Organ or Tissue for Donation Terminology - Support transition between the CDA or RIM and FHIR formats

[dtr-agency]

Issue in supporting transition between the CDA or RIM format and the FHIR format (both STU3 and R4) of an Australian Organ Donor Register form.

The terminology that represents organ or tissue for donation doesn't have a defined transition from the NCTIS terminology supported in the original CDA (RIM) format and the SNOMED CT terminology supported in the FHIR format.

The CDA format supports the legacy value set NCTIS Organ Donation Consent Component Indicators that uses concepts from NCTIS Data Components code system.

The FHIR format supports the value set Organ Donation Body Site that uses concepts from SNOMED CT.

Concept maps are required to define to define that transition but are not yet available.

Originally posted by @dtr-agency in #141 (comment)

[dtr-agency]

Publication of the CDA (RIM) legacy value set NCTIS Organ Donation Consent Provision Type is being managed by FHIR Terminology Requests FTR-103.

[dtr-agency]

Early proposal for concept maps

CDA (RIM) to FHIR

Element	Description
Suggested Title of ConceptMap	NCTIS Organ Donation Consent Component Indicators to Organ Donation Body Site
Suggested URI	https://healthterminologies.gov.au/fhir/ConceptMap/
Suggested Description	The NCTIS Organ Donation Consent Component Indicators to Organ Donation Body Site concept map defines relationships from the concepts in the NCTIS Organ Donation Consent Component Indicators value set to the concepts in the Organ Donation Body Site value set.
Source ValueSet	https://healthterminologies.gov.au/fhir/ValueSet/organ-donation-consent-provision-type-1
Target ValueSet	https://healthterminologies.gov.au/fhir/ValueSet/organ-donation-body-site-1

Source Concept	Equivalence	Target Concept
103.16661	equivalent	272673000
103.16662	equivalent	81745001
103.16669	equivalent	39937001
103.16663	equivalent	80891009
103.16664	equivalent	17401000
103.16665	equivalent	64033007
103.16666	equivalent	10200004
103.16667	equivalent	39607008
103.16668	equivalent	15776009

FHIR to CDA (RIM)

Element	Description
Suggested Title of ConceptMap	Organ Donation Body Site to NCTIS Organ Donation Consent Component Indicators
Suggested URI	https://healthterminologies.gov.au/fhir/ConceptMap/
Suggested Description	The Organ Donation Body Site to NCTIS Organ Donation Consent Component Indicators concept map defines relationships from the concepts in the Organ Donation Body Site value set to the concepts in the NCTIS Organ Donation Consent Component Indicators value set.
Source ValueSet	https://healthterminologies.gov.au/fhir/ValueSet/organ-donation-body-site-1
Target ValueSet	https://healthterminologies.gov.au/fhir/ValueSet/organ-donation-consent-tbd-1

Source Concept	Equivalence	Target Concept
272673000	equivalent	103.16661
81745001	equivalent	103.16662
39937001	equivalent	103.16669
80891009	equivalent	103.16663
17401000	equivalent	103.16664
64033007	equivalent	103.16665
10200004	equivalent	103.16666
39607008	equivalent	103.16667
15776009	equivalent	103.16668

EDITED: 05/05/2022

[dbojicic-agency]

Completed initial review of the two concept maps with no issues related to the proposed content found.
Noting that proposed URIs are incomplete which is probably expected at this stage given the pending ValueSet FTRs.

[lindaa-agency]

CDA (RIM) to FHIR concept map reviewed with no issues.
FHIR to CDA (RIM) concept map reviewed with no issues.

The program refers to organ and tissue donation - Suggest the inclusion of tissue in the Title and the descriptions etc ie:

NCTIS Organ and Tissue Donation Consent Provision Type to Organ and Tissue Donation Body Site

Organ and Tissue Donation Body Site to NCTIS Organ and Tissue Donation Consent Provision Type

[dtr-agency]

@lindaa-agency, the title and descriptions of the Concept Maps use the titles of the source and target value sets. If a used value set title changes, the concept map will update as a result.

To address the concern that the title of the value sets doesn't fully describe the domain you could raise an update to a value set title.

[dtr-agency]

Above request provided to ADHA Terminology, request managed by FHIR Terminology Requests FTR-1533 & FTR-1528.

[dtr-agency]

NCTIS value set title changed as per recommendation from terminology analyst - design above edited.

[dtr-agency]

ValueSet reviewed and approved for publication. Publication scheduled for May 2022 release.

[dtr-agency]

Published in NCTS.