the KidneyX Innovation Accelerator, a partnership between HHS and the American Society of Nephrology that includes kidney-care patients in every step of its innovation process. -- Medical disparities refer to genetic predispositions, clinical diagnoses, and direct care concerns of an individual or population. -- Health related social needs focus on social and economic factors, including insurance coverage, transportation and similar factors that affect healthcare delivery. -- Interpersonal health factors refer to the social and interpersonal aspects of an individual or groups’ lives that impact health status. -- Structural determinants of health focus on the economic and environmental factors that impact health and health behaviors. +### Mission +LymeX will accelerate Lyme Innovation progress and strategically advance tick-borne-disease solutions in direct collaboration with Lyme patients, patient advocates, and diverse stakeholders across academia, nonprofits, industry, and government. -We harness the power of data to address inequity because data represents the foundation for advancement in meaningful root cause solutions to the Drivers of Equity. We deploy resources to ensure equal opportunity for all Americans. Financing and funding must be directed towards the actual root causes of disparities to sustainably attain equity. We also create a culture of collaboration to share successes. Collaboration and sharing risk and success will engender buy-in that prevents leaving anyone behind. +## Goals + +### Engage Stakeholders to Facilitate Patient-Centered Innovations +By including patients and stakeholders in every step of identifying, developing, and implementing advancements in Lyme disease care, LymeX fosters innovations that can deliver transformative impact on patients' quality of life. LymeX is exploring how collaborative partnership models can best support stakeholder engagement. For example, the Health+ approach pinpoints challenges from the patient's point of view to identify and map development of new tools and technological solutions. +In close collaboration with stakeholders, LymeX aims to: +- Build capacity for effective, efficient communication among patients, stakeholders, and HHS +- Identify common challenges in patient and healthcare provider experiences +- Hold a roundtable to outline possible improvements and solutions +- Make plans for quickly developing and testing solution prototypes + +### Foster Breakthroughs in Education and Awareness +LymeX supports innovative health education and public awareness initiatives that focus on tick-borne disease prevention and help clinicians, patients, and caregivers benefit from the latest scientific findings. + +### Accelerate Development of Next-Gen Diagnostics +LymeX prize challenges encourage rapid, cross-sector, patient-centered diagnostic innovations. These challenges will drive creators, industries, and academia toward breakthroughs in more accurate Lyme diagnosis, helping make next-gen diagnostics available more quickly. -Achieving equity comes with an end-to-end consideration of ethics and responsibility. For data and solutions, equity will mean balancing privacy and transparency in a way that puts people first. Ultimately, our goal is to rebuild and repair mistrust in the communities that have been most marginalized. diff --git a/_pages/resources/socialdeterminants.md b/_pages/resources/socialdeterminants.md index ee944fe..df1f948 100644 --- a/_pages/resources/socialdeterminants.md +++ b/_pages/resources/socialdeterminants.md @@ -6,6 +6,10 @@ sidenav: true # Drivers of Inequity +## Social Determinants of Health + +The Drivers of Inequity strategy is focused on achieving health equity by directly tackling the root causes of health disparities by addressing major underlying factors: systemic discrimination and poverty. + Social Determinants of Health (SdoH) tackles the longest standing and costliest problems in health. We use data-driven and innovation methods to address root causes of health disparities and identify systemic discrimination and poverty related to health population. 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